Quality of life and associated factors among adults living with cancer and their family caregivers

Gabriel, Israel; Creedy, Debra; Coyne, Elisabeth

doi:10.1111/nhs.12823

Cited by 23 publications

(31 citation statements)

References 42 publications

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“…The Behaviour Change Wheel framework was used to develop an evidence-based socio-spiritual intervention (referred to here as the “Zaman Lafiya Programme,” a local vernacular name that means “Living Well”). Guided by the findings of a local needs survey, the intervention was designed to meet the needs of adult Nigerians living with cancer and their family caregivers to improve family/social support, spiritual needs, and information/health literacy [ 21 ]. The spiritual framework informed program content and processes to be congruent with the Nigerian culture.…”

Section: Methodsmentioning

confidence: 99%

“…The CHLT-6 has a Cronbach's alpha internal consistency reliability of 0.96–0.99 [ 36 ]. It has been tested and used in Nigeria with good reliability of 0.74 [ 21 ]. In this study, CHLT-6 will be used to measure both adults living with cancer and family caregivers' health literacy.…”

Section: Methodsmentioning

confidence: 99%

“…A recent survey of 240 adult Nigerians living with cancer and their families found a decline in QoL. Adults with cancer had the greatest need for information and spiritual support, while family caregivers had the greatest need for family/social support and spiritual needs [ 21 ].…”

Section: Introductionmentioning

confidence: 99%

“…This study includes four work package for adult Nigerians with cancer and their family caregivers. Work Package 1 included a systematic review [ 20 ], while Work Package 2 included a quantitative needs survey of 240 adult Nigerians living with cancer and their family caregivers [ 21 ]. Based on the data obtained in work packages one and two, the Behaviour Change Wheel (BCW) [ 23 ] was used to develop the intervention (work package three).…”

Section: Introductionmentioning

confidence: 99%

“…The outcomes of previous work packages and the development of the intervention are described in more detail elsewhere [ 20 , 21 ].…”

Section: Introductionmentioning

confidence: 99%

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Feasibility of a socio-spiritual intervention to improve quality of life of adult Nigerians with cancer and their family caregivers: Protocol for a randomised controlled trial

Gabriel

Creedy

Coyne

2021

Contemporary Clinical Trials Communications

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Background Despite high psychosocial needs that negatively affect the quality of life of adults living with cancer and their family caregivers, there is a lack of interventions that are culturally sensitive to low-income countries. This protocol tests the feasibility of a randomised controlled trial on the efficacy of a socio-spiritual intervention to improve the quality of life of adult Nigerians living with cancer and their family caregivers. Methods/design This two-arm trial will recruit 152 adults with cancer and their family caregivers (76 dyads). Participants will be recruited from a clinical facility in Zaria, Kaduna State, Nigeria. Eligible participants will be randomly assigned to either the intervention or control group at a 1:1 ratio. The intervention consists of four weekly face-to-face sessions with a focus on spirituality, social support, and information needs. Control participants will receive usual care. Outcome measures include feasibility, spiritual need, social need, information, cancer health literacy, and quality of life collected at baseline and immediate post-intervention. Discussion Nigeria has the highest rate of extreme poverty globally with high rates of cancer mortality. Testing the feasibility of social-spiritual interventions in resource poor settings is important to establish preliminary efficacy and sustainability. Family-centred interventions for adults living with cancer and their family caregivers can strengthen their coping capabilities. If this intervention is feasible and effective, it could be implemented both in clinical practice and communities in other low and middle income countries.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

“…The outcomes of previous work packages and the development of the intervention are described in more detail elsewhere [ 20 , 21 ].…”

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Feasibility of a socio-spiritual intervention to improve quality of life of adult Nigerians with cancer and their family caregivers: Protocol for a randomised controlled trial

Gabriel

Creedy

Coyne

2021

Contemporary Clinical Trials Communications

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Psychosocial aspects of adult cancer patients: A scoping review of sub‐Saharan Africa

2022

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Objective Psychosocial aspects of adult cancer patients in sub‐Saharan Africa (SSA) have been described in silos of research articles. Integrative analysis of regional evidence is lacking. This review aimed to describe the scope of existing research on mental health problems, identify research gaps and make informed research, policy and practice recommendations. Methods Search was conducted for original peer‐reviewed research articles, irrespective of their quality, on psychosocial aspects of cancer in all SSA countries using PubMed, Google Scholar, Google search, African Index Medicus and direct searches of reference list of pertinent journal articles. Publications in English or translated to English were included. Case reports, dissertations, abstracts, publications without primary focus on psychosocial issues, psychosocial issues in children and studies conducted with SSA populations living outside the sub‐region were excluded. The methodological framework described by Arksey and O’Malley was used to synthesize and present the results. Inductive approach was used to arrive at the thematic areas. Preferred Reporting Items for Systematic Reviews and Meta‐Analyses extension for Scoping Reviews guideline was used to describe the review. Results Eighty‐three studies conducted across 15 countries were identified. Six thematic areas emerged namely; psychosocial needs, psychiatric disorders, coping strategies, suicidality, psychometrics and psychosocial interventions. Fifteen of 46 countries had at least one study with the majority of articles emanating from Nigeria. Research articles on psychosocial needs, psychiatric morbidities and coping strategies appears adequate for systematic review in SSA region. Despite the overwhelming evidence of high unmet psychosocial needs, a huge gap exists regarding psychosocial interventions. Conclusion Further research is needed into identified gaps in the region and quality of evidence of these studies need to be improved upon. Comprehensive policies and action plan development are sin qua non for addressing psychosocial problems of adults with cancer in SSA.

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Association between emotional competence and risk of unmet supportive care needs in caregivers of cancer patients at the beginning of care

Baudry,

Delpuech,

Charton

et al. 2024

Support Care Cancer

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Quality of life and associated factors among adults living with cancer and their family caregivers

Cited by 23 publications

References 42 publications

Feasibility of a socio-spiritual intervention to improve quality of life of adult Nigerians with cancer and their family caregivers: Protocol for a randomised controlled trial

Feasibility of a socio-spiritual intervention to improve quality of life of adult Nigerians with cancer and their family caregivers: Protocol for a randomised controlled trial

Psychosocial aspects of adult cancer patients: A scoping review of sub‐Saharan Africa

Association between emotional competence and risk of unmet supportive care needs in caregivers of cancer patients at the beginning of care

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