Qualitative research in teen experiences living with food‐induced anaphylaxis: A meta‐aggregation

Johnson, Sara F.; Woodgate, Roberta L.

doi:10.1111/jan.13325

Cited by 27 publications

(20 citation statements)

References 38 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The parents in the reviewed studies thought the child's transition to adulthood was challenging, whereas the adolescents were more explorative than the parents wanted, regarding testing food and drinking alcohol. In a review from the adolescent's perspective, Johnson and Woodgate (2017) describe that adolescents must be competent in managing their life with a food allergy, and the transition to an increase in self-reliance is a gradual process. Based on the results in the current review, the sharing of responsibility from the parents' perspective highlights the well-functioning relationship between parents and the sharing of cooking as a strength.…”

Section: Discussionmentioning

confidence: 99%

“…The first allergic reaction was experienced as threatening, and those who had experienced anaphylaxis realized the life-threatening situation their children were living in. Moving anaphylaxis prevention from an individual focus to a societal responsibility results in increased focus (Johnson & Woodgate, 2017). The legislation then places greater responsibility on schools that have children with allergies, such as in Canada.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Parents Experiences Raising a Child with Food Allergy; A Qualitative Review

Moen

Opheim

Trollvik

2019

Journal of Pediatric Nursing

View full text Add to dashboard Cite

Problem: Food allergies are one of the fastest growing public health concerns without a cure, affecting approximately 8% of the world's child population. Being the parent of a child with allergies may lead to concerns, and affect everyday life in the family. The aim was to synthesize and describe parents' experiences of living with food allergies in families when one of the children has a food allergy. Eligibility criteria: A systematic search using subject terms and text words was performed in Cinahl (Ebsco), Swemed+, Medline (OVID) and Scopus in October 2017. The search was limited to parents with children and adolescents, for the years from 2006 to October 2017. Sample: One hundred and forty articles were screened and 24 were included. Results: A meta-summery of the results from the included studies were conducted. The parents lived in fear, after their child had their first reaction and had become allergic, a life threatening experience. They tried to live an ordinary family life and parents had to learn how to be one-step ahead and understand early signs. The family's social life was also influenced. Parents asked for support and information from health professionals and more knowledge and skills increased parents' manageability. Conclusion: Parents need support and a seamless encounter with health professionals, with multidisciplinary collaboration and knowledge sharing to develop the parents' self-efficacy. Implications: Health professionals must provide information and support parents on their path through the health-care system in having a child with a food allergy.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Parents Experiences Raising a Child with Food Allergy; A Qualitative Review

Moen

Opheim

Trollvik

2019

Journal of Pediatric Nursing

View full text Add to dashboard Cite

show abstract

“…The current standard management for food allergy is complete avoidance of the offending allergen in the diet, combined with training on how to recognize and treat allergic reactions. And while avoidance is currently recognized as a safe approach, it has a limited ability to improve a patients' perception of safety or sense of control over the condition and its associated limitations-this leads many to seek alternative management options [1][2][3][4][5][6]. Oral immunotherapy (OIT) consists of daily ingestion of the offending food allergen (food dosing), starting below a patient's threshold dose (i.e.…”

mentioning

confidence: 99%

CSACI guidelines for the ethical, evidence-based and patient-oriented clinical practice of oral immunotherapy in IgE-mediated food allergy

