2022
DOI: 10.1186/s12955-021-01897-4
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Quality of life and challenges experienced by the surviving adults with transfusion dependent thalassaemia in Malaysia: a cross sectional study

Abstract: Background Improvement in medical management has enabled transfusion dependent thalassaemia (TDT) patients to survive beyond childhood, building families, and contributing to the labour force and society. Knowledge about their adult life would provide guidance on how to support their needs. This study aims to explore the general well-being of adults with TDT, their employment status and challenges. Methods This study recruited 450 people with TDT,… Show more

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Cited by 9 publications
(6 citation statements)
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“…Splenectomy was not seen to impact HRQOL in the physical and mental health domains, 26 but did lower vitality scores 19 . Factors affecting HRQOL on the WHOQOL‐BREF form included having days with mental issues, financial status, education level, ethnic status, and marital status 30 . TranQOL HRQOL scores were impacted by age, 29,35 gender, 29 receiving social support, 29,35 hemoglobin levels, 29 and comorbidities 29 .…”
Section: Resultsmentioning
confidence: 98%
See 2 more Smart Citations
“…Splenectomy was not seen to impact HRQOL in the physical and mental health domains, 26 but did lower vitality scores 19 . Factors affecting HRQOL on the WHOQOL‐BREF form included having days with mental issues, financial status, education level, ethnic status, and marital status 30 . TranQOL HRQOL scores were impacted by age, 29,35 gender, 29 receiving social support, 29,35 hemoglobin levels, 29 and comorbidities 29 .…”
Section: Resultsmentioning
confidence: 98%
“…Of these, 250 met the timeline of publication in the last 5 years. These articles were abstract and full‐text screened, ultimately yielding 31 included studies 18–48 . The results of this literature review are provided in the PRISMA flowchart in Figure 1.…”
Section: Resultsmentioning
confidence: 99%
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“…Spirituality eases acceptance of the disease and allows people to become accustomed to it over time. Furthermore, patients' quality of life is affected by socio‐demographic variables (Adam, 2019 ; Foong et al, 2022 ). Patients' reactions differed according to their personality traits, the effects of the disease, and socio‐demographic variables.…”
Section: Discussionmentioning
confidence: 99%
“…Posibles influencias en la optimización de la salud (Glorieux, et al, 2022), parten de modelos de mediación moderada (Zhang, et al, 2022). Por ende, la calidad de vida y desafíos experimentados (Foong, et al, 2022), potencian cambios en la búsqueda del estilo de vida adecuado (Brandl, et al, 2022).…”
Section: Introductionunclassified