Quality of data on subsequent events in a routine Medical Birth Register

Gissler, Mika; Shelley, Julia

doi:10.1080/14639230110119234

Cited by 160 publications

(158 citation statements)

References 5 publications

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“…A strength of this study is the reliability of the National Medical Birth Register, as shown in previous data quality studies [14,15]. The completeness of the register data allowed us to use accurate exclusion criteria; infants with congenital anomalies, low birth weight, multiple births and births occurring outside the hospital.…”

Section: Commentmentioning

confidence: 88%

Effect of hospital size and on-call arrangements on intrapartum and early neonatal mortality among low-risk newborns in Finland

Karalis

Gissler

Tapper

et al. 2016

European Journal of Obstetrics & Gynecology and Reproductiv

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Section: Commentmentioning

confidence: 88%

Effect of hospital size and on-call arrangements on intrapartum and early neonatal mortality among low-risk newborns in Finland

Karalis

Gissler

Tapper

et al. 2016

European Journal of Obstetrics & Gynecology and Reproductiv

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“…The MBR is a high-quality register coveringmorethan99.9%ofallbirths. 29,31 The data quality, completeness, and accuracy of the HDR have been varied from satisfactory to very good in a systematic review. 28 Infants were followed to the age of 7 years, by which time the diagnosis of CP is generally made.…”

Section: Discussionmentioning

confidence: 99%

Cerebral Palsy Among Children Born Moderately and Late Preterm

et al. 2014

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WHAT'S KNOWN ON THIS SUBJECT: The incidence of cerebral palsy is dependent on the gestational age in very preterm infants and risk factors have been identified for term infants. The risk has also proved to be greater among late preterm births compared with term. WHAT THIS STUDY ADDS:The incidence of cerebral palsy was 24-fold in moderately preterm and 6-fold in late preterm infants compared with full-term infants. The most prominent risk factors included asphyxia and intracranial hemorrhage. The incidence diminished over time and with increasing gestational age. (,32 +0 weeks) and term infants ($37 weeks). METHODS:The national register study included all live-born infants in Finland from 1991 to 2008. Infants who died before the age of 1 year, had any major congenital anomaly, or had missing data were excluded. A total of 1 018 302 infants were included in the analysis and they were analyzed in 4 subgroups (VP, MP, LP, and term) and 3 time periods (1991-1995, 1996-2001, and 2002-2008).RESULTS: By the age of 7 years, 2242 children with CP were diagnosed (0.2%). CP incidence was 8.7% in the VP, 2.4% in the MP, 0.6% in the LP, and 0.1% in the term group. Dr Hirvonen drafted the initial manuscript and participated in the analytic planning; Drs Ojala, Korhonen, Haataja, Eriksson, and Gissler participated in the analytic planning and critically reviewed and revised the manuscript; Ms Luukkaala conducted the statistical analyses and critically reviewed and revised the manuscript; Dr Tammela designed and supervised the study and critically reviewed and revised the manuscript; and all authors approved the final manuscript as submitted.www.pediatrics.org/cgi

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“…The data gathered from the mandatory national MBR were supplemented with information gathered from two other mandatory national health registries: HDR and CMR. The unique identification number of each woman enabled robust cross-linking between the three registries, which are considered to have excellent coverage and quality, [25][26][27] and the unique dataset enabled a much more rigorous analysis of associations of demographic factors, such as maternal age, parity and SES, with FOC than was possible in smaller scale studies. 2,7,10,13 A limitation is that SES was undefined for one of four women (25.1%, n = 197 785), which may be a result of the inclusion of young mothers and high proportions of students and stay-at-home mothers.…”

Section: Strengths and Limitationsmentioning

confidence: 99%

Fear of childbirth in nulliparous and multiparous women: a population‐based analysis of all singleton births in Finland in 1997–2010

Räisänen

Lehto

Nielsen

et al. 2014

BJOG

153

180

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Objective To identify risk factors for fear of childbirth (FOC) according to parity and socioeconomic status, and to evaluate associations between FOC and adverse perinatal outcomes.Design A cohort study.Setting The Finnish Medical Birth Register.Population All 788 317 singleton births during 1997-2010 in Finland.Methods Fear of childbirth was defined according to the International Classification of Diseases code O99.80, and its associations with several risk factors and perinatal outcomes were analysed by multivariable logistic regression.Main outcome measures Prevalence of, risk factors for and outcomes of FOC.Results Fear of childbirth was experienced by 2.5% of nulliparous women and 4.5% of multiparous women. The strongest risk factors for FOC in nulliparous women were depression [adjusted odds ratio (aOR), 6.35; 95% confidence interval (CI), 5.25-7.68], advanced maternal age (aOR, 3.78; 95% CI, 3.23-4.42) and high or unspecified socioeconomic status. In multiparous women, the strongest risk factors for FOC were depression (aOR, 5.47; 95% CI, 4.67-6.41), previous caesarean section (CS) (aOR, 3.02; 95% CI, 2.93-3.11) and high or unspecified socioeconomic status. Among both nulliparous and multiparous women, FOC was associated with higher rates of CS (3.3-fold and 4.5-fold higher, respectively) and a lower incidence of low birthweight (<2500 g), small for gestational age babies, preterm birth and low Apgar scores at 1 minute.Conclusions High and unspecified socioeconomic status, advanced maternal age and depression are predisposing factors for FOC regardless of parity. Among multiparous women, a previous CS increases vulnerability to FOC. FOC is associated with increased rates of CS, but does not adversely affect other pregnancy outcomes.

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Quality of data on subsequent events in a routine Medical Birth Register

Abstract: Changes in question formats may change the quality of register data significantly. Check-boxes seem to improve quality compared to open-ended questions. The data on reproductive history and previous Caesarean sections could be combined routinely to improve the quality of the MBR.

Cited by 160 publications

References 5 publications

Effect of hospital size and on-call arrangements on intrapartum and early neonatal mortality among low-risk newborns in Finland

Effect of hospital size and on-call arrangements on intrapartum and early neonatal mortality among low-risk newborns in Finland

Cerebral Palsy Among Children Born Moderately and Late Preterm

Fear of childbirth in nulliparous and multiparous women: a population‐based analysis of all singleton births in Finland in 1997–2010

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