Public Awareness, Knowledge of Availability, and Readiness for Cancer Palliative Care Services: A Population-Based Survey across Four Regions in Japan

Hirai, Kei; Kudo, Tadashi; Akiyama, Miki; Matoba, Motohiro; Shiozaki, Mariko; Yamaki, Teruko; Yamagishi, Akemi; Miyashita, Mitsunori; Morita, Tatsuya; Eguchi, Katsumi

doi:10.1089/jpm.2010.0529

Cited by 50 publications

(52 citation statements)

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“…Consequently, rather than providing an estimation of the extent of public knowledge around palliative care, the value of the findings is in highlighting the sources of that knowledge and those strategies which the participants perceive to be valuable in raising awareness around these issues. These findings contribute to the existing international evidence whilst has demonstrated that public knowledge of palliative care in many societies is limited and that the public is still death-denying [4][5][6][7][8][9][10][11] . The study has found this to be the case in participants with knowledge of healthcare systems and drawn from a membership scheme and it is therefore likely that outside of this group public knowledge of palliative care is much reduced.…”

Section: Discussionmentioning

confidence: 68%

“…2 Public health palliative care or health promoting palliative care is concerned with building public policies that support dying, death, loss and grief, create supportive environments, strengthen community action and allow people to develop personal skills in these area 3 .There are, however, numerous challenges to developing a public health approach, one being the low level of public awareness of palliative care, highlighted by several international surveys. [4][5][6][7] Research continues to suggest that the public is 'death denying' and that conversation about death and dying remains largely 'taboo'. [8][9][10][11][12] Public confusion about end of life terminology is unsurprising when set against the background of debate amongst researchers, practitioners and policy makers about the scope, definitions, goals and approaches of palliative care [13][14] and the changing historical definitions of the term.…”

Section: Introductionmentioning

confidence: 99%

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Exploring public awareness and perceptions of palliative care: A qualitative study

et al. 2013

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Background: Research suggests that the public appear to be confused about the meaning of palliative care. Given the ageing population and associated increase in the number of patients requiring palliative care, it is vital to explore the public’s understanding of this concept. Health-promoting palliative care seeks to translate hospice and palliative care ideals into broader public health practice. Aim: To explore public perceptions of palliative care and identify strategies to raise awareness. Design: An exploratory qualitative approach. Participants: Semi-structured telephone interviews were undertaken (N = 50) with members of the public who volunteered to participate in the study. The interviews focused on knowledge and perceptions of palliative care, expectations of palliative care services and the identification of strategies to raise public awareness of palliative care. The interviews were audio recorded and content analysed. Results: Most participants had a general knowledge of palliative care, largely influenced by their own personal experience. They identified that palliative care was about caring for people who were dying and maintaining comfort in the last days of life. Participant’s expectations of services included the following: holistic support, symptom management, good communication and practical support to enable choice and carer support. Key aspects identified for promoting palliative care were the development of understanding and use of the term itself and targeted educational strategies. Conclusion: Experience of palliative care generates understanding in the general public who also have ideas for increasing knowledge and awareness. The findings can inform policymakers about strategies to raise public awareness of palliative care.

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Section: Discussionmentioning

confidence: 68%

Section: Introductionmentioning

confidence: 99%

Exploring public awareness and perceptions of palliative care: A qualitative study

et al. 2013

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“…However, other quasi‐experimental studies have found that better hospice knowledge may not increase hospice decisions (Selsky et al, ; Sung, Wang, Fan, & Lin, ). Therefore, clarifying the associated factors and constructs is warranted to promote the utilisation of hospices (Hirai et al, ; McIlfatrick et al, ).…”

Section: Introductionmentioning

confidence: 99%

The impact of health literacy on knowledge, Attitude and decision towards hospice care among community-dwelling seniors

Huang

Kuo

et al. 2019

Health Soc Care Community

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The aim of this study was to investigate the relationships between health literacy and hospice knowledge, attitude and decision in community‐dwelling elderly participants. This cross‐sectional study enrolled 990 community‐dwelling elderly participants in three residential areas, with a mean age of 71.53 ± 7.22 years. Health literacy was assessed using the Mandarin version of the European Health Literacy Survey Questionnaire. Knowledge, attitude and decision towards hospice care were assessed using an interviewer‐administered questionnaire. Partial least squares were used for data analysis. More than half of the respondents had sufficient knowledge of hospice care (60.7%) and a positive attitude (77.3%) and positive decision (85%) towards hospice care. In the structural equation model, general health literacy positively predicted knowledge (β = 0.73, p <0.001), attitude (β = 0.06, p = 0.038) and decision (β = 0.14, p < 0.001) towards hospice care. General health literacy had a greater overall effect on hospice decision (β = 0.57) than hospice knowledge (β = 0.54). In addition, disease prevention health literacy also demonstrated a higher level of influence on hospice decision (β = 0.59) than hospice knowledge (β = 0.53). Health literacy was associated with hospice knowledge, attitude and decision. Incorporating health literacy interventions into hospice promotion strategies is recommended.

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“…41 This was preceded by a survey showing very low levels of awareness. 42 ''Before and after'' surveys over three years showed positive effects on perceptions of the public and bereaved relatives about palliative care over time. Impact on patients' perceptions was less clear.…”

Section: Palliative Care Campaigns S-31mentioning

confidence: 99%

The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care

Seymour

2018

Journal of Palliative Medicine

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Objective: The right to health includes a right of access to good quality palliative care, but inequalities persist. Raising awareness is a key plank of the public health approach to palliative care, but involves consideration of subjects most of us prefer not to address. This review addresses the question: ''do public health awareness campaigns effectively improve the awareness and quality of palliative care''? Background: The evidence shows that public awareness campaigns can improve awareness of palliative care and probably improve quality of care, but there is a lack of evidence about the latter. Methods: Rapid review and synthesis. Results: A comprehensive public awareness campaign about palliative care (including advance care planning and end-of-life decision making) should be based on clear and shared terminology, use well piloted materials, and the full range of mass media to suit different ages, cultures, and religious/spiritual perspectives. Arts and humanities have a role to play in allowing individuals and communities to express experiences of illness, death, and grief and encourage conversation and thoughtful reflection. There is evidence about key factors for success: targeting, networking, and use of specific, measurable, achievable, realistic time-bound objectives; continuous evaluation; and complementarity to national and international policy. Discussion: Campaigns should be located within the framework of public health promotion and the synergy between short national mass media campaigns and longer term local community action initiatives carefully considered. National and local projects to raise awareness should identify and address any barriers at the level of individuals, communities, and systems of care, for example, literacy skills and unequal access to resources.

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Public Awareness, Knowledge of Availability, and Readiness for Cancer Palliative Care Services: A Population-Based Survey across Four Regions in Japan

Abstract: Findings show that the public awareness of palliative care services and their availability is insufficient, and cancer-related experiences affect awareness of cancer palliative care but not directly related to typical images for palliative care such as care for patients close to death.

Cited by 50 publications

References 6 publications

Exploring public awareness and perceptions of palliative care: A qualitative study

Exploring public awareness and perceptions of palliative care: A qualitative study

The impact of health literacy on knowledge, Attitude and decision towards hospice care among community-dwelling seniors

The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care

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