Publicly Available, Interactive Web-Based Tools to Support Advance Care Planning: Systematic Review

Dupont, Charlèss; Smets, Tinne; Monnet, Fanny; Pivodic, Lara; Vleminck, Aline De; Audenhove, Chantal Van; Block, Lieve Van den

doi:10.2196/33320

Cited by 19 publications

(14 citation statements)

References 46 publications

(58 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…It is necessary to promote efforts while sharing pioneering trials among municipalities, such as creating older people friend-web-based methods for holding events. Additionally, various publicly available interactive web-based tools have recently been developed [ 23 ]. In local governments’ future policies, the utilization of information technology will greatly help promote ACP.…”

Section: Discussionmentioning

confidence: 99%

Japanese Local Governments’ Dissemination Activities for Advance Care Planning: A Descriptive Analysis of a Nationwide Survey during the COVID-19 Pandemic

Morioka

Kashiwagi

Machida

et al. 2023

IJERPH

View full text Add to dashboard Cite

This study aims to compare the awareness-raising activities between municipalities with and without focused anti-infection measures during the 2019 coronavirus disease (COVID-19) pandemic. Descriptive analysis was conducted using a nationwide self-administered questionnaire survey on municipalities’ activities for residents and for healthcare providers and care workers (HCPs) in October 2022 in Japan. This study included 433 municipalities that had conducted awareness-raising activities before 2019 Fiscal Year. Workshops for residents were conducted in 85.2% of the municipalities, and they were more likely to be conducted in areas with focused anti-infection measures than those without measures (86.8% vs. 75.4%). Additionally, 85.9% of the municipalities were impacted by the pandemic; 50.1% canceled workshops, while 26.0% switched to a web-based style. Activities for HCPs were conducted in 55.2–63.7% of the municipalities, and they were more likely to be conducted in areas with focused anti-infection measures. A total of 50.6–62.1% of the municipalities changed their workshops for HCPs to a web-based style. Comparisons between areas with and without focused anti-infection measures indicated that the percentages of those impacted for all activities were not significantly different. In conclusion, awareness-raising activities in municipalities were conducted with new methods during the COVID-19 pandemic. Using information technology is essential to further promote such activities for residents.

show abstract

Section: Discussionmentioning

confidence: 99%

Japanese Local Governments’ Dissemination Activities for Advance Care Planning: A Descriptive Analysis of a Nationwide Survey during the COVID-19 Pandemic

Morioka

Kashiwagi

Machida

et al. 2023

IJERPH

View full text Add to dashboard Cite

show abstract

“… Overview of the development process and usability testing of the ACP website [ 28 , 29 ]. ACP: advance care planning.…”

Section: Methodsmentioning

confidence: 99%

“…An overview of the activities conducted in this phase and their main output is presented in Figure 2. Results from the research activities in the content specification phase are reported separately [27][28][29]. In this content specification phase, we summarize the evidence from these activities.…”

Section: Content Specification Phase Of the Acp Websitementioning

confidence: 99%

Advance Care Planning Website for People With Dementia and Their Family Caregivers: Protocol for a Development and Usability Study

