Qualitative Evidence in Pediatrics

Scott, Shannon D.; Archibald, Mandy M.; Pullishy, Lesley; Chambers, Thane

doi:10.1007/978-1-4939-2920-7_16

Cited by 2 publications

(1 citation statement)

References 83 publications

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“…For ethical reasons, paediatric qualitative research should consider the voices of the children themselves. However, young children are too often considered to be developmentally immature; hence researchers often seek proxy information about them, giving rise to the so-called ‘missing child’ paradox [ 34 ]. We found limited research consulting children directly [ 9 , 13 ], and none that consulted children below seven years.…”

Section: Discussionmentioning

confidence: 99%

Keep Calm and Carry on: Parental Opinions on Improving Clinical Dietary Trials for Young Children

Nicholl

O’Sullivan

2018

Nutrients

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Recruitment can be an issue for paediatric research. We aimed to investigate parental opinions of paediatric clinical assessments, and to combine findings with recent literature to inform the design of a clinical dietary trial. We used convenience sampling to recruit 17 parents of children aged 2–6 years from two community playgroups in Perth, Western Australia. Three focus groups considered proposed child assessments, study design, and potential study enrolment. Qualitative thematic analysis of focus group transcripts used NVivo 11 (QSR, Melbourne, VIC, Australia). Four main parental concerns emerged, presented here with solutions combining parent responses and relevant literature. (1) Parent and child needle fear: a good experience and a good phlebotomist help keep participants calm, and offering additional analysis (e.g., iron status) makes blood tests more worthwhile. (2) Concerns about children’s age, stage, understanding and ability to cope: create a themed adventure to help explain concepts and make procedures fun. (3) Persistent misunderstandings involving study purpose, design, randomization and equipoise: provide clear information via multiple platforms, and check understanding before enrolment. (4) Parental decisions to enrol children focused on time commitment, respectful treatment of their child, confronting tests and altruism: child-centred methodologies can help address concerns and keep participants engaged throughout procedures. Addressing the concerns identified could improve participation in a range of paediatric health interventions.

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Section: Discussionmentioning

confidence: 99%

Keep Calm and Carry on: Parental Opinions on Improving Clinical Dietary Trials for Young Children

Nicholl

O’Sullivan

2018

Nutrients

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Family experiences of oncological palliative and supportive care in children: can we do better?

2019

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Aims: Families were interviewed as a quality improvement assessment for palliative and supportive care services for children. Methods: This exploratory qualitative study of family members of children with cancer was conducted at an academic hospital in central South Africa and a grounded theory approach was used. Face-to-face interviews using a semi-structured interview guide were conducted with 16 family members of 16 children. Findings: Parents felt supported by the healthcare professionals who were caring for their child, but several shortcomings were identified. These included erratic psychosocial support, minimal financial support and poor parental access to basic needs and food provision, preventable errors in procedures and a lack of support available for siblings. It is also worth noting that healthcare professionals did not always seem sufficiently equipped to attend to palliative care patients. Conclusion: Strategies to improve supportive and palliative care are needed for children with cancer and their families in a hospital setting. The interviews identified a number of themes and current shortcomings that should be considered to improve services.

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Qualitative Evidence in Pediatrics

Cited by 2 publications

References 83 publications

Keep Calm and Carry on: Parental Opinions on Improving Clinical Dietary Trials for Young Children

Keep Calm and Carry on: Parental Opinions on Improving Clinical Dietary Trials for Young Children

Family experiences of oncological palliative and supportive care in children: can we do better?

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