Quality of life cannot be predicted from a brain scan

Fayed, Nora; Cohen, Eyal; Houtrow, Amy J.

doi:10.1111/dmcn.14484

Cited by 8 publications

(4 citation statements)

References 3 publications

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“…Although implicit biases are underrecognized, it is well documented that physicians misperceive quality of life for people with disabilities as poor and that medical judgments can be biased accordingly. Such was the case for Michael Hickson, a man with a history of severe traumatic brain injury who was not treated for COVID-19, in part because his physician deemed his quality of life too poor in a recorded conversation with Mr. Hickson's wife [39,[43][44][45]. Value judgments are routinely being made about what it means to have quality of life, or a life worth saving [46].…”

Section: Concern For Disability Discrimination During the Pandemicmentioning

confidence: 99%

Children with disabilities in the United States and the COVID-19 pandemic

Houtrow

Harris²,

Molinero³

et al. 2020

PRM

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Children with disabilities are disproportionately impacted by COVID-19 and the containment response. Their caregivers must now adapt to increased stressors such as lack of access to needed therapies, medical supplies, and nursing care. Prior to COVID-19 these families were already marginalized, and this has only worsened during the pandemic. As a vulnerable population, children with disabilities have not been the focus of much discussion during the pandemic, likely because the disease disproportionately impacts older individuals. Nonetheless, children with disabilities should be a focus of evaluation and intervention to mitigate the negative consequences of COVID-19 and the resulting containment strategies. Their needs should be included in future crisis planning, as well. In order to raise awareness of pediatric rehabilitation professionals, health care administrators, policy makers, and advocates, this manuscript provides a discussion of the following topics: the immediate and ongoing impacts on children with disabilities and their families, the ethical concerns and implications of triage protocols for scarce resources that consider disability in their scoring systems, and optimizing medical care and educational needs in the time of COVID.

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Section: Concern For Disability Discrimination During the Pandemicmentioning

confidence: 99%

Children with disabilities in the United States and the COVID-19 pandemic

Houtrow

Harris²,

Molinero³

et al. 2020

PRM

Self Cite

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“…How should clinicians interpret this work? First, although the constructs are related, we should take care not to directly equate an individual child's functional status with their perceived HRQOL [5,12,13]. Second, individual child and family preferences and goals should drive medical decision-making [1,14].…”

mentioning

confidence: 99%

More than a feeling: understanding function and health related quality of life after pediatric neurocritical illness

Jarvis

Fink

2021

Neurocrit Care

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“…2 As Iezzoni et al highlight, physicians are not exempt from deficit-based perspectives about people with disabilities, 1 and many physicians misperceive quality of life for people with disabilities. 1,[6][7][8] As a result, when physicians make medical judgments and care decisions, the results can be a deadly form of discrimination. 1,[6][7][8]…”

mentioning

confidence: 99%

“…1,[6][7][8] As a result, when physicians make medical judgments and care decisions, the results can be a deadly form of discrimination. 1,[6][7][8]…”

mentioning

confidence: 99%