Quality of life after liver transplantation for hepatitis C infection

Dudley, Tracey; Chaplin, Dawn; Clifford, Collette; Mutimer, David

doi:10.1007/s11136-007-9244-y

Cited by 38 publications

(53 citation statements)

References 45 publications

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“…Seventeen studies were conducted in Australia [21–23, 25, 30, 32, 33, 38, 39, 51, 53, 56–59, 64, 65], fifteen in the UK [24, 31, 34, 35, 37, 40, 46, 47, 49, 52, 55, 60, 61, 63, 66], eight in the United States [26, 27, 36, 41, 43, 48, 54, 62], four in Canada [28, 29, 45, 50], and one each from Pakistan [42] and France [44]. The studies were published between 1999 [39] and 2014 [40, 48].…”

Section: Resultsmentioning

confidence: 99%

Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature

Dowsett

Coward

Lorenzetti

et al. 2017

Canadian Journal of Gastroenterology and Hepatology

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Background and Aims. The lived experience of HCV has not been well documented in the literature. The aim of this systematic review was to understand the experiences of living with Hepatitis C Virus (HCV). Methods. Five databases were searched from inception until January 19, 2015. Studies were included if they focused on adults diagnosed with HCV; reported experience living with HCV; and described original research. Results. 46 studies were included. Studies found that participants had reduced quality of life due to physical symptoms. Due to physical symptoms and discrimination, many participants switched to part-time work or quit their jobs. Many individuals reported negative experiences with the healthcare system; themes of feeling unsupported, not having adequate information, and not feeling involved in decisions were reported. Stigma significantly impacted those living with HCV. Conclusions. Published literature indicates that those with HCV often feel stigmatized and unsupported in their care, relationships, and work environments, while simultaneously coping with physical and psychological symptoms. This synthesis points to areas where greater education, compassion, and patient-centered healthcare could improve the experience of people living with HCV.

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Section: Resultsmentioning

confidence: 99%

Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature

Dowsett

Coward

Lorenzetti

et al. 2017

Canadian Journal of Gastroenterology and Hepatology

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“…It should be stressed that the main illnesses triggering liver transplant are alcohol addiction and illegal use of drugs, reason for which, for example, the caregiver of a patient who is a candidate for a liver transplant compared to those of a lung transplant, experience a heavier burden (Meltzer and Rodrigue, 2001), in addition to suffering in each of the stages associated with transplantation, especially in those before it (pre-transplant study and waiting list) (Domínguez-Cabello et al, 2012b). In other etiologies leading to liver transplant, such as hepatitis C virus, patients have been described as socially isolating themselves, whether they received a transplant or not, mainly for fear of transmitting the virus to family and friends, which generates feelings of guilt and shame (Dudley et al, 2007; Pérez-San-Gregorio et al, 2012). To all of the above it would have to be added that transplant patients sometimes feel guilty for the death of their donor to the point of having difficulties in organ acceptance (Zimbrean, 2015).…”

Section: Discussionmentioning

confidence: 99%

Coping Strategies in Liver Transplant Recipients and Caregivers According to Patient Posttraumatic Growth

et al. 2017

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The purpose of this study was to analyze the differences in coping strategies employed by liver transplant recipients and their family members according to patient posttraumatic growth. Two matched groups of 214 liver transplant recipients and 214 family members were selected. The Posttraumatic Growth Inventory and Brief COPE were used. The most relevant results were: (1) Interactive effects in active coping, support (instrumental and emotional) and acceptance strategies, which were all used more by patients with higher growth levels, while their family members showed no differences in use of these strategies by patient growth level. Furthermore, while a low level of patient growth did not mark differences between them and their caregivers, a high level did, patients employing more active coping and support (instrumental and emotional), (2) In both groups a high level of patient growth was associated with more use of positive reframing and denial than a low one, and (3) Self-blame was employed by patients more than by their caregivers. It was concluded that a high level of posttraumatic growth in liver transplant recipients is associated with more use of healthy coping strategies, basically active coping, instrumental support, and emotional support.

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“…In some cases, pretransplant patients might also be faced with the decision of whether to consider accepting an organ from a living donor, given the uncertainty of health risks to the donor (Young et al, 2008). After the transplant, patients can experience uncertainty about the threat of graft rejection (Baines, Joseph, & Jindal, 2002;Buldukoglu et al, 2005;Forsberg et al, 2000;Nilsson, Persson, & Forsberg, 2008) and the possibility of a shortened life expectancy (Dudley, Chaplin, Clifford, & Mutimer, 2007). Moreover, in cases in which graft failure does occur, some patients search for answers regarding the reasons for and benefits of the experience, as well contemplate their purpose in life (Ouellette, Achille, & Pâquet, 2009).…”

Section: The Transplantation Illness Trajectorymentioning

confidence: 99%

Medical, Personal, and Social Forms of Uncertainty Across the Transplantation Trajectory

et al. 2009

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We designed this study to identify sources of uncertainty across the transplantation trajectory. We interviewed 38 transplant patients, who reported medical, personal, and social forms of uncertainty. Prior to transplantation, they reported uncertainty related to insufficient information about diagnosis, complex decisions about transplantation, unknown/unknowable organ availability, unclear expectations about medical procedures/outcomes, ambiguity in meaning of life, complex role and identity challenges, unclear financial consequences, questioning from others, and unclear relational implications. They reported that uncertainty experienced after transplantation was related to complex medication regimens, unpredictable future health/prognosis, complex role and identity challenges, unclear financial consequences, possible stigmatizing reactions, unclear relational implications, and complex interactions with the deceased donor's family. These findings lay the groundwork for additional research on uncertainty management for transplant patients, and suggest that health care professionals and supportive others cannot apply a one-size-fits-all solution when aiding in uncertainty management.

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Quality of life after liver transplantation for hepatitis C infection

Cited by 38 publications

References 45 publications

Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature

Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature

Coping Strategies in Liver Transplant Recipients and Caregivers According to Patient Posttraumatic Growth

Medical, Personal, and Social Forms of Uncertainty Across the Transplantation Trajectory

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