2021
DOI: 10.21203/rs.3.rs-561280/v1
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Quality of Life and Challenges Experienced by the Surviving Adults With Transfusion Dependent Thalassaemia in Malaysia: A Cross Sectional Study

Abstract: Background Improvement in medical management has enabled transfusion dependent thalassaemia (TDT) patients to survive beyond childhood, building families, and contributing to the labour force and society. Knowledge about their adult life would provide guidance on how to support their needs. This study aims to explore the general well-being of adults with TDT, their employment status and challenges. Methods We contacted all regional Thalassaemia societies in Malaysia to invite TDT members aged 18 or over to p… Show more

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Cited by 1 publication
(2 citation statements)
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“…The difficulties experienced range from being discriminated against, having unsupportive colleagues and friends, being inhibited from developing to their full potentials, and getting a lower salary, to being fearful of losing their employment due to their frequent time away from work. 16 These significant factors add to the economic burden associated with a chronic disease, with implications for both the individual affected and the healthcare system overall.…”
Section: Articlementioning
confidence: 99%
See 1 more Smart Citation
“…The difficulties experienced range from being discriminated against, having unsupportive colleagues and friends, being inhibited from developing to their full potentials, and getting a lower salary, to being fearful of losing their employment due to their frequent time away from work. 16 These significant factors add to the economic burden associated with a chronic disease, with implications for both the individual affected and the healthcare system overall.…”
Section: Articlementioning
confidence: 99%
“…In middle-to low-income countries, in addition to economic aspects, religious factors and social stigma also play a role in lowering the level of QoL. 16…”
Section: Articlementioning
confidence: 99%