Public awareness of heart failure in Europe: first results from SHAPE

Remme, Willem J.; McMurray, John J.V.; Rauch, Bernhard; Zannad, Faı̈ez; Keukelaar, Karen; Cohen‐Solal, Alain; López‐Sendón, José; Hobbs, FD Richard; Grobbee, Diederick E.; Boccanelli, Alessandro; Cline, Charles; Macarie, Cezar; Dietz, Rainer; Rużyłło, Witold

doi:10.1093/eurheartj/ehi447

Cited by 118 publications

(123 citation statements)

References 22 publications

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“…These results were comparable to earlier studies,2, 4 although the percentage of respondents, who knew all three main symptoms of HF, has strongly increased from only 3% reported for the 912 Germans from the population‐based survey study SHAPE conducted in 20022 to 39% in our study. This huge increase in percentage may also partially stem from a selection bias, as people in the present study can be suspected to be interested in health issues and were picked on a health information event at a university.…”

Section: Discussionsupporting

confidence: 92%

“…Such variables could be unevenly distributed in the populations at the different time points and therefore have a stronger or slighter impact in different years' populations, biasing the results. Indeed, although similar to the German population regarding the distribution of age and gender, a greater proportion of our sample had higher education, worked in a medical profession, and were more frequently affected by HF 2, 19, 20, 21, 22, 23…”

Section: Discussionmentioning

confidence: 52%

“…Thus, our respondents demonstrated a similarly poor understanding of HF severity and prognosis as the SHAPE respondents, where only 29% thought it was a severe condition and two‐thirds thought the prognosis was better than cancer (patients with HF live longer). Although one in five individuals will develop HF over the course of his or her lifetime, the SHAPE respondents underestimated its prevalence with only half of them knowing that HF was more common than cancer 2, 13…”

Section: Discussionmentioning

confidence: 99%

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Heart failure awareness survey in Germany: general knowledge on heart failure remains poor

et al. 2017

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AimsPrevious studies demonstrated poor public awareness of heart failure (HF) compared with myocardial infarction and stroke. With respect to several activities to improve HF awareness in recent years, we present data on the development of HF awareness and information sources in Germany over 8 years.Methods and resultsIn 2007, 2012, and 2015, respectively, 2531, 359, and 171 respondents answered questions about causes, presentation, prognosis, and treatment of HF from a survey developed by the German Competence Network HF. Relationships between respondents' sociodemographic data and their HF knowledge were explored and changes in knowledge and use of information sources analysed. Sixty‐eight per cent of respondents knew HF as ‘weakness of the heart’. Seventy‐nine per cent knew shortness of breath, 74% reduced exercise tolerance, and 52% knew leg edema as symptoms. Only 40% knew all three symptoms. Although up to 34% of the respondents were directly or indirectly affected by HF, they demonstrated poor knowledge about severity and prognosis. Between 2007 and 2015, overall HF awareness has not changed; awareness about treatment has dropped significantly. Younger respondents used all media, especially internet, for information about health; older respondents preferred printed/verbal media and their physician.ConclusionsWe found rather insufficient public knowledge on HF etiology and symptoms but especially about management, severity, and prognosis, which is essential for good self‐care and adherence of patients. Heart failure awareness has not improved even though awareness campaigns were held over the years. It seems that especially older patients should be much more approached by their family physicians.

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Section: Discussionsupporting

confidence: 92%

Section: Discussionmentioning

confidence: 52%

Section: Discussionmentioning

confidence: 99%

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Heart failure awareness survey in Germany: general knowledge on heart failure remains poor

et al. 2017

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“…A survey in nine European countries (SHAPE, 2005) exploring general awareness about heart failure has shown that out of almost 8000 inhabitants only 3% could identify heart failure from a description of the symptoms and signs; although, 31% of subjects could identify angina and 51% stroke [18].…”

Section: Epidemiologic Considerationsmentioning

confidence: 99%

Management of acute heart failure-Is there a paradigm shift around the corner?

Pater

Severin²

2013

WJCD

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It has become increasingly apparent that the looming epidemic of heart failure calls for systematic treatment approaches tailored to the needs of individual patient phenotypes. Although chronic heart failure (CHF) therapies are continuously evolving based on the increasing understanding of the involved etiology, acute heart failure (AHF) therapies are still based on hemodynamic improvements and symptom alleviation. Guidelines on AHF management have highlighted that the currently administered AHF therapies lack evidence and have raised concerns on the safety and efficacy of some of the hitherto accepted treatment modalities. Additionally, the high mortality and morbidity rates associated with the current AHF therapies also add to the imperative need to re-visit AHF management. The last decade has witnessed a paradigm shift in the way we define and diagnose AHF. Apart from it being recognized as a distinct clinical entity, research has also led to new data on the pathophysiological changes associated with AHF. These developments along with the limited short-and long-term effects of currently used therapies may herald a paradigm shift in the way we plan and deliver management strategies to treat the pathological progression of heart failure.

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“…Only 3% of respondents correctly identified heart failure from a description of typical signs and symptoms ("breathlessness, tiredness, or swollen ankles") in the Study of Heart Failure Awareness and Perception in Europe (SHAPE) survey of almost 8000 people in nine European countries. 81 By contrast, 28% identified heart attack/ angina and 48% identified stroke or its equivalent from a description. Moreover, only 29% of respondents considered heart failure "a severe complaint" based on the description of signs and symptoms, and 34% perceived it to be "a normal consequence of getting older".…”

mentioning

confidence: 98%

Variability in use of IV nitrates and diuretics in acute HF: a ‘virtual patient’ clinical decision-making study

2018

Br J Cardiol

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Public awareness of heart failure in Europe: first results from SHAPE

Abstract: In Europe, community awareness of HF is low. Therefore, the general public is unlikely to demand appropriate measures by healthcare authorities and providers. A better understanding of HF could improve its prevention and management. Strategies to educate the public about HF are needed.

Cited by 118 publications

References 22 publications

Heart failure awareness survey in Germany: general knowledge on heart failure remains poor

Heart failure awareness survey in Germany: general knowledge on heart failure remains poor

Management of acute heart failure-Is there a paradigm shift around the corner?

Variability in use of IV nitrates and diuretics in acute HF: a ‘virtual patient’ clinical decision-making study

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