Qualitative analysis of helpful and unhelpful aspects of social relationships among young adults with type 1 diabetes

Gray, Avia; Campbell, MaryJane S; Berg, Cynthia A.; Wiebe, Deborah J.

doi:10.1111/dme.14441

Cited by 12 publications

(19 citation statements)

References 31 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This study builds on previous literature that identified the disclosure decision-making process for young adults living with type 1 diabetes (10)(11)(12)(13). With a focus on how patients diagnosed with type 2 diabetes make disclosure decisions, this study extends previous literature that revealed barriers to disclosure for patients living with type 2 diabetes (18)(19)(20)(21)(22)24) to identify the decision-making process for disclosing their disease to others.…”

Section: Theme 6: Protecting Employmentmentioning

confidence: 79%

“…This act is different from disclosure as discussed in some medical and nursing literature, which conceptualizes disclosure as an "act of seeking care," referring to the sharing of information specifically with a health care professional or clinician (9). More frequently studied among young adults living with type 1 diabetes, diabetes disclosure is a strategy to engage in helpful social relationships (10,11). Young adults disclose their type 1 diabetes diagnosis in anticipation of the need for practical and emotional support and with the desire to normalize type 1 diabetes (12).…”

mentioning

confidence: 99%

See 1 more Smart Citation

Patient Decision-Making About Self-Disclosure of a Type 2 Diabetes Diagnosis: A Qualitative Study

et al. 2022

View full text Add to dashboard Cite

Background Effective self-management of type 2 diabetes requires receiving support, which can result from disclosing the diagnosis to a support network, including coworkers, family, and friends. As a primarily invisible disease, diabetes allows people to choose whether to disclose. This study qualitatively explores the factors that influence a person’s decision to disclose diabetes to others. Methods Research coordinators recruited 22 interview participants, ranging in age from 32 to 64 years, whose medical records included a diagnosis code for type 2 diabetes. Participants received care from one of two U.S. medical centers. Semi-structured interviews lasted approximately1 hour and were audio-recorded and professionally transcribed. Verification strategies such as memo-keeping and maintaining methodological coherence/congruence were used throughout analysis to promote rigor. Results In patients’ descriptions of their decision-making processes regarding whether to disclose their diagnosis, six themes emerged. Three motivations prompted open disclosure: 1) to seek information, 2) to seek social support, and 3) to end the succession of diabetes, and the other three motivations prompted guarded disclosure: 4) to prepare for an emergency, 5) to maintain an image of health, and 6) to protect employment. Conclusion Based on our findings, we recommend three communicative actions for clinicians as they talk to patients about a diabetes diagnosis. First, clinicians should talk about the benefits of disclosure. Second, they should directly address stereotypes in an effort to de-stigmatize diabetes. Finally, clinicians can teach the skills of disclosure. As disclosure efficacy increases, a person’s likelihood to disclose also increases. Individuals can use communication as a tool to gain the knowledge and support they need for diabetes self-management and to interrupt the continuing multigenerational development of diabetes within their family.

show abstract

Section: Theme 6: Protecting Employmentmentioning

confidence: 79%

mentioning

confidence: 99%

Patient Decision-Making About Self-Disclosure of a Type 2 Diabetes Diagnosis: A Qualitative Study

et al. 2022

View full text Add to dashboard Cite

show abstract

“…Emerging adults frequently stated that no one other than themselves had the biggest negative impact (n = 10) and occasionally mentioned general acquaintances (n =3) andcoworkers(n =2)ashavingthe biggest negative impact. Instances of individuals having the biggest negative impact on diabetes management were described as occurring fairly infrequently, with these individuals involved on a weekly (n = 8) or less than weekly (n =4)basis.Themes related to negative social involvement included social context barriers and uninformed or misguided behaviors of others (26). See Tables 1 and 3 for additional details regarding qualitative themes.…”

Section: Semi-structured Qualitative Interviewmentioning

confidence: 99%

“…In fact, social support has frequently been described as a double-edged sword, with instrumental and emotional support perceived as both helpful and controlling or nagging (21)(22)(23). Among adolescents and young adults with type 1 diabetes, peers, coworkers, and romantic partners can be perceived as both facilitating and getting in the way of diabetes management (16,(24)(25)(26). Furthermore, as the social context changes throughout this developmental period, emerging adults may face the additional challenge of learning to let others know about their support and self-management needs.…”

mentioning

confidence: 99%

Understanding the Roles of Romantic Partners and Parents in the Management of Type 1 Diabetes in Emerging Adults

et al. 2022

Self Cite

View full text Add to dashboard Cite

During the emerging adulthood of people with type 1 diabetes, long-term romantic partners may be involved in diabetes management in ways that supplant parental involvement. We examined the perspectives of involvement in diabetes management of the parents and romantic partners of 29 emerging adults with type 1 diabetes, using qualitative interviews and an online survey. When the individuals with diabetes were in long-term romantic relationships, their partners were heavily involved in managing diabetes and providing support; however, when the individuals with diabetes were in short-term relationships or not in a relationship, their parents were described as having the biggest positive impact on their diabetes management. Emerging adults described the involvement of their parents and romantic partners in both positive and negative ways. Romantic relationship status is an important but understudied variable in understanding social involvement and its effects on type 1 diabetes management during emerging adulthood.

show abstract

“…Importantly, research has emphasized the importance of recognizing individual-specific contexts for supports (70,71). That is, the amount and type of support a YA may need could change over time, in different environments, and after changes to diabetes care or treatment, among other things.…”

Section: Promote Support In Day-to-day Lifementioning

confidence: 99%

Competing Demands of Young Adulthood and Diabetes: A Discussion of Major Life Changes and Strategies for Health Care Providers to Promote Successful Balance

2021

View full text Add to dashboard Cite

Young adults (YAs) are often faced with many new transitions and major milestones specific to their life stage. For YAs with diabetes, it can be particularly difficult to balance diabetes management with the age-typical demands of young adulthood. Clinicians can play an important role in helping YAs navigate major life changes and find balance in the competing demands of young adulthood, while protecting their health and well-being.

show abstract

Qualitative analysis of helpful and unhelpful aspects of social relationships among young adults with type 1 diabetes

Cited by 12 publications

References 31 publications

Patient Decision-Making About Self-Disclosure of a Type 2 Diabetes Diagnosis: A Qualitative Study

Patient Decision-Making About Self-Disclosure of a Type 2 Diabetes Diagnosis: A Qualitative Study

Understanding the Roles of Romantic Partners and Parents in the Management of Type 1 Diabetes in Emerging Adults

Competing Demands of Young Adulthood and Diabetes: A Discussion of Major Life Changes and Strategies for Health Care Providers to Promote Successful Balance

Contact Info

Product

Resources

About