Quality of Life After Orthognathic Surgery in Patients with Cleft: An Overview of Available Patient-Reported Outcome Measures

Ploumen, Roan L.M.; Willemse, Samuel H.; Jonkman, R.E.G.; Nolte, J.W.; Becking, A.G.

doi:10.1177/10556656211067120

Cited by 6 publications

(7 citation statements)

References 29 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…6 However, in previous research, the psychological assessment of youths with CL/P has usually been conducted using instruments developed for nonaffected youths (eg, the Strengths and Difficulties Questionnaire, the Satisfaction with Appearance scale, and the Self-Perception Profile for Adolescents). While recent research has reported some validated instruments for youth with CL/P, such as the PAT-CV or CleftQ, 19,20 the specific issues concerning the impact of living with a facial difference-as perceived by the youths themselves-have not been well studied. 2 To focus on this issue, the Youth Quality of Life Instrument-Facial Differences Module (YQOL-FD) was developed by Patrick et al, 2 Edwards et al, 21 and Topolski et al 22 This instrument is designed to evaluate the quality of life (QoL) of youths with both congenital and acquired facial differences.…”

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Relationship Between Stigma Experience and Self-Perception Related to Facial Appearance in Young Japanese Patients with Cleft lip and/or Palate

Oka

Tanikawa

Ohara

et al. 2022

The Cleft Palate Craniofacial Journal

View full text Add to dashboard Cite

Objective To examine the relationship between stigma experience related to facial appearance in Japanese youths with cleft lip and/or palate (CL/P) and their self-perception. Design A cross-sectional study. Participants Sixty-nine Japanese youths with CL/P (11-18 years old) Outcome measures The participants’ stigma experience in relation to facial appearance (measured with 7 single contextual scale items) and their self-perception (measured with 5 domain scores based on 30 perceptual items) were assessed using the Japanese version of the Youth Quality of Life Instrument-Facial Differences Module. Participants were categorized into high and low self-perception subgroups with a threshold of 1 standard deviation for each domain. The frequency of stigma experiences was compared between the following 2 subgroups: age, sex, cleft palate only versus other cleft, and high versus low self-perception. Correlations between the responses regarding stigma and all domain scores were examined. Results Sixteen percent of the participants reported experiencing stigma. Hearing others say something about their face occurred significantly more frequently in youths 15 to 18 years of age than in youths 11 to 14 years of age. Stigma frequency was not found to differ by sex or cleft type. Stigma experiences were significantly more frequent for youth with higher scores across negative self-perception domains as well as higher coping skills. Significant correlations were identified between responses regarding stigma items and all domain scores ( r = 0.27-0.63, p < .05). Conclusions It was found that stigma experiences related to facial appearance may influence negative self-perceptions of facial differences as well as higher coping skills among Japanese youths with CL/P.

show abstract

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Relationship Between Stigma Experience and Self-Perception Related to Facial Appearance in Young Japanese Patients with Cleft lip and/or Palate

Oka

Tanikawa

Ohara

et al. 2022

The Cleft Palate Craniofacial Journal

View full text Add to dashboard Cite

show abstract

“…At the time of this writing, CLEFT-Q was the only validated measurement tool to assess PROs with CLP, and it could be applied in an international and cross-cultural setting. 15 When assessed individually by specific surgical movements, this relationship finds SNA and convexity to explain > 86% of the variability in CLEFT-Q scores for Speech and Distress. Similarly, ANB and Wits appraisal are over 76% predictive for Psychological and Social, whereas maxillary depth correlates to 86% of Eating and Drinking scores.…”

Section: Discussionmentioning

confidence: 99%

“…In addition to clinician-reported outcomes, PROs have become increasingly relevant to assess patient quality of life and satisfaction as a result of orthognathic surgery. 15 Esthetics of a patient's physical appearance and facial function are usually a patient's top priority after completing orthognathic surgery. 16 By synthesizing the data from the CLEFT-Q self-reported outcomes and the clinician surveys, this article aims to gain an objective insight into these qualitative findings by correlating them with surgical movements and cephalometric measurements.…”

Section: Discussionmentioning

confidence: 99%

Correlation of Orthognathic Surgical Movements to Perception of Facial Appearance in Patients With Cleft Lip and Palate

