QOLLTI-F: measuring family carer quality of life

Cohen, Rhoda; Leis, Anne; Kuhl, David; Charbonneau, Cécile; Ritvo, Paul; Ashbury, Fredrick D.

doi:10.1177/0269216306072764

Cited by 99 publications

(123 citation statements)

References 26 publications

Supporting

Mentioning

113

Contrasting

Unclassified

Order By: Relevance

“…18,19 Additionally, they indicated the "helpfulness" of opioids on a 5-point Likert scale (1 = not helpful at all; 5 = very helpful) and whether, when balancing the benefits and adverse effects, they wanted to continue opioid therapy (yes or no), and the reason(s) for their choice in terms of changes in dyspnea, quality of life and adverse effects. 20 Quantitative tools were completed by patients and family caregivers following their qualitative interviews.…”

Section: Data Collection and Analysismentioning

confidence: 99%

Perspectives of patients, family caregivers and physicians about the use of opioids for refractory dyspnea in advanced chronic obstructive pulmonary disease

Rocker¹,

Young²,

Donahue³

et al. 2012

CMAJ

View full text Add to dashboard Cite

Background: A recent national practice guideline recommends the use of opioids for the treatment of refractory dyspnea in patients with advanced chronic obstructive pulmonary disease (COPD). We conducted two qualitative studies to explore the experiences of patients and family caregivers with opioids for refractory COPD-related dyspnea and the perspectives and attitudes of physicians toward opioids in this context. Methods: Patients (n = 8; 5 men, 3 women), their caregivers (n = 12; 5 men, 7 women) and physicians (n = 28, 17 men, 11 women) in Nova Scotia participated in the studies. Semistructured interviews were recorded, transcribed verbatim, coded conceptually and analyzed for emergent themes using interpretive description methodology. Results: Patients reported that opioids provided a sense of calm and relief from severe dyspnea. Family caregivers felt that opioids helped patients to breathe more “normally,” observed improvements in patients’ symptoms of anxiety and depression, and experienced reductions in their own stress. Patients reported substantial improvements in their quality of life. All patients and family caregivers wanted opioid therapy to continue. Most physicians were reluctant to prescribe opioids for refractory dyspnea, describing a lack of related knowledge and experience, and fears related to the potential adverse effects and legal censure. Interpretation: Discrepancies between the positive experiences of patients and family caregivers with opioids and the reluctance of physicians to prescribe opioids for refractory dyspnea constitute an important gap in care. Bridging this gap will require initiatives to improve the uptake of practice guidelines and to increase confidence in prescribing opioids for dyspnea refractory to conventional treatment

show abstract

Section: Data Collection and Analysismentioning

confidence: 99%

Perspectives of patients, family caregivers and physicians about the use of opioids for refractory dyspnea in advanced chronic obstructive pulmonary disease

Rocker¹,

Young²,

Donahue³

et al. 2012

CMAJ

View full text Add to dashboard Cite

show abstract

“…We refer to measures by the acronym. Of the 8 included measures, 5 were initially developed for cancer caregivers, 2 of which were specifically developed for use in the palliative setting [10,11]. Some measures were developed relatively recently [10][11][12], five between 1980 and 1999 [13][14][15][16][17].…”

Section: Resultsmentioning

confidence: 99%

“…Of the 8 included measures, 5 were initially developed for cancer caregivers, 2 of which were specifically developed for use in the palliative setting [10,11]. Some measures were developed relatively recently [10][11][12], five between 1980 and 1999 [13][14][15][16][17]. Two [10,13] measure caregiver appraisal specifically, with a theoretical underpinning from the stress and coping model of Lazarus and Folkman [18]; two were designed to measure subjective burden ± distress [12,17] (the Zarit Burden Interview was later revised [19]); three were multidimensional quality of life measures [11,14,16] and one a multidimensional measure of caregivers' reactions to caring for a family member [15].…”

Section: Resultsmentioning

confidence: 99%

“…The individual subscales were generally weaker ranging from a = 0.48 to 0.81 which may reflect the small number of items in some subscales. The measure also includes two single-item subscales [11]. Internal consistency for the QOL-FV was a = 0.89.…”

Section: Internal Consistencymentioning

confidence: 99%

“…No information pertaining to acceptability was provided by four studies [10,20,21,23]. In five studies, acceptability was appraised as only partially evidenced due to high dropout or incomplete data [11,12,14,15,22], surprising for the QOLLTI-F which had thoroughly tested acceptability in the development phase [11]. For the ACS [13], overall response rate was 74 % (including postal responses) and only 3/50 participants were eliminated due to missing data, suggesting the questionnaire was acceptable.…”

Section: Acceptabilitymentioning

confidence: 99%

See 2 more Smart Citations

1715 Patient reported outcome measures for cancer caregivers: A systematic review

Shilling¹,

Matthews²,

Jenkins³

et al. 2015

European Journal of Cancer

View full text Add to dashboard Cite

Purpose Informal caregivers provide invaluable help and support to people with cancer. As treatments extend survival and the potential burdens on carers increase, there is a need to assess the impact of the role. This systematic review identified instruments that measure the impact of caregiving, evaluated their psychometric performance specifically in cancer and appraised the content. Methods A two-stage search strategy was employed to:(1) identify instruments that measure the impact of caregiving, and (2) run individual searches on each measure to identify publications evaluating psychometric performance in the target population. Searches were conducted in MEDLINE, EMBASE, CINAHL and PsycINFO and restricted to English for instrument used and article language. Psychometric performance was evaluated for content and construct validity, internal consistency, test-retest reliability, precision, responsiveness and acceptability. Individual scale items were extracted and systematically categorised into conceptual domains. Results Ten papers were included reporting on the psychometric properties of eight measures. Although construct validity and internal consistency were most frequently evaluated, no study comprehensively evaluated all relevant properties. Few studies met our inclusion criteria so it was not possible to consider the psychometric performance of the measures across a group of studies. Content analysis resulted in 16 domains with 5 overarching themes: lifestyle disruption; well-being; health of the caregiver; managing the situation and relationships. Conclusions Few measures of caregiver impact have been subject to psychometric evaluation in cancer caregivers. Those that have do not capture well changes in roles and responsibilities within the family and career, indicating the need for a new instrument.

show abstract

Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers

Byrne

Sivell

Moraes

et al. 2019

Cochrane Database of Systematic Reviews

View full text Add to dashboard Cite

show abstract

QOLLTI-F: measuring family carer quality of life

Cited by 99 publications

References 26 publications

Perspectives of patients, family caregivers and physicians about the use of opioids for refractory dyspnea in advanced chronic obstructive pulmonary disease

Perspectives of patients, family caregivers and physicians about the use of opioids for refractory dyspnea in advanced chronic obstructive pulmonary disease

1715 Patient reported outcome measures for cancer caregivers: A systematic review

Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers

Contact Info

Product

Resources

About