Public, patient and carers’ views on palliative and end‐of‐life care in India

Venkatasalu, Munikumar Ramasamy; Jagadeesh, Nalini Sirala; Elavally, Sujitha; Pappas, Yannis; Mhlanga, Fortune; Varatharajan, R.

doi:10.1111/inr.12403

Cited by 12 publications

(11 citation statements)

References 29 publications

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“…A review published in 2019 highlighted the lack of basic living amenities for terminally ill patients the inability of Indians to cope with the financial burdens of terminal illness and death. [ 24 ] They also found that most people prefer to die at home surrounded by family and patients tend to hide their emotions and suffering from their family and caregivers to not add to their burden of care. In a 2022 study done among cancer patients in six developing countries, including India, 35% of patients reported experiencing at least one facet of cancer-related stigma often, while 60% reported experiencing it occasionally; those who perceived stigma were less likely to opt for life-extending treatments.…”

Section: Issues With Palliative Care In Indiamentioning

confidence: 99%

Life before Death in India: A Narrative Review

Mir¹,

Misra

Sanghavi

2023

IJPC

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Palliative care is an ever-increasing need in India, with its large population and rising burden of chronic illness. India ranks 67th out of 80 countries in the quality of death index, which measures the availability and quality of palliative care. Community-led projects in Kerala have proven successful in improving palliative care access with modest resources and volunteer involvement. In India, the number of hospice facilities is increasing; however, <1% of the Indian population has access to palliative care. Financial and human resources limitations in the health-care system, poverty and high health-care expenditure, the lack of awareness among the public about end-of-life care, hesitance to seek care due to social stigma, strict laws regarding opiates that hinder adequate pain relief and the apparent conflict between traditional social values and western values regarding death are the major obstacles to improving palliative care. Significant efforts focused on public awareness of end-of-life care and locally-tailored programmes with family and community involvement are necessary to address this issue and integrate palliative care into the primary care system. Furthermore, we discuss the effects of the COVID-19 pandemic that has been managed effectively by palliative care involvement.

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Section: Issues With Palliative Care In Indiamentioning

confidence: 99%

Life before Death in India: A Narrative Review

Mir¹,

Misra

Sanghavi

2023

IJPC

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“…No caso de pacientes terminais a assistência de enfermagem deve explorar as necessidades físicas, espirituais, psicossociais do indivíduo, estando atenta a preferência do local da morte, a situação domiciliar do paciente e as necessidades informais dos familiares, como a utilização de mantras, água benta, amuletos, fotos de seu Deus; geralmente utilizados como forma de receber força em períodos de sofrimento (Venkatasalu et al, 2018).…”

Section: Condutas De Enfermagem Correlacionadas Com O Tratamento E/ou Terapia Cultural Religiosaunclassified

Benefícios das práticas religiosas na assistência de enfermagem: Uma revisão integrativa

Araujo

Silva

Vilanova

et al. 2021

RSD

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Desde os primórdios da ciência do cuidado ao ser humano, as práticas religiosas e a espiritualidade enfrentam um olhar rigoroso dos cientistas e pesquisadores. A assistência de enfermagem deve prestar cuidados e medidas de segurança ao indivíduo sob um modelo de unidade biopsicossocial, em todos os aspectos físicos, sociais, econômicos, espirituais e culturais. Nesse caminho, este artigo teve como objetivo geral analisar as produções científicas acerca dos benefícios das práticas religiosas na prestação de cuidados de enfermagem, e especificamente descrever a importância das práticas religiosas no estado de saúde, destacar as principais limitações e os desafios nos cuidados de enfermagem com as práticas de cura cultural-religiosa e relacionar as condutas de enfermagem com o tratamento e/ou terapia cultural/religiosa. Trata-se de uma revisão integrativa da literatura, na qual se formulou a questão: "Quais os benefícios da associação entre as práticas religiosas e assistência de enfermagem na prestação de cuidados?". Com uso de descritores e palavras-chaves, foram consultadas as bases de dados Bireme, CINAHL e PubMed. Utilizou-se os estudos disponíveis em totalidade, publicados nos anos de 2015 até 2020, nos idiomas Inglês, Português e Espanhol. Os artigos apresentaram que religiosidade e espiritualidade são dimensões fundamentais nos processos de cura, reabilitacionais e de superação, e devem ser implementadas na ciência do cuidado pelos profissionais de saúde. Concluiu-se que é dever da enfermagem e de outras áreas da saúde, atender o indivíduo com assistência humanizada, respeitando suas necessidades espiritual-religiosas no tratamento e/ou terapia.

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“…Data reduction techniques utilise the process of coding the data in order to 'simplify, abstract, focus and organise it into manageable features' (Ramasamy Venkatasalu et al, 2017). The study adopted subgrouping and single page tabulation as valid and reliable coding techniques in order to enhance methodological rigour (Broome, 2000, Brown et al, 2003.…”

Section: Data Reductionmentioning

confidence: 99%

Predictors for nurses and midwives' readiness towards self-directed learning: An integrated review

Chakkaravarthy

Ibrahim

Mahmud

et al. 2018

Nurse Education Today

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The review concludes that qualified nurses and midwives have a unique SDL predictors and process; hence, a personalized SDL programme should be prescribed based on personality traits so as to achieve better SDL outcomes. Future research should address the facilitating factors for SDLR, barriers to SDLR and strategies to improve SDLR among nurses and more importantly midwives, as limited evidence is available with respect to the latter.

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Public, patient and carers’ views on palliative and end‐of‐life care in India

Cited by 12 publications

References 29 publications

Life before Death in India: A Narrative Review

Life before Death in India: A Narrative Review

Benefícios das práticas religiosas na assistência de enfermagem: Uma revisão integrativa

Predictors for nurses and midwives' readiness towards self-directed learning: An integrated review

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