Quality of life and anxiety in <scp>T</scp>urkish patients with anorectal malformation

Sarı, Burcu Akın; Demiroğullarι, Billur; Onur, Özen; İşeri, Elvan; Kale, Nuri; Başaklar, Can

doi:10.1111/jpc.12406

Cited by 12 publications

(3 citation statements)

References 21 publications

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“…Studies addressing the QoL of children have been more frequent in recent years, including those concerning disorders marked by functional impairment. 7 , 8 , 9 The interest in investigating the QoL of children diagnosed with a learning disorder has been noted in other countries, such as Austria, India, and Greece. 10 , 11 , 12 , 13 In Brazil, however, the knowledge on the QoL of children with academic underachievement is still scarce.…”

Section: Introductionmentioning

confidence: 99%

Qualidade De Vida E Autopercepção De Saúde De Crianças Com Mau Desempenho Escolar

Rezende

Lemos

Medeiros

2017

Rev. paul. pediatr.

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Objective: To examine the association between quality of life and health self-perception of children with poor school performance, considering sociodemographic factors.Methods: An analytical, observational, cross-sectional study was conducted with 99 children aged 7 to 12 years receiving specialized educational assistance. Parents and legal guardians answered questions concerning the sociodemographic profile. For an assessment of the quality of life and proposed domains (autonomy, functioning, leisure, and family), the children completed the Autoquestionnarie Qualité de Vie Enfant Imagé (AUQEI) and answered a question concerning their self-perceived health. Data were analyzed using multiple linear regression, considering a 5% significance level.Results: Among the evaluated children, 69 (69.7%) male participants with mean age of 8.7±1.5, 27% self-assessed their health status as poor/very poor, and 36.4% of the children reported having impaired quality of life. As for the domains assessed by AUQEI, there was statistical significance in the associations between family with age, autonomy with economic classification, and leisure and functioning with self-perceived health. Conclusions: The quality of life of children with academic underachievement is associated with their health self-perception and sociodemographic characteristics.

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Section: Introductionmentioning

confidence: 99%

Qualidade De Vida E Autopercepção De Saúde De Crianças Com Mau Desempenho Escolar

Rezende

Lemos

Medeiros

2017

Rev. paul. pediatr.

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“…This is most likely because patients within different cultural contexts and social circumstances may have different perceptions of QOL. This may result in different strategies in dealing with chronic illnesses based on their acceptance level 24…”

Section: Discussionmentioning

confidence: 99%

Anorectal malformation and Hirschsprung’s disease: a cross-sectional multicentre comparison of quality of life and bowel function to a healthy population

Rajasegaran,

Ahmad,

Tan

et al. 2024

Arch Dis Child

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PurposeChildren with anorectal malformation (ARM) and Hirschsprung’s disease (HD) often experience bowel symptoms into adulthood, despite definitive surgery. This study evaluates the quality of life (QOL) and bowel functional outcome of children treated for ARM and HD in comparison to healthy controls.MethodsBetween December 2020 and February 2023, we recruited patients with ARM and HD aged 3–17 years at four tertiary referral centres, who had primary corrective surgery done >12 months prior. Healthy controls were age-matched and sex-matched. All participants completed the Pediatric Quality of Life Inventory Generic Core Scales 4.0, General Well-Being (GWB) Scale 3.0 and Family Impact (FI) Module 2.0 Questionnaires. Bowel Function Score (BFS) Questionnaires were also administered. We also performed subgroup analysis according to age categories. Appropriate statistical analysis was performed with p<0.05 significance. Ethical approval was obtained.ResultsThere were 306 participants: 101 ARM, 87 HD, 118 controls. Patients with ARM and HD had significantly worse Core and FI Scores compared with controls overall and in all age categories. In the GWB Scale, only ARM and HD adolescents (13–17 years) had worse scores than controls. ARM and HD had significantly worse BFSs compared with controls overall and in all age categories. There was significant positive correlation between BFS and Core Scores, GWB Scores and FI Scores.ConclusionPatients with ARM and HD had worse QOL than controls. Lower GWB Scores in adolescents suggests targeted interventions are necessary. Bowel function influences QOL, indicating the need for continuous support into adulthood.

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“…Medical staff should motivate caregivers to seek additional social support, such as encouraging them to seek help from their family members, and ensuring they have increased access to contact medical staff for further inquiries. Peer support can be harnessed through initiatives such as establishing IA-related communication groups to provide assistance (48).…”

Section: Discussionmentioning

confidence: 99%

Factors contributing to emotional distress when caring for children with imperforate anus: a multisite cross-sectional study in China

Lv,

Feng-Fang,

Wang

et al. 2023

Front. Med.

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BackgroundImperforate anus (IA) has a life-long impact on patients and their families. The caregivers of children with IA (CoCIA) might experience distress, which could be detrimental to them physically and mentally. However, there are limitations in the related studies. This study aimed to investigate the prevalence of IA and the associated factors contributing to the distress experienced by CoCIA.MethodsA cross-sectional study was conducted in three tertiary children's hospitals from November 2018 to February 2019. Distress was assessed using the Chinese version of the Kessler Psychological Distress Scale, and possible determinants were assessed by the Caregiver Reaction Assessment, the Parent Stigma Scale, the Parent Perception of Uncertainty Scale, and the Social Support Scale. Demographic and clinical information was also collected. Multiple regression analysis was performed to explore the association between variables.ResultsOut of 229 CoCIA, 52.9% reported experiencing a high level of distress or above. The data analysis revealed that health problems associated with caregiving, stigma, uncertainty, social support, and children who underwent anal reconstruction surgery 1 year before or earlier could significantly predicate caregivers' distress, and these factors could explain 50.1% of the variance.ConclusionsThe majority of the caregivers of children with IA experience high levels of distress, particularly when their children undergo anal reconstruction surgery 1 year before or earlier. Additionally, health problems related to caregiving, stigma, uncertainty, and low social support could significantly predicate caregivers' distress. It is important for clinical staff to be aware of the prevalent situation of caregivers' distress and to make targeted interventions focused on addressing modifiable factors that should be carried out in family-based care.

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Quality of life and anxiety in Turkish patients with anorectal malformation

Cited by 12 publications

References 21 publications

Qualidade De Vida E Autopercepção De Saúde De Crianças Com Mau Desempenho Escolar

Qualidade De Vida E Autopercepção De Saúde De Crianças Com Mau Desempenho Escolar

Anorectal malformation and Hirschsprung’s disease: a cross-sectional multicentre comparison of quality of life and bowel function to a healthy population

Factors contributing to emotional distress when caring for children with imperforate anus: a multisite cross-sectional study in China

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