Quality of life and Social Support among Children Living with HIV (CLHIV) in South India

Bharathi, M.; Pai, Mamatha Shivananda; Nayak, Baby S

doi:10.9790/1959-03625558

Cited by 4 publications

(5 citation statements)

References 6 publications

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“…The lowest score was seen in the social domain reflecting caregivers' expressed dissatisfaction from friends and lack of support from other people with high variability in psychological and social domain compared to physical health and environmental health domain. The lowest mean score in the social domain of this study is similar to a study conducted in South India [31], Thailand [32] and China [33]. This shows the need for continual general public sensitisation, caregiver education on the positive effect of treatment compliance and the need for paediatric treatment prioritisation.…”

Section: Assessment Of Quality Of Life In Paediatric Hiv/aids Patientsupporting

confidence: 79%

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A cross-sectional study on caregivers’ perspective of the quality of life and adherence of paediatric HIV patients to highly active antiretroviral therapy

et al. 2020

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Background: Poor compliance to highly active antiretroviral therapy (HAART) can result in the poor quality of life in children living with Human immunodeficiency virus/Acquired immunodeficiency syndrome (HIV/AIDS) because of low plasma drug concentration and the possibility of drug resistance. This study evaluates the response of caregivers for determination of adherence and the four quality of life domains in children (aged 14 years and under) on HAART. Methods: We conducted a cross-sectional study of 188 children, each accompanied by their caregivers at Ola During Children's Hospital and Makeni Government Hospital between September and November 2016. Adherence to HAART and Quality of life was assessed using the WHO Quality of life summary questionnaire (WHOQOL-BREF). We obtained ethical approval from the Sierra Leone Ethics and Scientific Review Committee. Results: The study revealed 5.9% adherence amongst paediatric patients, and a strong association of adherent patients(p = 0.019*) to the physical health domain (mean = 64.61 SD = 8.1). Caregiver HIV status showed a strong association with the physical (mean = 58.3, SD = 11.7 and p = 0.024*), and psychological health domains (mean = 68.2, SD = 14.7 and p = 0.001). Caregiver type (mother/father/sibling) accompanying child to hospital also showed strong associated with the physical (mean = 58.0, SD = 10.6, p < 0.001), psychological (mean 68.2 SD = 14.81 p < 0.001) and environmental health domains (mean = 59.7, SD = 13.47, p < 0.001). Further regression analysis showed a strong association with physical health domain for HIV positive caregivers (p = 0.014) and adherent paediatric patients (p = 0.005). Nuclear family also showed a strong association with psychological (p < 0.001) and environmental (p = 0.001) health domains. Conclusion: This study showed a strong association between the quality of life domains and the involvement of nuclear family caregiver, HIV-positive caregiver and adherence to HAART. Our study suggests that the involvement of any member of the nuclear family, HIV positive parents and patient adherence to therapy can improve the quality of life of paediatric HIV/AIDS patients on highly active antiretroviral therapy in the two hospitals.

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Section: Assessment Of Quality Of Life In Paediatric Hiv/aids Patientsupporting

confidence: 79%

“…Studies in tropical regions showed that HIV/AIDs disclosure can improve adherence in children on HAART [28,29]. Other studies also confirmed that disclosure of HIV status is a major issue for caregivers [30,31].…”

Section: Factors Affecting Non-adherencementioning

confidence: 87%

A cross-sectional study on caregivers’ perspective of the quality of life and adherence of paediatric HIV patients to highly active antiretroviral therapy

et al. 2020

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“…Unsar, Erol, & Sut (2016) also found positive correlations between quality of life score and social support. Devi & Jyotsana (2016); Charkhian, Fekrazad, Sajadi, Rahgozar, Abdolbaghi, & Maddahi (2014) and Bharathi, Pai & Nayak (2014) also reported similar findings. vulnerable to suicide and depression.…”

Section: Quality Of Lifementioning

confidence: 65%

Social Support, Self-Esteem and Quality of Life among People Living With HIV/AIDS in Jammu & Kashmir India