Bégin

Chan

Kim

et al. 2020

Allergy Asthma Clin Immunol

136

118

View full text Add to dashboard Cite

Background: Oral immunotherapy (OIT) is an emerging approach to the treatment of patients with IgE-mediated food allergy and is in the process of transitioning to clinical practice.Objective: To develop patient-oriented clinical practice guidelines on oral immunotherapy based on evidence and ethical imperatives for the provision of safe and efficient food allergy management. Materials and methods:Recommendations were developed using a reflective patient-centered multicriteria approach including 22 criteria organized in five dimensions (clinical, populational, economic, organizational and sociopolitical). Data was obtained from: (1) a review of scientific and ethic literature; (2) consultations of allergists, other healthcare professionals (pediatricians, family physicians, nurses, registered dieticians, psychologists, peer supporters), patients and caregivers; and patient associations through structured consultative panels, interviews and on-line questionnaire; and (3) organizational and economic data from the milieu of care. All data was synthesized by criteria in a multicriteria deliberative guide that served as a platform for structured discussion and development of recommendations for each dimension, based on evidence, ethical imperatives and other considerations. Results:The deliberative grid included 162 articles from the literature and media reviews and data from consultations involving 85 individuals. Thirty-eight (38) recommendations were made for the practice of oral immunotherapy for the treatment of IgE mediated food allergy, based on evidence and a diversity of ethical imperatives. All recommendations were aimed at fostering a context conducive to achieving objectives identified by patients and caregivers with food allergy. Notably, specific recommendations were developed to promote a culture of shared responsibility between patients and healthcare system, equity in access, patient empowerment, shared decision making and personalization of OIT protocols to reflect patients' needs. It also provides recommendations to optimize organization of care to generate capacity to meet demand according to patient choice, e.g. OIT or avoidance. These recommendations were made acknowledging the necessity of ensuring sustainability of the clinical offer in light of various economic considerations. © The Author(s) 2020. This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article' s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article'A multidisciplinary team comprised of experts from a diversity of fields was assembled, including allergists and other healthcare professional...

show abstract

“…Then, condensed findings were classified into broad categories based upon the overarching topic and meaning of the findings, before further splitting them into sub-categories. This was deemed a more appropriate method of representing the richness of the data, and was used in a qualitative metaaggregation by Johnson & Woodgate (2017) [37]. An example of this process can be found in Fig.…”

Section: Data Synthesismentioning

confidence: 99%

Delivering and implementing child and adolescent mental health training for mental health and allied professionals: a systematic review and qualitative meta-aggregation

2021

View full text Add to dashboard Cite

Background The increasing prevalence of mental health difficulties among children and young people (CYP) suggests that early intervention is vital. A comprehensive system of care and support requires the involvement of mental health professionals, including psychologists and psychiatrists, and allied professionals, including teachers, police, and youth workers. A critical starting point is the provision of effective training, in order that these professionals can better support the mental health needs of the CYP that they encounter. Objectives Given the primacy of training in the CYP mental health support system, understanding the factors that maximise potential gains and facilitate uptake is pertinent. The current review therefore located and explored qualitative research evidence, to identify the barriers and facilitators underpinning successful delivery and implementation of training focussed on the mental health of CYP, for both mental health and allied professionals. Methods A systematic review and qualitative meta-aggregation were conducted. Systematic searches were carried out using ASSIA, EMBASE, MEDLINE, NICE Evidence, PsycINFO, and Scopus databases, for papers published between 2000 and 2020. Twelve thousand four hundred forty-eight records were identified, of which 39 were eligible for review. The records were appraised for quality using the Joanna Briggs Institute Critical Appraisal Checklist for Qualitative Research, and synthesised using the qualitative meta-aggregation method. Results One hundred eighty-two raw findings were extracted from the 39 papers, which were condensed into 47 sub-categories, 19 categories, and finally 5 synthesis statements. These synthesis statements reflected the barriers and facilitators influencing the training delivery process (“support”; “content, design, and planning”), and the implementation of training into the workplace (“context”; “perceived value”; “organisational factors”). Conclusions The synthesis statements and underlying categories provide practical recommendations for those designing, delivering, or implementing CYP mental health training. Recommendations ranged from facilitating peer support during training, to the idea that training will be better implemented when perceived need is high. The review provides a robust evidence-based foundation to “common-sense” principles, drawing them into a coherent and organised framework using a synthesis method grounded in pragmatism. Protocol registration number PROSPERO reference ID: CRD42020162876.

show abstract

Qualitative research in teen experiences living with food‐induced anaphylaxis: A meta‐aggregation

Cited by 27 publications

References 38 publications

Parents Experiences Raising a Child with Food Allergy; A Qualitative Review

Parents Experiences Raising a Child with Food Allergy; A Qualitative Review

CSACI guidelines for the ethical, evidence-based and patient-oriented clinical practice of oral immunotherapy in IgE-mediated food allergy

Delivering and implementing child and adolescent mental health training for mental health and allied professionals: a systematic review and qualitative meta-aggregation

Contact Info

Product

Resources

About