Purpose in life in ALS patient–caregiver dyads: A multilevel longitudinal analysis.

Abstract

PIL was more stable than QOL and was therefore a potential psychological resource for patients and caregivers. Critical periods-after diagnosis and approaching death-accompanied more rapid PIL decline. QOL was also impacted by proximity to critical periods. PIL within-dyad relationships may reflect a shared disease experience. Psychological intervention focused on enhancing purpose, particularly during critical periods, is a promising direction for future study. (PsycINFO Database Record

Socioemotional selectivity and psychological health in amyotrophic lateral sclerosis patients and caregivers: a longitudinal, dyadic analysis

“…The dyadic context provides for a strong test of these predictions. There are dyadic similarities in psychological well-being in ALS patients and caregivers (Garcia et al, 2017;Rabkin, Wagner, & Del Bene, 2000). ALS disease progression can impact some aspects of caregivers' quality of life to a greater degree than patients' (Gauthier et al, 2007;Roach, Averill, Segerstrom & Kasarskis, 2009).…”

The Purpose-in-Life Scale (PILS): internal consistency reliability, concurrent validity and construct validity among Catholic priests in Italy

“…The PILT has been used among a range of different populations including school and college students (Wang, Koenig, Ma, & Al Shohaib, 2016;Halama, Martos, & Adamovová, 2010;DeWitz, Woolsey, & Walsh, 2009); adults within the general population (Crea, 2016;Jonsén, Fagerström, Lundman, Nygren, Vähäkangas, & Strandberg, 2010); and the elderly (Gerwood, LeBlanc, & Piazza, 1998). The PILT has been used frequently within medical and health care contexts, including, for example, persons with AIDS (Lewis, Erlen, Dabbs, Breneman, & Cook, 2006;Litwinczuk & Groh, 2007); cancer patients (Wnuk, Marcinkowski, & Fobair, 2012); mental health (Dezutter, Soenens, & Hutsebaut, 2006); general anxiety (Ishida & Okada, 2006); death anxiety (Aghababaei, Sohrabi, Eskandari, Borjali, Farrokhi, & Chen, 2016); eating disorder (García-Alandete, Ros, Salvador, & Rodríguez, 2018); suicidal ideation (Marco, Cañabate, Pérez, & Llorca, 2017); substance abuse (Wnuk, 2015); and patients with amyotrophic lateral sclerosis (Garcia, Morey, Kasarskis, & Segerstrom, 2017).…”

The Nature of the Beast: Commentary on “Can There Be a Recovery-Oriented Diagnostic Practice?”

“…Such a consensus may be presented as follows: Any clinical endeavor is worthwhile only to the extent that we can build on human strengths and resources, otherwise we are inherently doomed to failure. This is not just tactics, rather it is evidence-based: Humans are indeed potentially powerful, even under the direst of circumstances and in the presence of the most debilitating conditions, be it amyotrophic lateral sclerosis (ALS; Garcia, Morey, Kasarskis, & Sugerstorm, 2017) or schizophrenia (Yoshida et al, 2016). In particular, I wish to highlight the authors’ call for emphasizing diagnosing future-oriented thinking in our patients (I guess the authors would prefer “clients”).…”