Quality of Life and Physical Activity of Persons with Spinal Cord Injury

Filipčić, Tjaša; Sember, Vedrana; Pajek, Maja; Jerman, Janez

doi:10.3390/ijerph18179148

Cited by 24 publications

(14 citation statements)

References 50 publications

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“…They worried about solidarity in their families, job security, financial status, and social interactions. In line with the present study, other studies have reported that patients with spinal cord injuries mention financial and family problems which cause them to fear the future and life with their SCI [ 28 , 29 ]. Therefore, comprehensive family, social, and medical support as well as extensive education about the condition can prove useful in alleviating these patients' fear of the future.…”

Section: Discussionsupporting

confidence: 91%

Perception of facing life's challenges in patients with spinal cord injury in Iran: a qualitative study

et al. 2022

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Background Spinal cord injury (SCI) is one of the most serious types of physical trauma and has become a major life-threatening condition in the recent decade. It is essential that the life perception and experiences of patients with SCI be studied and evaluated in different cultural contexts so that their needs and the challenges they face can be properly determined. The present study aims to explore the how patients with SCI in the south of Iran perceive facing life's challenges. Methods The present study is a qualitative research with a descriptive phenomenological design. Participants were identified through purposive sampling of patients with spinal cord injury admitted to two state hospitals affiliated with a university of medical sciences in western Iran. The researchers collected data using semi-structured, in-depth interviews with 25 SCI patients conducted between August and October 2021. Data was analyzed according to Colaizzi's method using MAXQDA v. 2007. Results Analysis of the data led to the emergence of three themes and nine sub-themes. The three main themes were emotional shock (crisis making and mental rumination, persistent depressive disorder, pitying behaviors, fear of the future), loss of dignity (poor self- care, sexual dysfunction, loss of job and educational status), and lack of effective support (lack of financial institutions and sponsors, lack of social support). Conclusion Patients with spinal cord injuries face various issues in their care and social lives. Attention to their psycho-emotional needs along with comprehensive health support play key roles in generating a sense of self efficacy and promoting the mental well-being and dignity of patients with spinal cord injuries. Accordingly, healthcare administrators and caregivers are recommended to provide more comprehensive health support to SCI patients to meet their needs more effectively.

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Section: Discussionsupporting

confidence: 91%

Perception of facing life's challenges in patients with spinal cord injury in Iran: a qualitative study

et al. 2022

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“…Physical activity is an important element for a healthy life in SCI that was found to have a positive association with QOL and functional independence in a study by Kawanishi, C. Y., & Greguol, M. 40 Another study also observed physical activity to play important role in different areas of QOL since they found comparatively better QOL in their physically active SCI patients 41 . Physical activity was also thought to improve QOL not only in healthy individuals but PWDs as well.…”

Section: Discussionmentioning

confidence: 96%

Wheelchair User’s Satisfaction and its Impact on Physical Activity and Quality of Life in People with Spinal Cord Injury

Mehmood¹,

Ali²,

Daud

et al. 2022

Physikalische Medizin, Rehabilitationsmedizin, Kurortmedizin

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Background Spinal cord injury (SCI) survivors rely greatly on assistive devices, spending around 9–11 hours daily in a wheelchair. It can act both as a barrier and facilitator, positively impacting their mobility, community participation, quality of life (QOL) and functional independence provided the device is satisfactory. However, there is a paucity of information on the level of user satisfication and its impact on the mobility and well being. Keeping in view the present study was conducted to determine the level of wheelchair user’s satisfaction and its impact on physical activity and QOL in SCI. Methods A cross sectional study with a sample of 130 was conducted at Paraplegic Center, Peshawar using “Quebec User Evaluation of Satisfaction with assistive Technology (QUEST)” for wheelchair user’s satisfaction, “Physical Activity Scale for Individuals with Physical Disabilities (PASIPD) for physical activity and World Health Organization Quality of Life (WHOQOL-BREF) for QOL. Results Mean age of the study participants was 32.48±11.96 years. The majority of the participants were males, with most of them being manual wheelchair users. Nearly 80% were regular users. The calculated mean for the QUEST was 3.23±0.51 while 24.49±27.66 for the PASIPD. For the WHOQOL-BREF the calculated median (IQR) in the environmental 56.00 (19.00) and psychological 56.00 (12.00) domain was highest followed by physical domain 50.00(19.00). No significant correlation between participant’s satisfaction level (for wheelchair), and PASIPD (rs=0.054, p=0.541) was observed. On the other hand significant positive correlation was found between physical (rs=0.394, p<0.001), social (rs=0.303, p<0.001) and environmental domain (rs=0.425, p<0.001) except psychological domain (rs=0.156, p=0.076) of QOL. Conclusion The majority of the participants showed moderate levels of satisfication and the impact was observed on the physical, social and environmental domains of QOL. Appropriate wheelchairs enhancing the QOL therefore special measures should be taken to customize the device to the body structure and needs of the customers as anything that can improve their lives even to a minor extent can prove very helpful.

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“…AdS has been shown to increase life satisfaction and QoL in individuals with SCI [41,42]. Persons with disabilities commonly participate in AdS for personal enrichment.…”

Section: Intrapersonalmentioning

confidence: 99%

Adaptive Sports in Spinal Cord Injury: a Systematic Review

Rayes¹,

Ball²,

Lee³

et al. 2022

Curr Phys Med Rehabil Rep

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Purpose of Review Adaptive sports (AdS), sports modified or created to accommodate persons with disabilities, have been gaining popularity over the last decade. The benefits of exercise in the able-bodied population are well-established. Literature in adaptive sport and the para-athlete continues to improve but is not yet as comprehensive as their able-bodied peers, in part due to the heterogeneity of participants. In this review, we appraise the recent literature pertaining to AdS and identify developing areas within the field. Recent Findings AdS have been shown to have positive health benefits as well as positive psychosocial benefits. Para-athletes often must overcome a variety of barriers to participation, such as transportation, accessibility, and socioeconomic factors. Facilitators to participation have also been identified, including pre-injury interest in sports, male sex, younger age, and more. In addition to well-known sports like handcycling and wheelchair basketball, adaptive sport continues to evolve, in part due to the COVID-19 pandemic, now including virtual options and E-sports. Para-athletes are also being more closely monitored and evaluated pre, peri, and post competition for injury and injury prevention, including in the realm of concussion management, requiring healthcare professionals, coaches, players, and all to gain further knowledge in adaptive sport and the participating para-athletes. Summary The physical, psychological, and social benefits of adaptive sports for individuals with disabilities are numerous. Addressing barriers to participation, including novel forms of AdS that utilize innovative technology, may allow more individuals to benefit from AdS.

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Quality of Life and Physical Activity of Persons with Spinal Cord Injury

Cited by 24 publications

References 50 publications

Perception of facing life's challenges in patients with spinal cord injury in Iran: a qualitative study

Perception of facing life's challenges in patients with spinal cord injury in Iran: a qualitative study

Wheelchair User’s Satisfaction and its Impact on Physical Activity and Quality of Life in People with Spinal Cord Injury

Adaptive Sports in Spinal Cord Injury: a Systematic Review

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