Qualité de vie d’une population de 54 enfants infirmes moteurs cérébraux marchants. Étude transversale

Hodgkinson, I.; D’Anjou, M.-C.; Dazord, A.; Bérard, C.

doi:10.1016/s0168-6054(02)00195-2

Cited by 23 publications

(19 citation statements)

References 11 publications

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“…Although some findings appear contradictory, such as those that describe the relation between function and well-being, 8,36,37,50,51,54,56,57 several themes emerged.…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

“…36 DISCORDANCE BETWEEN FUNCTION AND WELL-BEING Eight studies described the relation between well-being and functional status among individuals with CP. 8,36,37,50,51,54,56,57 In a sample of 30 children and adolescents with CP, Schneider et al concluded that QOL issues are not directly associated with functional status. 50 McCarthy et al reported a similar discrepancy in an assessment of 115 younger children with CP.…”

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confidence: 99%

“…Some researchers concluded that this may be the case for psychosocial satisfaction as well, but this finding emerged in two studies only. 37,56 Third, although adolescents with CP appear to have different life issues than adults or children, only a limited body of research on factors associated with well-being has been reported for this age group.As areas of future research, we suggest that investigators use a population-based approach and involve participants from across the spectrum of gross motor impairment. Although studies of subpopulations of individuals with CP may be useful for describing functional issues 36,37 or evaluating clinical interventions, 39 attention should be directed to assessing QOL and HRQOL across the entire population.…”

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confidence: 99%

“…37,56 Third, although adolescents with CP appear to have different life issues than adults or children, only a limited body of research on factors associated with well-being has been reported for this age group.…”

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confidence: 99%

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Quality of life among adolescents with cerebral palsy: what does the literature tell us?

Livingston

Rosenbaum²,

Russell

et al. 2007

Develop Med Child Neuro

152

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This review describes trends in quality of life (QOL) and health-related quality of life (HRQOL) among adolescents with cerebral palsy (CP). Twenty original articles were identified by a structured search of multiple databases and grouped by design. Categories included descriptive crosssectional studies (n=8), measurement validation studies (n=9), and exploratory qualitative studies (n=3). Several trends were apparent. First, individuals with CP are reported to have decreased QOL and HRQOL compared with a normative population in some but not all areas of well-being. Second, functional status measures such as the Gross Motor Function Classification System are reliable indicators of variations in physical function, but do not correlate consistently with psychosocial well-being. Third, although adolescents with CP have different life issues than adults or children, limited research on factors associated with QOL and HRQOL has been described for this age range. We recommend that clinicians and researchers interested in assessing well-being among adolescents with CP include participants from across the spectrum of motor impairment, allow adolescents to self-report whenever possible, and assess adolescents independently, rather than including them with individuals from other age groups or clinical populations.Cerebral palsy (CP) is a clinical description of a chronic functional disability. The definition has recently been revised as '… a group of permanent disorders of the development of movement and posture, causing activity limitation, that are attributed to non-progressive disturbances that occurred in the developing fetal or infant brain. The motor disorders of cerebral palsy are often accompanied by disturbances of sensation, perception, cognition, communication, and behaviour, by epilepsy, and by secondary musculoskeletal problems.' 1 This definition follows concepts introduced by the World Health Organization's International Classification of Functioning, Disability and Health. 2 Changes in our conception of CP reflect an expansion beyond the functional limitations associated with motor impairment towards a recognition of the personal experience of individuals in this population. Under the broad notion of 'well-being', researchers have begun to consider functional status, health status, quality of life (QOL), and health-related quality of life (HRQOL). 'Functional status' can be conceptualized as 'the degree to which an individual is able to perform socially allocated roles free of physical or mental limitations ', 3 and focuses on the performance of specific tasks, such as 'activities of daily living'. 4 'Health status' considers broader medical and functional well-being, and is sometimes reported in terms of 'impact of disability'. 5 Assessments of QOL and HRQOL shift the description of well-being into the realm of the subjective, because these outcomes are not directly observable by a third party and cannot be measured along a physical dimension. 6 Although the areas of health considered in measurements of...

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“…Although some findings appear contradictory, such as those that describe the relation between function and well-being, 8,36,37,50,51,54,56,57 several themes emerged.…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%