Quality and Reliability of YouTube Videos on Sickle Cell Disease

Om, Anjali; Mathew, Namita E.; Nawaz, Amna

doi:10.1097/mph.0000000000002086

Cited by 1 publication

(2 citation statements)

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“…For the Global Quality Score, slightly more than 50% received a 3, and slightly more than 30% received a 4, which means the videos provided some information about the disease that could be useful for patients, caregivers, and the overall community. The scores in this study are slightly higher than those in another study examining SCD information in 66 videos posted on YouTube (Om et al, 2021): where the DISCERN score was 1.79; the GQS score was 2.67; and the Journal of the American Medical Association (JAMA) benchmark score was 1.26.…”

Section: Discussioncontrasting

confidence: 77%

“…Americans post videos to provide information about a range of illnesses (Madathil et al, 2015). Om, Mathew, and Nawaz (2021) examined sickle cell videos on YouTube using three different scales and found their quality relatively low. A recent study by Slick et al (2023) found that more than half of the sickle cell medical information on the analysed social media sites was inaccurate.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Sickle Cell Disease Stories on YouTube: A Comparison of Nigeria, Ghana, Uganda, and Kenya

Onsomu,

Moore,

Yorke

2023

East Afr. j. health sci.

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Sickle cell disease (SCD) is a group of blood disorders common across Sub-Saharan Africa. Countries such as Nigeria and Ghana have a high prevalence of the inherited condition, which causes, for most patients, severe pain during a crisis and can lead to serious complications, such as anaemia and stroke. This study examines messaging about SCD in Kenya, Nigeria, Ghana, and Uganda posted on YouTube. It used DISCERN and Global Quality Score instruments to analyse a total of 58 videos from the four countries. Most were from news organizations. The most common DISCERN and Global Quality Score was a 3, which means the basic background information provided was not extensive but still useful. There was an association between the type of message and video uploader (Fisher's exact, p = 0.0001). However, no significant associations were found between the type of message and country (Fisher's exact, p = 0.219), using overall DISCERN and video uploader (Fisher's exact, p = 0.485), or using global quality score and video uploader (Fisher's exact, p = 0.818). The videos analysed not only gave the public some medical information but also addressed some of the social issues associated with SCD and helped to increase public awareness of the disease

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Section: Discussioncontrasting

confidence: 77%