Public attitudes towards people living with dementia: A cross-sectional study in urban Japan (innovative practice)

Aihara, Yoko; Kato, H.; Sugiyama, Tetsuko; Ishi, Kuniko; Goto, Yasushi

doi:10.1177/1471301216682118

Cited by 29 publications

(39 citation statements)

References 12 publications

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“…Nearly half of the participants in a Japanese study report being ashamed of a family member being diagnosed with dementia. [30] Poor mental health literacy among the public regarding dementia juxtaposed with negative public attitude serves as a major deterrent to seek timely help from a medical professional[31], which can ultimately lead to more severe adverse outcomes.…”

Section: Discussionmentioning

confidence: 99%

Pre-ESRD Dementia and Post-ESRD Mortality in a Large Cohort of Incident Dialysis Patients

Molnár

Sumida

Gaipov³

et al. 2017

Dement Geriatr Cogn Disord

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Background: Conservative management may be a desirable option for elderly, fragile, or demented patients who reach end-stage renal disease (ESRD), yet some patients with dementia are placed on renal replacement therapy nonetheless. Methods: From a nationwide cohort of 45,076 US veterans who transitioned to ESRD over 4 contemporary years (October 1, 2007 to September 30, 2011), we identified 1,336 (3.0%) patients with International Classification of Diseases, Ninth Revision, Clinical Modification code-based dementia diagnosis during the prelude (predialysis) period. We examined the association of prelude dementia with all-cause mortality within the first 6 months following transition to dialysis, using a propensity-matched cohort and Cox proportional hazards models. Results: In the entire cohort, the overall mean ± standard deviation age at baseline was 72 ± 11 years, 95% were male, 23% were African-American, and 66% were diabetic. There were 8,080 (18.5%) deaths (mortality rate, 412; 95% confidence interval [CI], 403-421/1,000 patient-years) in the dementia-negative group, and 396 (29.6%) deaths (mortality rate, 708; 95% CI, 642-782/1,000 patient-years) in the dementia-positive group in the entire cohort in the first 6 months after dialysis initiation. Presence of dementia was associated with higher risk of all-cause mortality (adjusted hazard ratio, 1.25; 95% CI, 1.12-1.38) compared to dementia-free patients in the first 6 months after dialysis initiation. Conclusion: Pre-ESRD dementia is associated with increased risk of early post-ESRD mortality in veterans transitioning to dialysis.

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Section: Discussionmentioning

confidence: 99%

Pre-ESRD Dementia and Post-ESRD Mortality in a Large Cohort of Incident Dialysis Patients

Molnár

Sumida

Gaipov³

et al. 2017

Dement Geriatr Cogn Disord

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“…Currently, most previous studies on dementia literacy have been conducted in developed countries, such as Australia, 3 the United States, 6 and Japan. 10 Thus, a knowledge gap exists in the dementia literacy of citizens in LMICs. Understanding dementia literacy in the Western Pacific Region is the essential first step in designing an effective public health approach in the region.…”

Section: Introductionmentioning

confidence: 99%

Dementia literacy in Western Pacific countries: A mixed methods study

Leung

et al. 2019

Int J Geriat Psychiatry

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Objectives To examine levels of knowledge about dementia and attitudes towards dementia in low‐ and middle‐income countries (LMICs), identify sources to turn to for help, and explore the relationship between knowledge and attitudes. Methods This mixed methods study with both quantitative (a cross‐sectional survey) and qualitative (focus group interviews) components was conducted in Cambodia, the Philippines, and Fiji in 2017‐18. A survey was completed by the citizens of the three countries, and two focus group interviews were conducted in each country to generate a context‐specific understanding of dementia literacy within the local LMIC setting. The quantitative component utilized the Alzheimer's Disease Knowledge Scale and the Dementia Attitude Scale, while knowledge, attitudes, and views on seeking help for dementia was discussed in the focus group interviews (qualitative component). Results A total of 476 participants completed the survey. Another 54 participants (39 females and 15 males) were invited to join six focus group interviews to express their views on dementia. Positive attitudes were noted despite the level of dementia knowledge was low. Families and religious figures were viewed as the sources for help. Controlling for demographics, country‐specific predictors of positive attitudes towards dementia were found. Conclusions The involvement of family members and religious leaders in dementia education could enhance the recognition of dementia. Specific kinds of dementia knowledge should be targeted to educate the public in different countries.

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“…Several other characteristics of Japanese culture could also interfere with making visits to a memory clinic. Around half of respondents in previous research indicated that they would be ashamed of having a family member with dementia . In efforts to encourage help‐seeking behaviour, we developed the JOSS as a brief screening tool that used familiar folktales to detect cognitive disease, making the test more enjoyable, like a game, and thus less threatening.…”

Section: Discussionmentioning

confidence: 99%

“…Around half of respondents in previous research indicated that they would be ashamed of having a family member with dementia. 18 In efforts to encourage help-seeking behaviour, we developed the JOSS as a brief screening tool that used familiar folktales to detect cognitive disease, making the test more enjoyable, like a game, and thus less threatening. We believe that the ease with which potential patients with cognitive disease accepted the JOSS's format and content makes this scale a useful cognitive screening examination that could help make the referral step easier and a visit to a memory clinic less threatening.…”

Section: Discussionmentioning

confidence: 99%

Japanese Old Stories Cognitive Scale: a screening test to detect cognitive disease and prompt visiting a memory clinic

Honjo¹,

Takechi

2019

Psychogeriatrics

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Background Early detection and diagnosis is critical in enhancing treatment outcomes for those with cognitive disease. However, most Japanese patients are averse to visiting mental health clinics or taking cognitive screening examinations. A new simple screening test is needed that is acceptable to patients and encourages them to visit a memory clinic if indicated. Methods We developed a brief screening examination, consisting of four common Japanese old stories, for detection of cognitive disease. A total of 311 patients at three outpatient memory clinics completed the screening test, responding to a 10‐question, fill‐in‐the‐blanks assessment. Questions were read aloud to patients with visual impairment, and we transcribed the spoken responses of patients who were physically incapable of writing. The Hasegawa Dementia Scale‐Revised (HDS‐R) and Mini‐Mental State Examination (MMSE) were administered at the same time. Results Using the developed Japanese Old Stories Cognitive Scale (JOSS), we found significant differences between dementia and control or mild cognitive impairment (MCI) groups. The JOSS was less affected by education level than the HDS‐R or MMSE, possibly because Japanese old stories are usually learned from family members during preschool years. The JOSS may be able to detect remote memory disturbance in addition to other cognitive dysfunctions. Conclusions Most patients with AD, even in advanced stages, are averse to visiting a memory clinic because it can be difficult to accept any resulting diagnosis of cognitive disease. JOSS is a quick and simple screening tool to gather evidence of cognitive dysfunction and prompt a referral to a memory clinic. Patients with cognitive disease found the JOSS acceptable, and its high specificity could be useful in encouraging patients to visit already‐crowded memory clinics for formal diagnosis and intervention.

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Public attitudes towards people living with dementia: A cross-sectional study in urban Japan (innovative practice)

Cited by 29 publications

References 12 publications

Pre-ESRD Dementia and Post-ESRD Mortality in a Large Cohort of Incident Dialysis Patients

Pre-ESRD Dementia and Post-ESRD Mortality in a Large Cohort of Incident Dialysis Patients

Dementia literacy in Western Pacific countries: A mixed methods study

Japanese Old Stories Cognitive Scale: a screening test to detect cognitive disease and prompt visiting a memory clinic

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