Quality of Bereavement for Caregivers of Patients Who Died by Medical Assistance in Dying at Home and the Factors Impacting Their Experience: A Qualitative Study

Hashemi, Narges; Amos, Elizabeth; Lokuge, Bhadra

doi:10.1089/jpm.2020.0654

Cited by 12 publications

(42 citation statements)

References 17 publications

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“…Participants perspectives of MAID may change with time after the death of a loved one, with bereavement playing a larger role in perceptions of quality after more time has passed [ 22 ]. Future research will be useful to determine which long-term supports will be most useful for families [ 23 – 25 ].…”

Section: Discussionmentioning

confidence: 99%

How can we improve the experiences of patients and families who request medical assistance in dying? A multi-centre qualitative study

et al. 2021

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Background Medical assistance in dying has been available in Canada for 5 years, but it is unclear which practices contribute to high-quality care. We aimed to describe patient and family perspectives of quality of care for medical assistance in dying. Methods We conducted a multi-centre, qualitative descriptive study, including face to face or virtual one-hour interviews using a semi-structured guide. We interviewed 21 english-speaking patients found eligible for medical assistance in dying and 17 family members at four sites in Canada, between November 2017 and September 2019. Interviews were de-identified, and analyzed in an iterative process of thematic analysis. Results We identified 18 themes. Sixteen themes were related to a single step in the process of medical assistance in dying (MAID requests, MAID assessments, preparation for dying, death and aftercare). Two themes (coordination and patient-centred care) were theme consistently across multiple steps in the MAID process. From these themes, alongside participant recommendations, we developed clinical practice suggestions which can guide care. Conclusions Patients and families identified process-specific successes and challenges during the process of medical assistance in dying. Most importantly, they identified the need for care coordination and a patient-centred approach as central to high-quality care. More research is required to characterize which aspects of care most influence patient and family satisfaction.

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Section: Discussionmentioning

confidence: 99%

How can we improve the experiences of patients and families who request medical assistance in dying? A multi-centre qualitative study

et al. 2021

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“…Ultimately, our review included 28 academic journal articles, including 6 published literature reviews and 22 empirical studies (tables 1 and 2). Most studies were published in Canada (n=15) 6 23–36. Other jurisdictions included Switzerland (n=3),37–39 Netherlands (n=3),16 40 41 USA (n=2),42 43 Australia44 or multiple jurisdictions or not specified (n=4) 5 7 10 32 45.…”

Section: Resultsmentioning

confidence: 99%

“…Other jurisdictions included Switzerland (n=3),37–39 Netherlands (n=3),16 40 41 USA (n=2),42 43 Australia44 or multiple jurisdictions or not specified (n=4) 5 7 10 32 45. Of the 22 identified empirical studies, almost half employed exploratory qualitative methodology (n=13),23–26 28 30 31 33 34 36 37 43 44 with the remainder being either observational quantitative studies (n=6)29 38–40 42 44 or mixed-methods studies (n=3) 6 27 35. All 13 qualitative studies conducted interviews, the quantitative studies used validated questionnaires or specifically designed surveys, and the mixed-methods studies employed the above methods as well as focus groups and unstructured conversations.…”

Section: Resultsmentioning

confidence: 99%

“…All 13 qualitative studies conducted interviews, the quantitative studies used validated questionnaires or specifically designed surveys, and the mixed-methods studies employed the above methods as well as focus groups and unstructured conversations. There were seven studies among the empirical studies that reported ethnicity of participants, and all were Caucasian 6 23–25 31 42 43. The empirical studies had study populations that most often consisted of family, friends or caregivers (n=17).…”

Section: Resultsmentioning

confidence: 99%

“…The focus of MAiD is often on the patient, although family/friends are the ones who bereave, whether they were supporters or not of MAiD. Previous research suggests improved bereavement with MAiD due to the opportunity for closeness, saying goodbye, or copreparing for end of life (EOL) 5–7. Nonetheless, with a limited number of jurisdictions permitting MAiD, factors such as social isolation, stigma or religious acceptance can impact the expression of grief and bereavement 8 9.…”

Section: Introductionmentioning

confidence: 99%

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Grief and bereavement of family and friends around medical assistance in dying: scoping review

Yan

Bytautas

Isenberg

et al. 2022

BMJ Support Palliat Care

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ObjectivesThe increase in the number of jurisdictions legalising medical assistance in dying (MAiD) has contributed to a growth in the number of family and friends who may face unique elements of grief and bereavement. The aim of this study was to review the literature of grief and bereavement of family and friends following MAiD, and to summarise findings for the development of community resources and programming.MethodsWe performed a scoping review with workshop consultation of stakeholders. Six electronic databases and the grey literature were searched for qualitative, quantitative and review articles. Content-analytical techniques and multidisciplinary discussions led to the development of concepts and a conceptual framework.ResultsTwenty-eight articles met the inclusion criteria. We identified five concepts that impact the grief and bereavement of family/friends: relationships between family/friends and the patient as well as healthcare providers; aspects of MAiD grief which can include secrecy and/or anticipatory grief; preparations which may include family/friends and should be centralised and harmonised; end of life as an opportunity for ceremony; and the aftereffects during which mental health outcomes are studied.ConclusionThis multidisciplinary scoping review incorporates stakeholder consultation to find that support is needed to address the complicated and changing emotions of family/friends before, during and after a MAiD death. Furthermore, additional societal normalisation of MAiD is necessary to reduce secrecy and stigma and improve the accessibility of resources for family/friends.

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Assistierte Suizide in München: angewendete Arzneistoffe und dokumentierte Komplikationen

Gleich,

Schienhammer,

Peschel

et al. 2024

Rechtsmedizin

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Quality of Bereavement for Caregivers of Patients Who Died by Medical Assistance in Dying at Home and the Factors Impacting Their Experience: A Qualitative Study

Cited by 12 publications

References 17 publications

How can we improve the experiences of patients and families who request medical assistance in dying? A multi-centre qualitative study

How can we improve the experiences of patients and families who request medical assistance in dying? A multi-centre qualitative study

Grief and bereavement of family and friends around medical assistance in dying: scoping review

Assistierte Suizide in München: angewendete Arzneistoffe und dokumentierte Komplikationen

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