Wani¹

2020

AN PSICOL-SPAIN

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Background: The cardinal aim of the present study was to assess the level of social support, self esteem and quality of life among people living with HIV/AIDS in Jammu and Kashmir State of India. Further, the study strived to explore the relationship between independent and dependent variables. Method: The study consists a sample of 460 AIDS patients selected through purposive sampling technique, out of them 177 (38.3%) were male, 283 (61.5%) were female patients; 295 (64.1%) were married and 165 (35.9%) were unmarried. Measures included Enriched Social Support Inventory by Mitchell et al., (2003), Rosenberg's Self-Esteem Scale (1965) and Quality of Life Scale by Sharma & Nasreen (2014). For the statistical analysis of data Mean, Standard deviation, Frequency distribution, t-test, one way analysis of variance, correlation analysis and Scheffe’s post hoc test was applied by SPSS 20.0 version. Findings: The findings illustrated that majority of patients have poor social support, lower self-esteem and poor quality of life; also it reveals that patient’s social support, and self-esteem differs by age, occupation, duration of illness, gender, and marital status. However their quality of life differs only by their age, occupation, duration of illness, and marital status. Further the result shows social support and self-esteem are positively correlated with quality of life. Background: The cardinal aim of the present study was to assess the level of social support, self esteem and quality of life among people living with HIV/AIDS in Jammu and Kashmir State of India. Further, the study strived to explore the relationship between independent and dependent variables. Method: The study consists a sample of 460 AIDS patients selected through purposive sampling technique, out of them 177 (38.3%) were male, 283 (61.5%) were female patients; 295 (64.1%) were married and 165 (35.9%) were unmarried. Measures included Enriched Social Support Inventory by Mitchell et al., (2003), Rosenberg's Self-Esteem Scale (1965) and Quality of Life Scale by Sharma & Nasreen (2014). For the statistical analysis of data Mean, Standard deviation, Frequency distribution, t-test, one way analysis of variance, correlation analysis and Scheffe’s post hoc test was applied by SPSS 20.0 version. Findings: The findings illustrated that majority of patients have poor social support, lower self-esteem and poor quality of life; also it reveals that patient’s social support, and self-esteem differs by age, occupation, duration of illness, gender, and marital status. However their quality of life differs only by their age, occupation, duration of illness, and marital status. Further the result shows social support and self-esteem are positively correlated with quality of life.

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“…10 This finding is at variance with previous studies which showed that HIVinfected children have lower scores when compared with healthy children. 8,12,13,27 This lower score in these comparative studies may be due to differences in sample sizes and ages of subjects. The present study recruited participants from 2 years to 15 years of age and had a larger sample size, while other comparative studies had smaller sample sizes and recruited mainly adolescents.…”

Section: Discussionmentioning

confidence: 97%

“…[10][11] Health-related quality of life (HRQOL) is defined as the patient's appraisal of how his/her well-being and level of functioning, compared to the perceived ideal, are affected by individual health. 10,[12][13] Health-related quality of life (HRQOL) has been widely applied in evaluating the effects of treatment on different populations. [13][14][15][16][17][18] HRQOL has become an important measurable outcome of treatment in the era of highly active antiretroviral therapy HAART, rather than the traditional outcomes of mortality, estimates of the frequency and severity of diseases, survival rates, the occurrence of opportunistic infections, CD4 count and viral load.…”

Section: Introductionmentioning

confidence: 99%

Health-related quality of life of HIV-infected children in Uyo. Akwa Ibom State, Nigeria

2023

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Background: HIV-infected children are surviving into adolescence and adulthood due to the effectiveness of highly active antiretroviral therapy (HAART) but they now have to cope with living with a chronic disease. Health-related quality of life (HRQOL) has been shown to be an invaluable tool in assessing health outcome in chronic health conditions including HIV. Little is known about the HRQOL of HIV-infected children in both developing and developed countries. The study aimed at assessing the HRQOL of Nigerian children with HIV infection and compare it with that of healthy children in Uyo. Methods: A cross-sectional study of 211 HIV-infected children aged 2 to 15 years and 211 age, sex and social class-matched HIV-uninfected children with their caregivers was conducted at the University of Uyo Teaching Hospital, Uyo for a duration of nine months from October 2016 to July 2017. A generic version of the Pediatric Quality of Life Inventory (PedsQL 4.0) was used to measure their HRQOL. Results: From both self and proxy reports, there was no significant difference in the mean total HRQOL score of HIV-infected children and that of HIV-uninfected children. Conclusions: HRQOL of HIV-infected children in Uyo, Akwa Ibom state was good and comparable to that of HIV-uninfected children. Assessment of HRQOL should be incorporated into routine antiretroviral therapy ART programmes as a measure of the outcome of disease management. This will further help to identify needs and direct interventions for holistic care of these vulnerable children.

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Quality of life and Social Support among Children Living with HIV (CLHIV) in South India

Cited by 4 publications

References 6 publications

A cross-sectional study on caregivers’ perspective of the quality of life and adherence of paediatric HIV patients to highly active antiretroviral therapy

A cross-sectional study on caregivers’ perspective of the quality of life and adherence of paediatric HIV patients to highly active antiretroviral therapy

Social Support, Self-Esteem and Quality of Life among People Living With HIV/AIDS in Jammu & Kashmir India

Health-related quality of life of HIV-infected children in Uyo. Akwa Ibom State, Nigeria

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