Public perceptions of comparative effectiveness research and use of evidence in healthcare decision-making

Abstract

Providers are an important source for disseminating and communicating CER/PCOR evidence to active and passive consumers.

Patient, caregiver and clinician use of comparative effectiveness research findings in care decisions: results from a national study

“…The data from this study suggest that there are several critical gaps between the growing supply of CER and its current use in clinical settings. First, familiarity with CER across patients, caregivers and clinicians remains low, consistent with earlier study findings [7][8][9]. Once the concept is defined, CER is viewed favorably among these samples.…”

“…Participants were from the National Business Group on Health, the US Department of Veteran Affairs/University of California at San Francisco, and the National Pharmaceutical Council. Relevant survey items from related studies were reviewed [7,[12][13][14][15] as were items from prior PCORI data collection efforts [8].…”

“…Several studies have measured patient and clinician familiarity with or attitudes about CER, consistently finding limited awareness of CER, but generally favorable attitudes toward the concept [7][8][9]. However, there is little understanding of how patients, caregivers and clinicians access and use CER findings to inform care decisions.…”

Patient, caregiver and clinician views on engagement in comparative effectiveness research

“…Other survey domains (findings reported separately) assessed level of awareness and perceived value of CER and patient-centered CER, as well as experiences and attitudes regarding the availability and use of information when deciding about a test or treatment. Relevant survey items from related studies were reviewed, as were items from prior PCORI data collection efforts [15,[18][19][20][21][22]. Items were created to address domains for which no existing item could be found.…”

Health researcher views on comparative effectiveness research and research engagement

“…Despite increased interest in PC-CER, little is known about health researchers' experiences, attitudes and needs related to conducting CER and engaging patients and caregivers as research partners. Surveys assessing stakeholder's attitudes toward CER and research engagement have primarily focused on patients, clinicians, Medicaid directors and other groups of CER stakeholders, rather than researchers [9,14,[20][21][22][23][24]. Qualitative research with a limited number of researchers suggests that health researchers recognize the value of engaging patients, but face challenges in doing so [25,26].…”