Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia

Gibson, Kirstian; Peacock, Shelley; Bayly, Melanie

doi:10.1136/bmjopen-2019-031423

Cited by 10 publications

(4 citation statements)

References 40 publications

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“…They also examined the anticipatory mourning experienced by adult spouses and offspring at each stage of the disease (initial, intermediate, and advanced). The results showed that the anticipated mourning experienced by the spouse increased as the disease progressed, corroborating the above-mentioned reports 29 .…”

Section: Marwit and Meuser Point Outsupporting

confidence: 89%

As demandas de cuidado e autocuidado na perspectiva do cuidador familiar da pessoa idosa com demência

Mattos

Oliveira

Novelli

2020

Rev. bras. geriatr. gerontol.

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Resumo Objetivo Conhecer as demandas de cuidado e autocuidado de cuidadores familiares de pessoas idosas com demência, a partir de rodas de conversa. Método Em 2017, foram realizados dois grupos com seis rodas de conversa cada, com as seguintes questões norteadoras: 1º)“Quem sou eu? De quem eu cuido?”; 2º) “O que é demência para mim?”; 3º)“Qual o meu papel diante das atividades de cuidado diário?”; 4º)“Quais os meus pensamentos ou emoções desencadeados pelo cuidar?” 5º) “Eu consigo ver algo de positivo nessa experiência de cuidar?”; e por último 6º) “Como eu cuido ou posso cuidar de mim?”. Os critérios de inclusão foram: ser cuidador familiar de idoso com demência, exercer esse papel no mínimo há 6 meses e ter disponibilidade para participar dos encontros. As rodas ocorreram quinzenalmente, com 1 hora e meia de duração, tendo uma terapeuta ocupacional como facilitadora. Todas foram gravadas, transcritas e posteriormente analisadas por meio da análise de conteúdo temática. Resultados No total, participaram 15 cuidadores familiares. A partir da análise, emergiram 09 categorias de demandas de cuidado e autocuidado: autopercepção de comprometimento físico e emocional; a busca por suporte; sobrecarga e estresse do cuidador; o que eu aprendi com essa experiência; a mistura de sentimentos; as perdas; valorização dos aspectos simples do cotidiano; já cuido de mim; e eu preciso cuidar de mim. Conclusão A identificação dessas demandas de cuidado e de autocuidado de cuidadores familiares de pessoas idosas com demência pode sensibilizar e conscientizar os profissionais de saúde sobre a importância de considerar esses aspectos na proposição de intervenções com foco nos cuidadores.

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Section: Marwit and Meuser Point Outsupporting

confidence: 89%

As demandas de cuidado e autocuidado na perspectiva do cuidador familiar da pessoa idosa com demência

Mattos

Oliveira

Novelli

2020

Rev. bras. geriatr. gerontol.

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“…These consequences have been observed in diverse samples [7,9]. Current research has also addressed some positive aspects associated with the task of taking care of cancer patients, including effects as gains or benefits related to the caregiving task [10][11][12][13].…”

Section: Introductionmentioning

confidence: 99%

The Mediational Role of Burden and Perceived Stress in Subjective Memory Complaints in Informal Cancer Caregivers

Ramos-Campos

Redolat

Mesa-Gresa

2020

IJERPH

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The role of informal caregiver of cancer patients is considered a situation of chronic stress that could have impact on cognitive functioning. Our aim was to evaluate differences in perceived stress, subjective memory complaints, self-esteem, and resilience between caregivers and non-caregivers, as well as the possible mediational role of burden in caregivers. The sample was composed of 60 participants divided into two groups: (1) Primary informal caregivers of a relative with cancer (CCG) (n = 34); and (2) non-caregiver control subjects (Non-CG) (n = 26). All participants were evaluated through a battery of tests: Socio-demographic questionnaire, subjective memory complaints questionnaire (MFE-30), Rosenberg Self-Esteem Scale, resilience (CD-RISC-10), and perceived stress scale (PSS). The CCG group also completed the Zarit burden interview. Results indicated that CCG displayed higher scores than Non-CG in MFE-30 (p = 0.000) and PSS (p = 0.005). In the CCG group, Pearson correlations indicated that PSS showed a negative relationship with resilience (p = 0.000) and self-esteem (p = 0.002) and positive correlation with caregiver’s burden (p = 0.015). In conclusion, CCG displayed higher number of subjective memory complaints and higher perceived stress than Non-CG, whereas no significant differences were obtained on self-esteem and resilience. These results could aid in designing new intervention strategies aimed to diminish stress, burden, or cognitive effects in informal caregivers of cancer patients.

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“… 22 In particular, one study of bereaved families showed that socialization is a critical factor in managing stress and sadness. 26 Therefore, it appears that socialization shifts the focus of traumatic experience from the internal to the external, and enables immersion in day-to-day life, in other words, the external world.…”

Section: Discussionmentioning

confidence: 99%

Comparative Analysis of the Psychosocial Symptoms and Experiences of Bereaved Parents and Parents of Children Who Survived the Sewol Ferry Accident After 5 Years: A Qualitative Interview Study

Lee

Huh

et al. 2022

J Korean Med Sci

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Background This study aimed to investigate the psychosocial symptoms and experiences of bereaved parents of victims and parents of survivors of the Sewol Ferry accident five years after the accident. Methods In-depth interviews of 186 bereaved parents of victims or survivors of the Sewol Ferry accident were conducted. We elicited and categorized meaning units relevant to the psychological, cognitive, and physical traits of the participants from these interviews. Differences in responses between bereaved parents and survivors’ parents and between genders were examined using frequency analyses and χ 2 tests. Results Data were organized under seven headings: observed attitude and impression of participants, difficulties due to mental health problems, difficulties due to physical pain, difficulties in relationships, negative changes following the incident, positive changes following the incident, and help needed. Within these headings, 27 themes, 60 sub-themes, and 80 meaning units were elicited. Conclusion This study explored the psychiatric, physical, and relational problems reported by bereaved parents and those of survivors as well as major changes in their personal and social lives after the Sewol Ferry accident. Differences in responses according to gender were also identified. The results from this study could inform and facilitate the implementation of intervention measures, such as long-term psychological evaluation, to bereaved parents of victims or survivors of disasters.

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Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia

Cited by 10 publications

References 40 publications

As demandas de cuidado e autocuidado na perspectiva do cuidador familiar da pessoa idosa com demência

As demandas de cuidado e autocuidado na perspectiva do cuidador familiar da pessoa idosa com demência

The Mediational Role of Burden and Perceived Stress in Subjective Memory Complaints in Informal Cancer Caregivers

Comparative Analysis of the Psychosocial Symptoms and Experiences of Bereaved Parents and Parents of Children Who Survived the Sewol Ferry Accident After 5 Years: A Qualitative Interview Study

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