Quality of life assessment in stoma patients in a tertiary care hospital in South India: a cross- sectional study

Roshini, A. P.; Sunny, Ann; Rozario, Anthony Prakash

doi:10.18203/2349-2902.isj20172408

Cited by 13 publications

(17 citation statements)

References 7 publications

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“…The ratio of colostomy to ileostomy was high (3.25:1), a finding that is in agreement with those of several other studies from a wide range of settings 29,30,32,33 . In the case of our setting, such a ratio is likely because large bowel disease is more prevalent than small bowel disease, as indicated by the initial diagnoses of the participants (Table 1).…”

Section: Participant Characteristicssupporting

confidence: 92%

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Quality of life of adult individuals with intestinal stomas in Uganda: a cross sectional study

et al. 2021

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Introduction: Intestinal stomas remain important life-saving surgical options in a wide range of gastrointestinal pathologies globally. Living with a stoma has potential to impair the patient’s quality of life, often with associated negative psychological effects. Objective: To evaluate the quality of life among intestinal stoma patients under Mulago National Referral Hospital (MNRH), with emphasis on psychological effects and effects on family-social interactions. Methodology: A cross-sectional study carried out at surgical outpatient clinics of MNRH between January and June 2018. Data was collected using Stoma-QOL questionnaire, PHQ-9 and GAD-7 from 51 participants who had lived with intestinal stomas for at least a month. Results: Of the 51 participants, male: female ratio was 4:1 and aged 18-84 years (mean age 44.04+18.47 years). 76.5% had colostomy; 23.5% had ileostomy. Majority (88.2%) had temporary stomas. The overall mean Stoma-QOL score was 55.12+ 17.04. Only about a quarter (24%) of participants had Stoma-QOL scores >70 (best). Most patients exhibited negative psy- chological effects (anxiety-100%, concerns about changed body image - 96.1% and depression - 88.4%). Conclusion: Most participants had low levels of stoma-related quality of life, suffered negative psychological effects and exhibited limited social interactions. This calls for efforts to support Stoma patients adapt beter life. Keywords: Stoma; Quality of Life (Stoma-QOL); Psychological effects; Patient Health Questionnaire (PHQ-9); General- ized Anxiety Questionnaire (GAD-7).

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Section: Participant Characteristicssupporting

confidence: 92%

“…The participants had a mean age of 44.04 +18.47 years that is truly representative of the generally young Ugandan population (WHO, 2016). Relatively younger populations were reported in India 32 and Egypt 30 .…”

Section: Discussionmentioning

confidence: 91%

Quality of life of adult individuals with intestinal stomas in Uganda: a cross sectional study

et al. 2021

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“…Their desires and values are often not fulfilled nor respected; they feel rejected, seeking seclusion because of the odor and elimination of feces through the abdomen. [ 7 ]…”

Section: Introductionmentioning

confidence: 99%

Experiences of living with intestinal ostomy: A qualitative meta-synthesis

Choudhary¹,

Kaur²

2020

Indian J Palliat Care

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Aims and Objectives: The aim and objective of the study was to identify, compare, and synthesize published qualitative evidence to have in-depth understanding of experiences of patients living with intestinal ostomy. Background: Over the past two decades, there have been numerous qualitative studies published depicting intense experiences of stoma patients brought about by the need to adapt with changing conditions following stoma creation. Synthesizing the findings of these studies can improve the understanding among health-care providers of needed support and care for ostomates. Design: This was a qualitative meta-synthesis. Methods: Published articles were identified from the Medline, CINAHL, SciELO, PsycINFO, PubMed, WOS, Google Scholar and a hand search through selected journals published since 2000, and from references lists. Thirteen articles were selected using the predefined criteria. Results: A total of 222 patients, aged between 14 and 83 years from 13 studies, were identified for data collection. Ninety-seven were male and the rest of them were female. The themes identified were physical problems, psychological issues, social relations, environmental impact, and coping and adaptation to stoma. Conclusions: The findings of the study identified numerous challenges and limitations in the life of patients with stoma. However, improving their skills of using problem-solving coping strategies and their interactions with other ostomates can help them to live a better and well-adjusted life.

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“…A study on QOL in Muslim ostomate patients demonstrated that standards of QOL in the Muslim population may be improved by proper education and management by stoma care nurses and physician's counselling . At the same time, some researchers proposed that it would be very practical to improve public health policies for stoma patients and for patients to be guided by nursing interventions during the pre‐operating period regarding: possible complications and impacts on body image, clothing, food, sexuality, interpersonal relationships, activities of daily living, and preparation for stoma self‐care, but other studies recommended that stomate patients may benefit from support groups in hospitals . In a systematic review about the effect of education on patients with stoma, the authors concluded that there is a need to test this effect in more controlled studies …”

Section: Introductionmentioning

confidence: 99%

Studying the effect of structured ostomy care training on quality of life and anxiety of patients with permanent ostomy

Ganjalikhani

Tirgari

Rashtabadi

et al. 2019

International Wound Journal

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Patients with ostomy are faced with several physical, psychological, and social challenges and need to be prepared to overcome these challenges. Studies have shown that training plays an important role in helping patients to adapt with ostomy, live with it, and improve their psychological well‐being and quality of life (QOL). Therefore, the present study aimed to determine the effect of structured ostomy care training on QOL and anxiety of the patients with permanent ostomy. In this randomised clinical trial study, 60 eligible participants were recruited from the only ostomy clinic in Kerman, Iran. They were selected using a purposive sampling method and randomly assigned to either a control group that received routine ostomy care or an intervention group that attended oral and practical training and a question and answer session by a trained ostomy nurse and received an ostomy information booklet besides their routine care. Outcome variables were anxiety and QOL in general and its physical, mental, social, and spiritual dimensions in detail. By using the anxiety subscale of Hospital Anxiety and Depression Scale (HADS) and City of Hope‐quality of life [COH‐QOL], data were collected before and 2 months after intervention in both groups. Data were analysed by SPSS version 19 using χ², analysis of variance (ANOVA), independent t, and paired t test and multiple regression analysis. The results showed that the intervention group had significantly lower mean scores in anxiety (P = .001) and a higher mean score in overall QOL (P = .009) compared with the control group. The most significant increase was observed for psychological, social, and physical aspects, and the least was in the spiritual aspect, all of which improved after intervention. After controlling the effects of confounding variables such as age, ostomy period, and number of children, the structured training programme still had a positive effect on QOL. Structured ostomy care training, including face‐to‐face education and personal practice of using ostomy equipment, along with written material provided by the ostomy nurse specialist, may lead to an increase in the overall QOL and a decrease in the perceived anxiety level in patients. This type of training is not routinely delivered to ostomy patients in our health care setting, so it is feasible to prepare surgical wards and to educate nurses to work with their patients before and after ostomy creation. Furthermore, to ease patients' religious concerns, we recommend counselling, and the support of religious leaders in the Muslim community may play a key role to adaptation regarding religious matters after ostomy surgeries and alleviate patients' concerns.

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Quality of life assessment in stoma patients in a tertiary care hospital in South India: a cross- sectional study

Cited by 13 publications

References 7 publications

Quality of life of adult individuals with intestinal stomas in Uganda: a cross sectional study

Quality of life of adult individuals with intestinal stomas in Uganda: a cross sectional study

Experiences of living with intestinal ostomy: A qualitative meta-synthesis

Studying the effect of structured ostomy care training on quality of life and anxiety of patients with permanent ostomy

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