Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges

Gonella, Silvia; Giulio, Paola Di; Palese, Alvisa; Dimonte, Valerio; Campagna, Sara

doi:10.1002/nop2.617

Cited by 6 publications

(5 citation statements)

References 67 publications

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“…These findings, alongside notably heterogeneous modes of participation, expression, writing time, and transmission suggest that flexibility is key to ensure that the intervention is feasible and adapted to individual needs and preferences [ 58 ]. For instance, whilst we had initially planned to involve only dyads of patients and family carers, most patients chose to participate on their own when given the choice, perhaps to unburden their relatives, and three patients chose to perform the intervention with a healthcare professional in palliative care or oncology.…”

Section: Discussionmentioning

confidence: 99%

Giving and receiving thanks: a mixed methods pilot study of a gratitude intervention for palliative patients and their carers

et al. 2023

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Background Psychological research examining the nature and workings of gratitude has burgeoned over the past two decades. However, few studies have considered gratitude in the palliative care context. Based on an exploratory study which found that gratitude was correlated with better quality of life and less psychological distress in palliative patients, we designed and piloted a gratitude intervention where palliative patients and a carer of their choice wrote and shared a gratitude letter with each other. The aims of this study are to establish the feasibility and acceptability of our gratitude intervention and provide a preliminary assessment of its effects. Methods This pilot intervention study adopted a mixed-methods, concurrent nested, pre-post evaluation design. To assess the intervention’s effects, we employed quantitative questionnaires on quality of life, quality of relationship, psychological distress, and subjective burden, as well as semi-structured interviews. To assess feasibility, we considered patients and carers’ eligibility, participation and attrition rates, reasons for refusal to participate, appropriateness of intervention timeframe, modalities of participation, and barriers and facilitators. Acceptability was assessed through post-intervention satisfaction questionnaires. Results Thirty-nine participants completed the intervention and twenty-nine participated in interviews. We did not find any statistically significant pre/post intervention changes for patients, but found significant decrease in psychological distress for carers in terms of depression (median = 3 at T0, 1.5 at T1, p = .034) and total score (median = 13 at T0, 7.5 at T1, p = .041). Thematic analysis of interviews indicates that overall, the intervention had: (1) multiple positive outcomes for over a third of interviewees, in the form of positive emotional, cognitive, and relational effects; (2) single positive outcomes for nearly half of interviewees, who experienced emotional or cognitive effects; (3) no effect on two patients; and (4) negative emotional effects on two patients. Feasibility and acceptability indicators suggest that the intervention was well received by participants, and that it should adopt flexible modalities (e.g. writing or dictating a gratitude message) to ensure that it is feasible and adapted to individual needs and preferences. Conclusions Larger scale deployment and evaluation of the gratitude intervention, including a control group, is warranted in order to have a more reliable evaluation of its effectiveness in palliative care.

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Section: Discussionmentioning

confidence: 99%

Giving and receiving thanks: a mixed methods pilot study of a gratitude intervention for palliative patients and their carers

et al. 2023

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“…In some situations, open interviews with family members might be more appropriate to learn more in depth on their values and expectations concerning end-of-life communication. Both quantitative and qualitative methods may be helpful to study quality of end-of-life communication, although the last one is more expensive, time consuming, may generate some recruitment difficulties and ethical problems (Gonella et al 2020 ).…”

Section: Discussionmentioning

confidence: 99%

Measuring relatives’ perceptions of end-of-life communication with physicians in five countries: a psychometric analysis

Koniewski

Barańska²,

Kijowska³

et al. 2022

Eur J Ageing

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The Family Perceptions of Physician-Family Caregiver Communication scale (FPPFC) was developed to assess quality of physician-family end-of-life communication in nursing homes. However, its validity has been tested only in the USA and the Netherlands. The aim of this paper is to evaluate the FPPFC construct validity and its reliability, as well as the psychometric characteristics of the items comprising the scale. Data were collected in cross-sectional study in Belgium, Finland, Italy, the Netherlands and Poland. The factorial structure was tested in confirmatory factor analysis. Item parameters were obtained using an item response theory model. Participants were 737 relatives of nursing home residents who died up to 3 months prior to the study. In general, the FPPFC scale proved to be a unidimensional and reliable measure of the perceived quality of physician-family communication in nursing home settings in all five countries. Nevertheless, we found unsatisfactory fit to the data with a confirmatory model. An item that referred to advance care planning performed less well in Poland and Italy than in the Northern European countries. In the item analysis, we found that with no loss of reliability and with increased coherency of the item content across countries, the full 7-item version can be shortened to a 4-item version, which may be more appropriate for international studies. Therefore, we recommend use of the brief 4-item FPPFC version by nursing home managers and professionals as an evaluation tool, and by researchers for their studies as these four items confer the same meaning across countries.

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“…Peneliti juga menggunakan catatan lapangan untuk mencatat data yang bersumber dari observasi (Gonella et al, 2021). Pengamatan atau observasi ini berguna dalam merekam tanda-tanda yang tidak dinyatakan oleh informan secara eksplisit.…”

Section: Kerangka Kerja Ekoliterasi Menurutunclassified

Implementasi Ekoliterasi melalui Rubrik Pojok Gambut pada Situs Berita Online Basajan.net

Maimunah,

Fahrimal

2023

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Ekoliterasi merupakan upaya yang diperlukan untuk mendorong lahirnya sikap dan perilaku untuk hidup selaras dengan alam dan lingkungan. Literatur yang ada hanya terbatas pada kajian pendidikan sebagai sarana untuk menanamkan ekoliterasi pada siswa sekolah. Penelitian ini mengelaborasi ekoliterasi dalam cara kerja media, baik di ruang redaksi maupun pemberitaannya. Fokus penelitian ini adalah rubrik Pojok Gambut yang diproduksi oleh redaksi situs berita online basajan.net. Penelitian ini bertujuan untuk mendeskripsikan implementasi ekoliterasi pada media massa. Metode deskriptif yang ditetapkan adalah kualitatif dengan mengumpulkan data melalui wawancara kepada redaksi Pojok Gambut basajan.net baik pimpinan redaksi maupun jurnalisnya. Hasil penelitian menemukan bahwa Pojok Gambut yang dikembangkan oleh redaksi basajan.net menjadi sarana bagi implementasi jurnalisme lingkungan untuk mengadvokasi pelestarian Kawasan Hidrologis Gambut khususnya di wilayah Barat Selatan Aceh. Melalui penggunakan empat kriteria ekoliterasi yang diadopsi dari McBeth, penelitian ini menunjukkan jurnalis Pojok Gambut secara optimal menggunakan ruang ini tidak hanya untuk memberitakan informasi seputar gambut, namun juga memberikan edukasi alternatif pada masyarakat dalam memanfaatkan lahan gambut yang sesuai dengan tujuan pembangunan berkelanjutan. Elaborasi lebih lanjut mengenai penerapan ekoliterasi, implikasi, dan rekomendasi bagi penelitian selanjutnya dijelaskan di dalam makalah ini.

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Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges

Cited by 6 publications

References 67 publications

Giving and receiving thanks: a mixed methods pilot study of a gratitude intervention for palliative patients and their carers

Giving and receiving thanks: a mixed methods pilot study of a gratitude intervention for palliative patients and their carers

Measuring relatives’ perceptions of end-of-life communication with physicians in five countries: a psychometric analysis

Implementasi Ekoliterasi melalui Rubrik Pojok Gambut pada Situs Berita Online Basajan.net

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