Qualitative data collection: considerations for people with Aphasia

Wilson, Chanelle; Kim, Esther

doi:10.1080/02687038.2019.1693027

Cited by 21 publications

(10 citation statements)

References 48 publications

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“…However, arts-based qualitative methods, such as Photovoice may prove feasible for this type of investigation [60]. Furthermore, guidelines on conducting qualitative research with those who have low language abilities, such as those with aphasia, can guide future researchers in this area [61,62]. A more rounded understanding of the peer interaction skills of children with DLD will better enable teachers and Speech and Language Therapists to build on the children's pre-existing strengths to support their social development.…”

Section: Discussionmentioning

confidence: 99%

What Are the Peer Interaction Strengths and Difficulties in Children with Developmental Language Disorder? A Systematic Review

Russell

Clair

2020

IJERPH

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The current review gathers together research investigating peer interaction skills in children with Developmental Language Disorder (DLD) to give an overview of the strengths and challenges experienced by these children when interacting with other children. A systematic review was conducted to summarise the literature on peer interaction strengths and difficulties in children with DLD. No restrictions on time-period were made and the selection criteria accounted for many of the diagnostic labels previously used to refer to DLD. Studies included in this review involve English-speaking children of UK primary school age (4–11 years). A systematic search of databases identified 28 papers that met the inclusion criteria. Children with DLD are found to experience many challenges when interacting with peers. Difficulties have been found in studies exploring discourse characteristics such as turn-taking and in behaviours during play, such as access behaviours. Heterogeneity was however notable and peer interaction strengths are found in terms of the children’s abilities to make friends, use verbal and non-verbal behaviour to make joint decisions with peers, and abilities to engage with peers in social pretend play. While it is encouraging to find research exploring many different areas of peer interaction competence in children with DLD, the research is highly disparate and there are many research findings awaiting replication. The current evidence base is unable to comprehensively define the characteristics of peer interactions of children with DLD.

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Section: Discussionmentioning

confidence: 99%

What Are the Peer Interaction Strengths and Difficulties in Children with Developmental Language Disorder? A Systematic Review

Russell

Clair

2020

IJERPH

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“…For instance, if a participant indicated they frequented a particular type of business during the ALA- 2 , they would be asked about those experiences, in addition to the general questions in the interview guide. Principles of qualitative data collection for PWA (Wilson & Kim, 2021) were employed throughout the data collection process, including (but not limited to) providing an aphasia-friendly interview guide beforehand and using supported communication strategies throughout. All interviews were audio and video recorded using the Zoom platform and each interview was transcribed verbatim orthographically, including nonverbal aspects of communication (e.g., gestures, facial expressions, and writing).…”

Section: Methodsmentioning

confidence: 99%

Barriers and Facilitators to Communication Accessibility as Perceived by People With Aphasia

Kim

Mauriks

Wilson

et al. 2023

Topics in Language Disorders

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Purpose: Communication access is a human right, but many individuals with communication impairments face challenges accessing their environments. As part of a larger study investigating barriers and facilitators to communication access in the retail/service industry, the purpose of the present study was to investigate the experiences of people with aphasia (PWA) accessing goods and services in their communities. Methods: Nine PWA were interviewed about their experiences accessing retail businesses and services. Interviews were coded and thematically analyzed to identify key themes related to barriers and facilitators to communication during business interactions. Stakeholders on the research team included two PWA, who provided input throughout the research process. Results: Three main themes were found: supporting communication, aphasia awareness and education, and respect for PWA. Codes within each theme comprised facilitators that led to positive experiences and barriers that led to negative business interactions. Discussion/Conclusions: People with aphasia identified tangible ways that retail businesses can be made more communicatively accessible. Stakeholders with aphasia made meaningful contributions to the research process. Future work will investigate how these findings, integrated with business perspectives, can be used to support businesses in applying strategies to become more communicatively accessible.

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“…To accommodate communication issues, we followed the suggestions laid out in, "Qualitative data collection: considerations for people with Aphasia" [11] and were able to correspond with the authors for further guidance. We used several suggestions from this article to support communication, such as breaking messages down into smaller pieces, speaking slowly, and using visual aids [11]. All meeting agendas were sent out at least 72 h in advance using plain language with keywords bolded.…”

Section: Preparing For Patient-oriented Researchmentioning

confidence: 99%

Stroke survivors partner in research: a case example of collaborative processes

et al. 2022

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The Canadian Strategy for Patient-Oriented Research supports the inclusion of patients as partners throughout the research process. Purposeful and meaningful engagement of patient partners after stroke can present unique challenges due to the potential impacts on cognition, communication, or mobility. The purpose of this paper is to provide a case example of working together with three individuals who bring their post-stroke lived experience, including one person with aphasia, from study design through to dissemination. The designed and executed qualitative research was the purpose of this collaboration; this paper describes the collaborative process rather than the outcomes of the original research. The Strategy for Patient-Oriented Research Patient Engagement Framework was followed to engage the patient partners fully as part of the research team. Patient partners were involved at regularly scheduled team meetings and provided guidance on key aspects of project design and decision-making. The patient partners provided robust and important contributions to many aspects of the research, including shaping interview questions, assisting with thematic analysis, and contributing to the dissemination of research findings. Effective team dynamics were fostered by focusing on the value of the lived experience knowledge, using best-practice communication strategies, as well as taking time for relationship-building and story sharing. With appropriate support and guidance, the individuals who have experienced stroke were valuable contributing members of our research team.

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Qualitative data collection: considerations for people with Aphasia

Cited by 21 publications

References 48 publications

What Are the Peer Interaction Strengths and Difficulties in Children with Developmental Language Disorder? A Systematic Review

What Are the Peer Interaction Strengths and Difficulties in Children with Developmental Language Disorder? A Systematic Review

Barriers and Facilitators to Communication Accessibility as Perceived by People With Aphasia

Stroke survivors partner in research: a case example of collaborative processes

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