Quality of Life and Quality of Support for People with Severe Intellectual Disability and Complex Needs

Beadle‐Brown, Julie; Leigh, Jennifer; Whelton, Beckie; Richardson, Lisa; Beecham, Jennifer; Bäumker, Theresia; Bradshaw, Jill

doi:10.1111/jar.12200

Cited by 81 publications

(93 citation statements)

References 19 publications

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“…In a 2012 study, Beadle-Brown, Beecham, et al (2012) confirmed earlier research and demonstrated no differences in hours of staff or overall costs of care in services where active support was stronger compared to those where it was weaker. Finally, regression studies looking at predictors of engagement in meaningful activities have identified two variables as most important (and in most studies, the only) -the level of ability of the individuals supported and assistance from staff (Felce et al, 2000;Felce et al, 1986;Felce et al, 2002;Felce & Perry, 1995;adaptive ability on engagement reduces (Mansell & Beadle-Brown, 2012, Chapter 3).…”

supporting

confidence: 74%

Implementation of active support over time in Australia

Bigby

Bould

2017

Journal of Intellectual & Developmental Disability

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Background: Research indicates the value of active support in achieving good outcomes across a number of quality of life domains for people with intellectual disabilities. However, implementation is not easy, and little research has explored why. We aimed to identify some of the factors that impact on implementation of active support in supported accommodation services. Methods: Data on the quality of active support, staff training and practice leadership were collected through staff questionnaires, observations and manager interviews, for between two and four years across six organisations. Results: Active support improved over time for more able people with intellectual disability, but not for people with higher support needs. There was a weak positive correlation between active support and (1) practice leadership scores, and (2) the percentage of staff reporting active support training. Conclusions: It is important to recognise the influence of practice leadership and staff training on the quality of support and ensure provision for these in funding schemes.

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supporting

confidence: 74%

Implementation of active support over time in Australia

Bigby

Bould

2017

Journal of Intellectual & Developmental Disability

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“…O cuidado em saúde, apesar de consumir parte considerável do orçamento familiar, também foi percebido como inadequado. Dificuldades na obtenção de informações e no acesso a serviços de saúde e educação, somadas à percepção de que a qualidade dos cuidados prestados é insatisfatória, resultam em sentimentos de impotência e representam grande fonte de estresse familiar 47,48,49 . Uma medida prática a ser adotada é a capacitação dos professores e dos profissionais de saúde, especialmente aqueles que atuam nos cenários de atenção primária, para o atendimento de deficientes.…”

Section: Discussionunclassified

“…Em consonância com outras pesquisas 49,57,58,59 , nosso estudo revelou que os deficientes recebem menos serviços e suportes do que realmente necessitam, nas áreas de saúde, educação e lazer. Políti-Cad.…”

Section: Discussionunclassified

Impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar: um estudo clínico-qualitativo

et al. 2017

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Este estudo clínico-qualitativo investigou o impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar. Os dados foram coletados por meio de entrevistas individuais com 15 mães de deficientes, escolhidas por conveniência, e examinados pela técnica de análise de conteúdo categorial temática. Os resultados foram discutidos usando-se abordagem compreensiva e interpretativa. Da análise das entrevistas apreendeu-se que o cuidado do filho deficiente é centrado na mãe, o que contribuiu para a modificação das relações familiares. O enfrentamento religioso apareceu como estratégia comum de ajuste. Os filhos deficientes tiveram acesso a menos serviços e suportes do que necessitavam, nas áreas de saúde, educação e lazer. Restrições financeiras e dificuldades no convívio comunitário impactaram negativamente na qualidade de vida familiar. Apoio emocional e psicológico para todos os membros da família, e apoio prático e social, incluindo distribuição de renda e acesso a serviços adequados, mostraram-se essenciais para o bem-estar do deficiente e de sua família.

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“…On average, less than one-third of people living in services receive consistently good active support and in the absence of active support people receive assistance less than three minutes in every hour. People who do receive good active support tend to be more able than those who do not, meaning that those who need the most support tend to get the least (Mansell & Beadle-Brown, 2012;Mansell et al, 2013;Beadle-Brown, Leigh, Whelton, Richardson, & Bradshaw, 2014).…”

mentioning

confidence: 97%

Active Support – Fundamental to Positive Behaviour Support

Ockenden¹,

Ashman²

2014

Research and Practice in Intellectual and Developmental Disabil

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Support for people with intellectual disabilities and challenging behaviour in the United Kingdom is currently under much scrutiny. Positive behaviour support has been put forward as the key approach for improving services for this group of people. Drawing on both the literature and on the practice experience of organisations, arguments are made that implementing active support can reduce the need for positive behaviour support and also support the implementation of positive behaviour support where this is needed. Key features of both active support and positive behaviour support are outlined and the fit between the two explained at both a general level and for the different stages of developing and implementing positive behaviour support interventions. It is suggested that implementing active support not only provides conditions in which challenging behaviour is likely to decrease, thereby reducing the need for the implementation of positive behaviour support, but, where such implementation is necessary, it can provide a valuable foundation upon which positive behaviour support can be built. Appreciating the extent to which active support complements and in fact sets the context for successful implementation of positive behaviour support will help practitioners in this field develop a successful approach to challenging behaviour.

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Quality of Life and Quality of Support for People with Severe Intellectual Disability and Complex Needs

Cited by 81 publications

References 19 publications

Implementation of active support over time in Australia

Implementation of active support over time in Australia

Impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar: um estudo clínico-qualitativo

Active Support – Fundamental to Positive Behaviour Support

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