Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts

Moons, Philip; Deyk, Kristien Van; Bleser, Leentje De; Marquet, Kristel; Raes, Els; Geest, Sabina De; Budts, Werner

doi:10.1097/00149831-200606000-00017

Cited by 139 publications

(142 citation statements)

References 17 publications

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“…Despite the parameters above discussed have been widely employed for late results evaluation of patients followed in the long term, we share the opinion that the individual quality of life is an important aspect which should be considered in the outpatient assessment because it can give a more complete idea of the individual status [12,26].…”

Section: Late Resultsmentioning

confidence: 99%

“…The great majority of these patients, however, can not be considered cured. Sequela and residual lesions are frequent [2] demanding special attention during a period of life when problems related to the individual activities and to the natural aging process might interfere with the lesion physiopathology [11,12]. An interesting and still not well discussed subject, especially in Brazil, is the surgical approach in adults with congenital heart disease, frequently necessary in those patients with late diagnosis and those in need of a reoperation.…”

Section: Discussionmentioning

confidence: 99%

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Adult congenital heart disease: experience with the surgical approach

Amaral

Rodrigues

Manso

et al. 2013

Revista Brasileira De Cirurgia Cardiovascular

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Objective: To report the institution experience with the surgical treatment of adults with congenital heart disease due to the increasing number of these patients and the need for a better discussion of the subject.Methods: Retrospective analysis describing demographic data, risk factors and results.Results: 191 patients between 16 and 74 years old were operated on. Primary correction was done in 171 cases, 93 (55%) for atrial septal defect repair. Among 20 (12%) reoperations, pulmonary valve replacement was done in six cases. The mean intensive care and hospital stay were 2.7 and 8.5 days respectively, significantly greater for the reoperated cases (P=0.001). The mean bypass and clamping times were 68.6 and 44.7 minutes respectively, greater for the reoperated cases (P<0.0001 and P=0.0003 respectively). Hospital mortality was 4.2% and male sex, functional class III-IV and older age at operation were predictive risk factors. Significant complications were more frequent in the reoperated cases (P<0.003), mainly atrial flutter and fibrillation. Among 183 patients discharged, 149 (82%) are being followed and atrial flutter and fibrillation are common. The mean functional class value improved significantly after operation (1.66 to 1.11; P<0.0001). The estimated survival was 96.2% in six years. Conclusion:Heart surgery in adults with congenital heart disease can be accomplished with low mortality and functional class improvement. Immediate and late complications are frequent. Multicenter studies are important to better characterize this patient population in the country.Descriptors: Heart defects, congenital. Adult. Cardiac surgical procedures.Resumo Objetivo: Relatar a experiência da instituição com o tratamento cirúrgico de adultos com cardiopatia congênita devido ao crescente aumento no número desses pacientes e consequentes necessidades de maior discussão do tema.Métodos: Análise retrospectiva dos pacientes operados, com análise de dados demográficos, fatores de risco e resultados.Resultados: Cento e noventa e um pacientes, com idade entre 16 e 74 anos, foram operados. Cirurgia primária foi realizada em 171 pacientes, 93 (55%) com comunicação interatrial. Dentre 20 (12%) reoperações, substituição de valva pulmonar ocorreu em seis casos. Os tempos médios de unidade de terapia intensiva e hospitalar foram 2,7 e 8,5 dias, respectivamente, maiores nas reoperações (P=0,001). Os tempos médios de cir- 372Rev Bras Cir Cardiovasc | Braz J Cardiovasc Surg Rev Bras Cir Cardiovasc 2013;28(3):371-9Amaral FTV, et al. -Adult congenital heart disease: experience with the surgical approach city area (n=40, 20%) or in the region (n=133, 70%) while 17 (10%) were referred from other states. An Excel data base was created containing general information of the patients, possible preoperative risk factors such as diabetes, cyanosis, smoking, systemic hypertension, obesity and chronic lung disease, detailed information regarding the surgical procedure, hospital complications and follow up information.The preoperative data collec...

