Qualitative Exploration of Empowerment from the Perspective of Young People with Psychosis

Grealish, Annmarie; Tai, Sara; Hunter, Andrew; Morrison, Anthony P.

doi:10.1002/cpp.785

Cited by 42 publications

(92 citation statements)

References 32 publications

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“…Recent literature emphasises the importance of empowerment in helping patients take charge of their own life and making decisions on their own (Grealish, Tai, Hunter, & Morrison, 2011). This is in line with the present study where the experience of being listened to and being able to talk about their experiences is viewed by patients as being positive and helpful in the healing process.…”

Section: Knowledge and Educationsupporting

confidence: 90%

Patients’ and Family Members’ Experiences of a Psychoeducational Family Intervention after a First Episode Psychosis: A Qualitative Study

Nilsen¹,

Frich²,

Friis³

et al. 2013

Issues in Mental Health Nursing

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The objective of this study is to explore patients' and family members' experiences of the different elements of a psychoeducational family intervention. A qualitative, explorative study was performed based on digitally recorded in-depth interviews with 12 patients and 14 family members. The interview data were transcribed in a slightly modified verbatim mode and analysed using systematic text condensation. Six themes that both patients and family members experienced as important in the family intervention were identified: alliance, support, anxiety and tension, knowledge and learning, time, and structure. A good relationship between the group leaders and participants was essential in preventing dropout. Meeting with other people in the same situation reduced feelings of shame and increased hope for the future. Hearing real life stories was experienced as being more important for gaining new knowledge about psychosis than lectures and workshops. However, many patients experienced anxiety and tension during the meetings. The group format could be demanding for patients immediately after a psychotic episode and for those still struggling with distressing psychotic symptoms. Group leaders need to recognise patients' levels of anxiety before, and during, the intervention, and consider the different needs of patients and family members in regards to when the intervention starts, the group format, and the patients' level of psychotic symptoms. The findings in the present study may help to tailor family work to better meet the needs of both patients and family members.

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Section: Knowledge and Educationsupporting

confidence: 90%

Patients’ and Family Members’ Experiences of a Psychoeducational Family Intervention after a First Episode Psychosis: A Qualitative Study

Nilsen¹,

Frich²,

Friis³

et al. 2013

Issues in Mental Health Nursing

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“…This is consistent with previous research which has suggested that mental health patients find a lack of explanation of decision outcomes to be disempowering (Grealish et al, 2011;Tee et al, 2007) and a source of uncertainity (Rapport et al, 2010). We also found that mental health patients often wanted to have a more collaborative role, which is consistent with previous research that has suggested that mental health patients value the opportunity to negotiate their care (Hopkins and Niemiec, 2007) and derive increased confidence from involvement in treatment decisions (O'Toole et al, 2004), which can lead to the development of a sense of empowerment (Elstad and Eide, 2009).…”

Section: Comparison With Other Studiessupporting

confidence: 94%

Patient experience of MDT care and decision-making

O'Driscoll

Livingston

Lanceley

et al. 2014

Mental Health Review Journal

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Purpose -The purpose of this paper is to explore physical and mental health patients' experience of multidisciplinary team (MDT) care and decision making in order to highlight factors underlying effective care and to identify areas in which patient experience could be improved. Design/methodology/approach -Totally, 12 MDTs within the North Thames area participated; the authors recruited 13 patients from physical health MDTs and seven patients from mental health MDTs. The authors conducted semi-structured interviews with each participant and thematically analysed the transcripts. Findings -The study found a marked contrast in patient experience: physical health patients emphasised their faith in the judgement of MDT clinicians, described experiencing high quality care and expressed a strong preference not to attend MDT meetings; mental health patients highlighted a range of negative experiences, were frequently sceptical about their diagnosis, and expressed a desire to have greater involvement in the decisions directing their care. Research limitations/implications -It was necessary to revise the initial target of interviewing six patients per MDT due to recruitment difficulties. Practical implications -In order to improve care, mental health MDTs should focus on promoting a shared understanding of illness by increasing the transparency of the diagnostic process. Key factors underlying effective MDT care in physical health services include enabling patients to determine their level of involvement in decision making and ensuring patients have a clear understanding of their care plan. Originality/value -The paper highlights the importance of mental health MDTs focusing on developing a shared understanding of illness with their patients.

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“…Communication was enhanced when patients felt comfortable with and trusted their practitioners [22353943546267]. The development of trust required time, and was hampered by lack of continuity of practitioners [35445867].…”

Section: Resultsmentioning

confidence: 99%

“…Patients and families emphasised their individual strengths and capabilities, particularly their expertise about the disease and its management [436568]. Where practitioners did not recognise and value this expertise, participants felt that they were not being taken seriously [4352].…”

Section: Resultsmentioning

confidence: 99%

The Nature of Patient- and Family-Centred Care for Young Adults Living with Chronic Disease and their Family Members: A Systematic Review

Allen

Scarinci

Hickson

2018

International Journal of Integrated Care

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Background and Aim:The published literature addressing the nature of patient- and family-centred care (PFCC) among young adults (16–25 years old) living with chronic disease and their family members is diverse. The aim of this systematic review was to collect and interpretatively synthesise this literature to generate a conceptual understanding of PFCC in this age group.Method:From an initial pool of 10,615 papers, 51 were systematically identified as relevant to the research question and appraised using the Critical Appraisal Skills Programme tools. A total of 24 papers passed the quality appraisal and proceeded to a qualitative meta-synthesis.Results:The qualitative meta-synthesis revealed three major elements of PFCC relevant to young adults living with chronic disease and their family members: (1) patients and practitioners felt able to engage with each other on an emotional and social level; (2) patients and families felt empowered to be part of the care process; and (3) patients and families experienced care as effective at addressing their individual needs.Conclusion:There is agreement among young adult patients and families about what constitutes PFCC in a chronic disease setting, independent of the aetiology of the pathological process. Patients and families also have strong feelings about how practitioners can achieve PFCC in practice. These findings have implications for the delivery of health services to young adults living with chronic disease and their family members.

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Qualitative Exploration of Empowerment from the Perspective of Young People with Psychosis

Cited by 42 publications

References 32 publications

Patients’ and Family Members’ Experiences of a Psychoeducational Family Intervention after a First Episode Psychosis: A Qualitative Study

Patients’ and Family Members’ Experiences of a Psychoeducational Family Intervention after a First Episode Psychosis: A Qualitative Study

Patient experience of MDT care and decision-making

The Nature of Patient- and Family-Centred Care for Young Adults Living with Chronic Disease and their Family Members: A Systematic Review

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