Public stigma towards informal caregiving in Germany: a descriptive study

Zwar, Larissa; Angermeyer, Matthias C.; Matschinger, Herbert; Riedel‐Heller, Steffi G.; König, Hans‐Helmut; Hajek, André

doi:10.1080/13607863.2020.1758913

Cited by 7 publications

(6 citation statements)

References 31 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Our results complement the qualitative literature on carer identity which finds lower rates of self-identification for spousal carers [ 32 , 33 ] due to individuals not viewing themselves as a carer or not wishing to declare themselves as a carer even if they do [ 8 – 10 ]. We highlight the scale of this issue quantitatively, which has key implications as this group may be less likely to seek support or formal assistance.…”

Section: Discussionsupporting

confidence: 78%

See 1 more Smart Citation

A Comparison of Methods for Identifying Informal Carers: Self-Declaration Versus a Time Diary

et al. 2022

View full text Add to dashboard Cite

Objectives Two main methods for identifying whether an individual is an informal carer are self-declaration and the use of a time diary. We analysed the level and predictors of agreement between these two methods among co-residential informal carers of adult recipients. Methods We used the 2014/15 UK Time Use Survey, which is a large-scale household survey for those aged 8 years old and over. It contains an individual questionnaire for self-declaration and a time diary for activity-based identification that records all activity in 10-min slots for two 24-h periods. Our analysis: (i) assesses the degree of overlap across approaches; (ii) explores the differences in characteristics between carers identified via one approach relative to non-carers using a bivariate probit estimator; and (iii) shows what factors are associated with being identified by both approaches using two independent probit estimators. Results Out of 6301 individuals, we identified 545 carers (8.6%) by at least one method and only 104 (19.1% of 545 carers) by both methods. We found similar factors predicted caregiving using either method but the magnitudes of the effects of these factors were larger for self-declared carers. Activity-based carers who provided more activities to a dependent adult and spent more time caregiving were more likely to also self-declare. Conclusions Our results show low levels of agreement between the two main methods used to identify informal carers. Any assessment of current caregiving research or future means to collect caregiving information should pay particular attention to the identification method as it may only relate to certain carer groups.

show abstract

Section: Discussionsupporting

confidence: 78%

“…However, individuals may not wish to declare themselves as a ‘carer’ due to public stigma, may not realise they are a carer or may view themselves under a different role, such as a spouse or son/daughter [ 8 – 10 ]. A further issue is the discrepancy between provider and recipient reports [ 11 , 12 ].…”

Section: Introductionmentioning

confidence: 99%

A Comparison of Methods for Identifying Informal Carers: Self-Declaration Versus a Time Diary

et al. 2022

View full text Add to dashboard Cite

show abstract

“…The results also indicate that family caregivers caring for older adults with high cognitive impairment perceived stress due to the disruptive behaviours of older adults, ultimately leading to negative changes in family relationships (Lim et al, 2016). A recent study by Zwar et al (2021) examined the public stigma of carers providing care to those aged 65 and over in Germany. Drawing from a participant sample of 1038 participants, the authors assessed public stigma towards informal caregiving for individuals aged 65 years and older using three scales.…”

Section: Condition Of the Care Receivermentioning

confidence: 96%

“…He notes that, particularly in the case of older people, dependence is understood as non-contributory and that some forms of dependence are culturally stigmatised. In the case of care for older people, there is clear evidence suggesting that carers, particularly those caring for people living with dementia, experience discrimination and stigma (Ayalon & Tesch-Römer, 2017;Lim, Ahn, & Ahn, 2016;Zwar et al, 2021). These issues are significant to carers of people living with dementia, as they are vulnerable by association to this discrimination.…”

Section: An Alternative Justice Theory Of Care -Care Ethicsmentioning

confidence: 99%

“…The implication of stigma towards carers of older people is understood as vulnerability to social isolation. (Zwar et al, 2021). Davies et al (2019) refer to previous literature that shows that dementia caregivers are at particular risk of disruption of social networks and resultant isolation and loneliness (Davies et al, 2019).…”

Section: Condition Of the Care Receivermentioning

confidence: 99%

See 1 more Smart Citation

An Exploration of the Concept of Well-being In Relation to the Care of Older People

Cheshire-Allen¹

View full text Add to dashboard Cite

This research explores the concept of well-being as it applies to family carers of older people and the experiences of those carers in the light of a reworked version of that concept. The study is situated within a broader context of the ‘care crisis’ consisting of an increase in older age care demands alongside a decrease in the resource or care capacity to support demand, resulting in a so-called ‘care deficit’. Notions of ‘well-being’ have become nested within this crisis narrative. During the past five years, particularly in the UK, references to well-being have been explicitly embedded into social care welfare support programmes, and are used to determine and shape how care support services are delivered to carers and those requiring care. However, as well as being ubiquitous, the term is contentious. Its meaning in the care context has yet to be resolved, and in particular, scant critical attention has been paid to the term’s significance in the context of care for older people. This study responds to this knowledge gap by exploring the meaning and implication of well-being in the context of care of older people. This qualitative research study provides a full analysis of relevant theory, policy and empirical research addressing well-being and family carers. The central research question is: What is well-being in the context of family care of older people, and why does it matter? The research question is explored through an extended critical engagement with relevant well-being and care theoretical foundations (Nussbaum, 2011; Tronto, 2013) and through a policy analysis of the Social Services and Well-being Act (Wales) 2014. A novel theoretical framework founded upon a social justice perspective and drawing upon critical care ethics and the capability approach is developed. Through critical engagement with the latent meaning of well-being, I argue that the mainstream conception in the context of care is narrow and reductive. Based upon and reflecting ideas about older age and care that mute the value of care as an essential component of all human life and, have the potential in practice to limit and damage family carers’ lives and life chances. In the latter part of the thesis, this framework is applied to primary data gathered through thirty qualitative semi-structured interviews with family carers of older people in Wales. The analysis explores how ‘well-being’ as an enduring ideal defining what it means to live a ‘good life’ interacts with how care in older age is understood. The analysis identifies the key themes of well-being as a multidimensional and relational idea, freedom, choice, vulnerability and dependency. From these findings, I suggest that there is value in theorising an imperfect conception of well-being that acknowledges decline and dependence, particularly in older age care. Furthermore, I suggest a reformulation of well-being in the context of older age care, based upon acknowledging relationality, inequalities and socio-political and cultural contexts. Such a conception, I argue, has the potential to provide a firmer basis on which to articulate and tackle well-being within social care policy and to combat harmful assumptions about the place of care of older people within those systems and the value of caring relationships themselves.

show abstract

The importance of familiarity with caregiving for public caregiver stigma: Evidence from a cross-sectional study in Germany

Zwar

Angermeyer

Matschinger

et al. 2021

Archives of Gerontology and Geriatrics

View full text Add to dashboard Cite

Public stigma towards informal caregiving in Germany: a descriptive study

Cited by 7 publications

References 31 publications

A Comparison of Methods for Identifying Informal Carers: Self-Declaration Versus a Time Diary

A Comparison of Methods for Identifying Informal Carers: Self-Declaration Versus a Time Diary

An Exploration of the Concept of Well-being In Relation to the Care of Older People

The importance of familiarity with caregiving for public caregiver stigma: Evidence from a cross-sectional study in Germany

Contact Info

Product

Resources

About