PUBLIC DELIBERATION, DISCURSIVE PARTICIPATION, AND CITIZEN ENGAGEMENT: A Review of the Empirical Literature

Carpini, Michael X. Delli; Cook, Fay Lomax; Jacobs, Lawrence R.

doi:10.1146/annurev.polisci.7.121003.091630

Cited by 1,070 publications

(769 citation statements)

References 118 publications

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“…For instance, Delli Carpini et al (2004) concluded in their review that the effect of deliberation and other forms of discursive politics is highly context-dependent; it varies with the subject under discussion, who participates and who the authoritative decision-makers are. Other reviews point to the appropriateness of the public participation technique to the context.…”

Section: Public Participation In Health Policy and Planningmentioning

confidence: 99%

Understanding the factors that make public participation effective in health policy and planning: a realist synthesis

Pagatpatan

Ward

2017

Aust. J. Prim. Health

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Abstract. Although researchers argue for the importance of involving the public in developing health policy, there has been little focus on central research questions -such as what techniques of public participation work, in what circumstances, and why. This paper presents a realist synthesis which identifies and explains the underlying mechanisms and specific contextual factors that lead to effective public participation in health policy and planning. Peer-reviewed, English language literature was searched, which resulted in 77 articles for review and synthesis. This synthesis uncovered the underlying mechanism of 'political commitment' that generates public participation effectiveness. The other three possible underlying mechanisms, namely: 'partnership synergy', 'inclusiveness' and 'deliberativeness', were found to potentially provide further explanation on public participation effectiveness for health policy and planning. The findings of this review provide evidence that can be useful to health practitioners and decision-makers to actively involve the public when drafting public health policies and programs and, more importantly, guide them in deciding which strategies to best employ for which contexts.

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Section: Public Participation In Health Policy and Planningmentioning

confidence: 99%

Understanding the factors that make public participation effective in health policy and planning: a realist synthesis

Pagatpatan

Ward

2017

Aust. J. Prim. Health

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“…Although their concept of participation differs, both approaches have emerged to uphold the argument that new practices involving citizen engagement should complement representative democracy (Santos, 2002;Delli Carpini, 2004).…”

Section: Civil Society's Involvement In Healthcare Systems: Potentialmentioning

confidence: 99%

Citizen participation and discontent in three Southern European health systems

Serapioni

Matos

2014

Social Science & Medicine

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a b s t r a c tParticipation has featured in political agendas in recent decades and the domain of healthcare has not been indifferent to its appeal. Although emerging later than in other European regions, the involvement of civil society in healthcare decision-making procedures has proved one of the biggest challenges facing Southern European health systems. The health systems of the countries considered in this analysis e Italy, Portugal and Spain e underwent reforms that brought citizen participation to the forefront of the health system. Through national laws or health plans, each of these countries has recognised the need to promote participation in order to 'give a voice' to citizens in the health sector. Accordingly, a range of significant activities have been implemented in the region, although they have been developed unequally within national territories, at different paces and involving the mobilisation of different actors. This article focuses on the most relevant experiences of citizen participation designed and implemented in the three selected countries, describing their key features and potential, as well as the main critical issues and contradictions that have emerged over time. Particular emphasis is given to the impact of the current financial crisis on Southern European national health systems, especially in terms of participatory methods, the way in which citizen participation is progressing and civil society's reaction to these important changes.

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“…While there is an ongoing debate within political science about the value of public deliberation as an input to policy development (e.g. Carpini et al, 2004), in the case of IBIDs, where patients and families are both members of the public and the most intimate stakeholders of the technology, their input into the process is critical.…”

Section: Resultsmentioning

confidence: 99%

Deep brain stimulation, personal identity and policy

Mathews

2011

International Review of Psychiatry

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A range of implantable brain-interfacing devices (IBIDs) is currently in use and development for the treatment of movement disorders and disorders of mood, behaviour and thought. These include cochlear implants, deep brain stimulation (DBS), prosthetic limbs, and optogenetic interventions (the combined use of genetics and optics to control individual cells). While implantable non-brain devices, such as implantable cardioverter defi brillators, began receiving US Food and Drug Administration approval in 1980, the development of IBIDs is recent, with the approval of DBS for Parkinson ' s disease in 1997. The expansion in use of IBIDs from neurological to psychiatric conditions is even more recent, with current trials underway for a range of disorders including depression, OCD, addiction, Alzheimer ' s disease and Tourette ' s syndrome. Emerging applications of existing IBIDs and new devices in development differ from currently approved devices and applications in two potentially crucial ways: 1) They target conditions traditionally seen as psychiatric; and/or 2) They target and modify functions or traits tied closely to agency, personal identity and personhood. As such, understanding patients ' and caregivers ' conceptions of personal identity in the context of disease and treatment is important not only for the informed consent process, but also for questions of public policy.

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PUBLIC DELIBERATION, DISCURSIVE PARTICIPATION, AND CITIZEN ENGAGEMENT: A Review of the Empirical Literature

Cited by 1,070 publications

References 118 publications

Understanding the factors that make public participation effective in health policy and planning: a realist synthesis

Understanding the factors that make public participation effective in health policy and planning: a realist synthesis

Citizen participation and discontent in three Southern European health systems

Deep brain stimulation, personal identity and policy

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