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Section: Late Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Adult congenital heart disease: experience with the surgical approach

Amaral

Rodrigues

Manso

et al. 2013

Revista Brasileira De Cirurgia Cardiovascular

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“…We measured perceived health using a linear analogue scale (LAS) [12,13] and the Medical Outcome Study, Short-Form 36 (SF-36) [14]. The LAS is a 10-cm-long vertical line divided into a scale ranging from 0 (worst imaginable health status) to 100 (best imaginable health status).…”

Section: Methodsmentioning

confidence: 99%

Patient-Reported Outcomes in Adult Survivors with Single-Ventricle Physiology

et al. 2011

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Objectives: Data on patient-reported outcomes (PROs) in patients with single-ventricle physiology (SVP) are scarce. We sought (1) to describe the perceived health status, quality of life, symptoms of anxiety and depression, and sense of coherence in adult survivors with SVP, (2) to compare PROs across functional classes, and (3) to compare PROs between patients and controls. Methods: A case-control study in two adult congenital heart programmes with 62 adult survivors with SVP were matched to 172 healthy controls. A wide range of PROs were measured using validated questionnaires. The treating physician classified patients according to the Ability Index. Results: Patients with SVP have a good functional status. Patients in Ability Index class I consistently reported the best scores, similar to those of healthy controls. Negative associations were found between functional class and outcomes of perceived health and quality of life. For patients in Ability Index class II and III, PROs were poorer. Conclusions: PROs in patients with SVP are generally good.

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“…In the literature the evidence for this assumption is mixed. While van Rijen et al (Van Rijen et al 2004;Van Rijen et al 2005b) reported that women were more affected by psychopathological reactions, other studies concluded that the quality of life of CHD-patients in general was comparable with the general population (Immer et al 2007;Moons et al 2006). In our study we found evidence that males suffered considerably more than female patients on a series of psychological measures, in particular anxiety, depression, and hostility.…”

Section: Discussionmentioning

confidence: 97%

Chances of Employment in a Population of Women and Men after Surgery of Congenital Heart Disease: Gender-Specific Comparisons between Patients and the General Population

Geyer¹,

Norozi²,

Buchhorn³

et al. 2008

SSRN Journal

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Standard-Nutzungsbedingungen:Die Dokumente auf EconStor dürfen zu eigenen wissenschaftlichen Zwecken und zum Privatgebrauch gespeichert und kopiert werden.Sie dürfen die Dokumente nicht für öffentliche oder kommerzielle Zwecke vervielfältigen, öffentlich ausstellen, öffentlich zugänglich machen, vertreiben oder anderweitig nutzen.Sofern die Verfasser die Dokumente unter Open-Content-Lizenzen (insbesondere CC-Lizenzen) zur Verfügung gestellt haben sollten, gelten abweichend von diesen Nutzungsbedingungen die in der dort genannten Lizenz gewährten Nutzungsrechte. Terms of use: Documents in SOEPpapers on Multidisciplinary Panel Data Research at DIW BerlinThis series presents research findings based either directly on data from the German SocioEconomic Panel Study (SOEP) or using SOEP data as part of an internationally comparable data set (e.g. CNEF, ECHP, LIS, LWS, CHER/PACO). SOEP is a truly multidisciplinary household panel study covering a wide range of social and behavioral sciences: economics, sociology, psychology, survey methodology, econometrics and applied statistics, educational science, political science, public health, behavioral genetics, demography, geography, and sport science.The decision to publish a submission in SOEPpapers is made by a board of editors chosen by the DIW Berlin to represent the wide range of disciplines covered by SOEP. There is no external referee process and papers are either accepted or rejected without revision. Papers appear in this series as works in progress and may also appear elsewhere. They often represent preliminary studies and are circulated to encourage discussion. Citation of such a paper should account for its provisional character. A revised version may be requested from the author directly. performed according to a system proposed by the New York Heart Association in order to take subjectively reported impairments into account. Controls (N=1165) consisted of a 10% random sample drawn from the German Socio-Economic Panel. Chances of full-time employment decreased as disease severity increased. Chances of part-time and minor employment were higher in patients than among controls. These general effects were due to male patients, while the employment patterns of women did not differ from the control group.Independently of patient status women were more likely to have lower rates of full-time employment, and the rates of part-time and minor employment were higher.Long-term adaptation to impairments due to congenital heart disease differs between women and men with respect to employment status. While female patients do not differ from the general population, males may lower their engagement in paid work.

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Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts

Abstract: Adults with congenital heart disease perceived their quality of life to be better than did their healthy counterparts. This finding refutes the presumed lower quality of life in patients with cardiac anomalies.

Cited by 139 publications

References 17 publications

Adult congenital heart disease: experience with the surgical approach

Adult congenital heart disease: experience with the surgical approach

Patient-Reported Outcomes in Adult Survivors with Single-Ventricle Physiology

Chances of Employment in a Population of Women and Men after Surgery of Congenital Heart Disease: Gender-Specific Comparisons between Patients and the General Population

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