Quality of care provided to children with cerebral palsy, Alexandria, Egypt

Khalil, Mona; Elweshahy, Heba; Abdelghani, Hayam; Omar, Tarek; Ahmed, Samia

doi:10.26719/2018.24.6.522

Cited by 11 publications

(11 citation statements)

References 19 publications

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“…This result makes CP the most widespread cause of childhood disability. The prevalence of cerebral palsy is around 1.5-3 per 1 000 live births in both developed and developing countries .A study in Al-Quseir City, Red Sea Governorate reported a prevalence in children of 3.06 per 1 000 live births (2)…”

Section: Prevalencementioning

confidence: 99%

Cerebral Palsy in pediatrics: Review Article

2021

International Egyptian Journal of Nursing Sciences and Research

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Cerebral palsy (CP) is a neurodevelopmental condition caused by a disturbance in the infantile or fetal brain's development. It affects more than 17 million people all over the world. The aim of this review paper is to include an in-depth review of the literature surrounding the causes, diagnosis, and related disorders of CP, as well as therapeutic approaches that may contribute to a comprehensive treatment plan for children with cerebral palsy Contrary to common opinion, CP can be caused by a variety of factors, including hypoxia or ischemia at birth. The motor function, part(s) of the body affected, and severity must all be determined during diagnosis; diagnosis techniques have recently improved. The associated diseases must also be identified in order to receive medication.

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Section: Prevalencementioning

confidence: 99%

Cerebral Palsy in pediatrics: Review Article

2021

International Egyptian Journal of Nursing Sciences and Research

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“…This is a pioneering study in Latin America, given that, when reviewing the existing literature, there are currently no studies of this type in Latin American society that reflect this problem from the point of view of caregivers of children with any type of disability. References were found in other countries [17][18][19][20] such as Cambodia [19] (whose level of development may be similar to the situation in Bolivia, although they are culturally very different). Therefore, the findings obtained in the former study should not be extrapolated to Bolivian society.…”

Section: Discussionmentioning

confidence: 90%

Parents’ Perceptions Regarding the Implementation of a Physical Therapy Stimulation Program for Children with Disabilities in Bolivia: A Qualitative Study

Cruz

Ramírez

2020

IJERPH

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The purpose of this study was to explore how parents of children with neuromotor disorders in the department of Chuquisaca (Bolivia) perceive attendance to a physical therapy stimulation program and the expectations they place on the therapy and professional care provided to their children. Semi-structured interviews were conducted with the parents, related to their role in supporting the recommended exercise program for the child, generating topics such as benefits of the therapy for the child, impact on the family, and role of the project in terms of therapy and the physical therapists providing treatment, including both positive and negative aspects of the overall process. This study revealed the importance of understanding the feelings of families receiving intervention under a pioneering program in Bolivia for the detection and treatment of children with neuromotor disorders. Being able to access these types of services provides them with extensive personal, social, and economic support. Knowing their concerns, desires, and demands will allow us to continue to improve and offer the best care for children and families. The professionals involved should also be encouraged to develop effective teaching techniques to promote the inclusion of parents in the stimulation program.

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“…Descriptive statistics of mean ± standard deviation (SD) and frequency was carried out to calculate the measured variables. Test-retest, intra-rater, and inter-rater reliability were expressed as intra-class correlation coefficients, ICC (2,1). Repeated measurements by the same rater on real-time measurement (T1-T2) of TUDS test were used to calculate test-retest reliability.…”

Section: Discussionmentioning

confidence: 99%

“…The most common cause of functional impairment in children is CP. In school-aged children, it accounts for 60% of severe motor impairments [2]. During infancy or the preschool years, signs and symptoms of CP arise.…”

Section: Introductionmentioning

confidence: 99%

Reliability of the TUDS test for children with cerebral palsy

2022

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Background The timed up and down stairs (TUDS) test is widely used to assess the time required by a patient to climb up and down stairs as a measure of functional mobility. Aim This cross-sectional study was conducted to examine test-retest, intra-rater, and inter-rater reliability of TUDS test in children with cerebral palsy (CP). Subjects Forty children (22 boys and 18 girls) with unilateral and bilateral spastic CP were selected from the Cairo University Hospitals to participate in this study. The age range was 3–9 years. Subjects classified according to Gross Motor Function Classification System-Expanded and Revised (GMFCS-E&R) in categories 1 or 2 only were included. All subjects with muscle tone above normal (spasticity) were included. Methods The TUDS test was performed at two testing sessions on the same day to determine test-retest reliability; the main investigator scored all children at real time using a stopwatch and then rescored them later from video recording to determine intra-rater reliability. Another research team member scored all children from video recording to determine inter-rater reliability. Scoring was carried out at real time and from video recordings of the trials. Reliability was estimated using intra-class correlation coefficients (ICC). Results The TUDS test showed excellent reliability for all measured types of reliability. ICC score for test-retest reliability was 0.978, ICC score for intra-rater reliability was 0.999, while ICC score for inter-rater reliability was 0.998 and 0.999. Conclusion The TUDS test is a reliable outcome measure for children with spastic CP. It can be measured at real time or later from video recording of the performance trials. The TUDS test is an important tool in the re-evaluation process of children with CP.

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Quality of care provided to children with cerebral palsy, Alexandria, Egypt

Abstract: There is a wide gap between the actual care provided to children with cerebral palsy and the recommended standards. Moreover, the documentation system in the hospital is poor. A quality improvement plan is needed for the provision of care to children with cerebral palsy.

Cited by 11 publications

References 19 publications

Cerebral Palsy in pediatrics: Review Article

Cerebral Palsy in pediatrics: Review Article

Parents’ Perceptions Regarding the Implementation of a Physical Therapy Stimulation Program for Children with Disabilities in Bolivia: A Qualitative Study

Reliability of the TUDS test for children with cerebral palsy

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