Wang,

Tran,

Chapa

et al. 2024

Journal of Craniofacial Surgery

View full text Add to dashboard Cite

Study Design: Cephalometric scans were compared before and after surgery to assess the degree of correction. Correlations between skeletal movements and survey outcomes were determined using multivariate regression analysis. Objective: This study aims to identify relationships between subjective observer-reported improvements in esthetics and emotional appearance with specific surgical movements. Methods: Ten patients at a single tertiary institution (average age: 18.1 ± 0.8), 9 males and 1 female, underwent orthognathic repair and had comprehensive cephalometric records. Standardized anterior posterior and lateral pre and postoperative photographs of patients were included in a survey to clinicians to assess noncognitive domains on a Likert Scale (1–10). CLEFT-Q was administered to gauge patient satisfaction in categories of appearance, speech, and quality of life. Results: Per clinicians, multiple domains increased including facial attractiveness (4.1 ± 0.7 versus 7.3 ± 0.7, P < 0.001), friendliness (4.5 ± 0.4 versus 7.3 ± 0.5, P < 0.001), confidence (4.1 ± 0.4 versus 7.1 ± 0.4, P < 0.001), and recommendation for surgery decreased (8.9 ± 0.1 versus 3.6 ± 0.5, P < 0.001). Speech distress decreased with increased SNA and convexity, whereas Psychological and Social scores decreased with an increased ANB. Functional eating and drinking scores increased with maxillary depth. Conclusions: Orthognathic surgery improves many noncognitive domains in patients with cleft lip and palate as assessed by both patients and clinicians on all aspects of facial attractiveness and perception. These findings demonstrate objective bases of skeletal adjustments for perceived improvements in facial appearance and emotion.

show abstract

“…[9][10][11][12] Several patient-reported outcome measures, such as the Satisfaction With Life Scale and Psychosocial Impact of Dental Aesthetics Questionnaire, have been used for patients with CL/P in clinical practice. [13][14][15][16][17] Mainly designed for other patient groups, these instruments are not specific enough to capture all aspects of health-related quality of life in patients with CL/P. 13,18 In Finland, for example, a non-validated questionnaire with 15 items is currently used for measuring the impact of the cleft and cleft treatments in patients with CL/P.…”

Section: Introductionmentioning

confidence: 99%

Finnish Translation and Linguistic Validation of the CLEFT-Q Questionnaire

Westerlund

Heliövaara

Leikola

et al. 2023

The Cleft Palate Craniofacial Journal

View full text Add to dashboard Cite

Objective Cleft lip and/or palate (CL/P) can have long-lasting effects on the appearance, function, and psychosocial wellbeing of patients. The CLEFT-Q questionnaire is a patient-reported outcomes instrument specifically designed to assess the health-related quality of life of patients with CL/P. The aim of this study was to produce and linguistically validate a Finnish version of the CLEFT-Q questionnaire. Design The CLEFT-Q questionnaire was translated into Finnish following guidelines of the International Society for Pharmacoeconomics and Outcomes Research. Pilot testing with cognitive debriefing interviews was conducted on patients of the target age range of the questionnaire, 8–29, and with various cleft types. Results The CLEFT-Q questionnaire translated readily into Finnish. A review of the backward translation led to two words being changed. Thirteen patients – ten females and three males – with a median age of 14 years, participated in the cognitive debriefing interviews. The interviews led to further nine word changes. The pilot study data suggested that the performance of the Finnish version of the instrument is in line with the original CLEFT-Q questionnaire. Conclusions The Finnish version of CLEFT-Q produced here is linguistically valid and ready for use in the evaluation of the health-related quality of life of patients with CL/P. However, future work is needed to further assess the validity and the reliability of the CLEFT-Q in the Finnish patient population.

show abstract

Quality of Life After Orthognathic Surgery in Patients with Cleft: An Overview of Available Patient-Reported Outcome Measures

Cited by 6 publications

References 29 publications

Relationship Between Stigma Experience and Self-Perception Related to Facial Appearance in Young Japanese Patients with Cleft lip and/or Palate

Relationship Between Stigma Experience and Self-Perception Related to Facial Appearance in Young Japanese Patients with Cleft lip and/or Palate

Correlation of Orthognathic Surgical Movements to Perception of Facial Appearance in Patients With Cleft Lip and Palate

Finnish Translation and Linguistic Validation of the CLEFT-Q Questionnaire

Contact Info

Product

Resources

About