Monnet¹,

Dupont²,

Smets³

et al. 2023

JMIR Res Protoc

Self Cite

View full text Add to dashboard Cite

Background Web-based tools for people with dementia and their family caregivers have considerably increased over the years and offer promising solutions to several unmet needs such as supporting self-care in daily life, facilitating treatment delivery, or ensuring their ability to communicate. The use of web-based tools in the field of advance care planning (ACP) for people with dementia and their family caregivers has yet to be explored and requires careful consideration, given the sensitive topic and the specific needs of people with dementia and their families. Objective This paper reports the protocol for a study aiming to develop and simultaneously test the usability of an ACP website designed for, and with, people with dementia and their families. Methods The development of the website is based on a process map for the development of web-based decision support interventions and on the Medical Research Council framework for complex intervention development and evaluation. Additionally, we apply a user-centered approach in combination with patient and public involvement (PPI) throughout the development process. We describe our iterative development approach to the website. Participants and a PPI group give feedback on 4 prototypes of the ACP website. For each iteration, we aim to include 12 participants (3 people with dementia, 3 family caregivers, and 3 dyads) in usability testing. In the first 3 iterations, usability testing includes (1) a think-aloud exercise, (2) researcher observations, and (3) the System Usability Scale questionnaire. The last iteration of usability testing is composed of a semistructured interview assessing the layout, content, face validity, and readability of the website. Qualitative data from the think-aloud exercises and interviews are analyzed using thematic analysis. Mean scores are calculated for the System Usability Scale questionnaire. Results This study received approval from the Ethical Review Board of Brussels University Hospital of the Vrije Universiteit Brussel. Recruitment began in October 2021. The target date for paper submission of the results of the development and usability testing will be in 2023. Conclusions The methods in this protocol describe a feasible and inclusive approach to the development of an ACP website together with people with dementia, their family caregivers, and other stakeholders. We provide a clear overview of how to combine PPI input and user-centered development methods, leading to a transparent and reliable development process. This protocol might stimulate the active participation of people with dementia, their caregivers, and regional stakeholders in future studies on web-based technologies. The results of this study will be used to refine the design and create a relevant and user-friendly ACP website that is ready to be tested in a larger evaluation study. International Registered Report Identifier (IRRID) DERR1-10.2196/46935

show abstract

“…Digital health tools could be a potential solution to improve equitable access to ACP for patients and to engage loved ones and health care providers in the process [ 35 36 ]. Scoping reviews have concluded that currently available web-based ACP programs are feasible and generally well-received by users [ 37 38 ], but the quality of the content greatly varies [ 39 ].…”

Section: Introductionmentioning

confidence: 99%

A Personalized and Interactive Web-Based Advance Care Planning Intervention for Older Adults (Koda Health): Pilot Feasibility Study

Roberts,

Cherry,

Mohan

et al. 2024

JMIR Aging

View full text Add to dashboard Cite

Background Advance care planning (ACP) is a process that involves patients expressing their personal goals, values, and future medical care preferences. Digital applications may help facilitate this process, though their use in older adults has not been adequately studied. Objective This pilot study aimed to evaluate the reach, adoption, and usability of Koda Health, a web-based patient-facing ACP platform, among older adults. Methods Older adults (aged 50 years and older) who had an active Epic MyChart account at an academic health care system in North Carolina were recruited to participate. A total of 2850 electronic invitations were sent through MyChart accounts with an embedded hyperlink to the Koda platform. Participants who agreed to participate were asked to complete pre- and posttest surveys before and after navigating through the Koda Health platform. Primary outcomes were reach, adoption, and System Usability Scale (SUS) scores. Exploratory outcomes included ACP knowledge and readiness. Results A total of 161 participants enrolled in the study and created an account on the platform (age: mean 63, SD 9.3 years), with 80% (129/161) of these participants going on to complete all steps of the intervention, thereby generating an advance directive. Participants reported minimal difficulty in using the Koda platform, with an overall SUS score of 76.2. Additionally, knowledge of ACP (eg, mean increase from 3.2 to 4.2 on 5-point scale; P<.001) and readiness (eg, mean increase from 2.6 to 3.2 on readiness to discuss ACP with health care provider; P<.001) significantly increased from before to after the intervention. Conclusions This study demonstrated that the Koda Health platform is feasible, had above-average usability, and improved ACP documentation of preferences in older adults. Our findings indicate that web-based health tools like Koda may help older individuals learn about and feel more comfortable with ACP while potentially facilitating greater engagement in care planning.

show abstract

Publicly Available, Interactive Web-Based Tools to Support Advance Care Planning: Systematic Review

Cited by 19 publications

References 46 publications

Japanese Local Governments’ Dissemination Activities for Advance Care Planning: A Descriptive Analysis of a Nationwide Survey during the COVID-19 Pandemic

Japanese Local Governments’ Dissemination Activities for Advance Care Planning: A Descriptive Analysis of a Nationwide Survey during the COVID-19 Pandemic

Advance Care Planning Website for People With Dementia and Their Family Caregivers: Protocol for a Development and Usability Study

A Personalized and Interactive Web-Based Advance Care Planning Intervention for Older Adults (Koda Health): Pilot Feasibility Study

Contact Info

Product

Resources

About