Psychosoziale Krebsberatungsstellen – eine Analyse der Versorgungsrealität in Sachsen

Psychosocial cancer counseling centers represent an increasingly important part of comprehensive psychosocial cancer care. Research on the services provided by those centers is sparse, however, as is research on person-, disease-, and treatment-related characteristics of their clients. Therefore, the present study analyzes the services provided by 26 psychosocial cancer counseling centers temporarily being funded by the German Cancer Aid as well as selected characteristics of their clients. Analyses are based on data collected during 2011 by means of a documentation system specifically designed for the purposes of psychosocial cancer counseling. Testing focuses on whether cancer patients and cancer patients' relatives differ with respect to various characteristics and the services used. The results show that psychosocial and benefit counseling represent a major part of counseling services, followed by giving information and employing relaxation techniques. Clients seek counseling primarily in early phases of disease and treatment. Women with breast cancer are over-represented among clients. Analyses also reveal significant differences between cancer patients and patients' relatives. Psychotherapeutic interventions and grief-counseling are more frequent in counseling relatives, whereas benefit counseling is more frequent in working with patients. The results emphasize the relevance of outpatient psychosocial cancer counseling. They may also help support initiatives aiming at establishing psychosocial cancer counseling targeted to the needs of each individual client.

Section: Einleitung ▼unclassified

Ambulante psychoonkologische Versorgung durch Krebsberatungsstellen – Leistungsspektrum und Inanspruchnahme durch Patienten und Angehörige

Giesler¹,

Weis²,

Schreib³

et al. 2015

“…In Deutschland existieren im Jahr 2014 rund 160 ambulante KBS mit einer sehr heterogenen Finanzierungs-, Träger-und Angebotsstruktur [21,22]. In Hinblick auf eine Regelversorgung von ambulanten Beratungsleistungen wurden in jüngster Zeit Qualitätsstandards für diesen Leistungssektor entwickelt und vorgelegt [23].…”

Section: Psychoonkologische Versorgung Und Ambulante Psychosoziale Beunclassified

Psychosoziale Versorgung von Krebspatienten in einer Krebsberatungsstelle an einem Universitätsklinikum

Lehmann-Laue

Danker

Schröter

et al. 2018

“…Zur Versorgungssituation hinsichtlich der ambulanten Krebsberatung wurden in Deutschland bisher 2 Studien vorgelegt. Im Jahr 2008 wurde im Land Sachsen eine Erhebung der Strukturmerkmale aller Krebsberatungsstellen (n = 30) durchgeführt, die -wenngleich flächendeckende -so doch nur eingeschränkt leitliniengerechte Versorgung bescheinigen kann [26]. Eine weitere Studie der Bundesarbeitsgemeinschaft für Rehabilitation befasste sich mit der Erfassung der Strukturmerkmale und des Leistungsangebots von Krebsberatungsstellen basierend auf einer bundesweiten Befragung von 83 KBS im Jahr 1999.…”

Section: Einflussfaktorenunclassified

Psychosoziale Situation und Beratungszufriedenheit von Ratsuchenden ambulanter psychosozialer Krebsberatungsstellen in Sachsen – Beratungsaspekte und praktische Implikationen

Götze

Röder

Frenschkowski³

et al. 2016

Outpatient psychosocial counselling (OPC) centers for those affected by cancer fulfill 2 main purposes: (a) to offer low-threshold psychological, social and legal counselling, and (b) to refer clients to other services. Here we report findings from a user-based assessment of OPC in the state of Saxony, Germany. This study was funded in part by the Saxon State Ministry of Social Affairs and Consumer Protection. We used a paper-based questionnaire to survey 213 clients of OPC in Saxony at 2 points (t1: up to one week after first contact, t2: 4 months after t1). All participants were cancer patients. The survey assessed utilization of services, depressive symptoms (PHQ-9), anxiety (GAD-7), quality of life (SF-8) as well as clients' satisfaction with the counselling service (ZUF-8). The majority of clients (81%) were referred to the OPC from a hospital or rehabilitation center. 46% of patients only had one contact. 78% of counselling sessions treated matters of social law. Patients suffered from 13 problems on average, the most common being fatigue and exhaustion, worries, anxiety, uncertainty about the future, and pain. Half the patients (49%) reported moderate to severe anxiety and 68% showed elevated levels of depressive symptoms. Psychosocial distress did not change significantly over time (GAD-7: p=0.580, PHQ-9: p=0.101). Patients' quality of life was low overall (cut-off<50). At t2, quality of life had particularly increased in physical aspects, but overall quality of life remained lower than in the general population (all subscales: p<0.05). We identified younger age and lower income as risk factors for higher psychosocial distress and lower quality of life. Patients were very satisfied with the counselling they received, 9% reported to be dissatisfied. Our results show that psychosocial distress remains high over a longer period of time at least for some patients. This illustrates the persisting need for long-term support regarding physical, mental and social impairments as a consequence of cancer and its treatments. It also shows the challenging demands which OPC centers are faced with. As a consequence, psychosocial support in the outpatient setting needs to be extended and developed further.