Qualitative questionnaire on the psychosocial wellbeing of mothers of children with BEEC

Grazia, Massimo Di; Pellizzoni, Sandra; Tonegatti, Luca; Rigamonti, Waifro

doi:10.1016/j.jpurol.2016.07.015

Cited by 8 publications

(1 citation statement)

References 13 publications

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“…Fluctuating feelings toward the multidisciplinary staff were also described. 46 This aspect is crucial to consider when giving support to a family with a child with the BEEC, bearing in mind that the child soon will enter adolescence and adulthood.…”

Section: Discussionmentioning

confidence: 99%

Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature

et al. 2020

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The bladder exstrophy-epispadia complex (BEEC) includes malformations with midline closing defects of the lower abdomen and external genitalia. Long-term consequences with urinary incontinence and sexual dysfunction, in spite of multiple surgical interventions, are common and expected to affect the patient's health-related quality of life (HRQOL). The extent and the predictive factors are, however, not known. New patient-reported outcome research is emerging, but valid and reliable condition-specific HRQOL are still missing. The aim of this review is to summarize and discuss the latest published reports (2015–2019) on HRQOL in patients with the BEEC and its relationship to incontinence and sexual factors.

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Section: Discussionmentioning

confidence: 99%