Quality-of-Life Concerns of African American Breast Cancer Survivors Within Rural North Carolina: Blending the Techniques of Photovoice and Grounded Theory

López, Ellen D. S.; Eng, Eugenia; Randall-David, Elizabeth; Robinson, Naomi

doi:10.1177/1049732304270766

Cited by 170 publications

(114 citation statements)

References 38 publications

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“…Psychosocial support resources may be especially difficult to find in rural and/or underserved settings and patient navigator programs could be especially important in the coordination of care and support of minority, underinsured and rural survivors. 18,19 The study's findings are limited by having participants review only one version of an SCP template and without the supplementation of verbal guidance and explanation from a provider. The ASCO SCP template was not designed to be utilized as a stand-alone handout.…”

Section: Discussionmentioning

confidence: 99%

The Potential of Survivorship Care Plans in Primary Care Follow-up of Minority Breast Cancer Patients

et al. 2009

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BACKGROUND: When the clinical care of minority breast cancer survivors is transferred from oncology settings to primary care, quality of care may be compromised if their primary care providers do not have adequate cancer treatment records and follow-up care guidelines. Survivorship care plans (SCPs) given to survivors before they transition to primary care settings are designed to improve the transfer of this information. This study examined these issues in a sample of minority breast cancer survivors. DESIGN:During four focus groups with minority breast cancer survivors, data were collected about the types of information survivors remember receiving from their oncologists about follow-up health care needs. Survivors were also asked their opinions on the value and content of a survivorship care plan. RESULTS:Minority breast cancer survivors received variable amounts of information about their cancer treatments. They were dissatisfied with the amount of information they received on cancer-related side-effects, including race-specific information. The American Society of Clinical Oncology's breast cancer survivorship care plan was viewed as important, but too highly technical and limited in information on side-effects and self-care approaches.CONCLUSIONS: Survivorship care plans may help increase information transfer from oncologists to patients and primary care providers, but the content of care plans needs to be adapted to minority patients' concerns. Primary care physicians may be challenged by survivors to explain recommended surveillance guidelines and to respond to untreated physical and psychosocial problems.KEY WORDS: breast cancer; primary care; minority; survivorship.

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Section: Discussionmentioning

confidence: 99%

The Potential of Survivorship Care Plans in Primary Care Follow-up of Minority Breast Cancer Patients

et al. 2009

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“…Since it is well documented that cancer patients face physical and emotional challenges after undergoing treatment (Lopez et al, 2005), they are willing to modify their lifestyle in order to increase well-being as well as prevent recurrence (Monninkhof et al, 2007); they are also enthusiastic to get more information related to food choices, dietary supplement, complementary nutritional therapies and physical activity modification to improve their quality of life (Pinto et al, 2002;Brown et al, 2003). Quality of life is a multidimensional concept which covers…”

Section: Introductionmentioning

confidence: 99%

Impact of Healthy Eating Practices and Physical Activity on Quality of Life among Breast Cancer survivors

Mohammadi

Sulaiman²,

Koon³

et al. 2013

Asian Pacific Journal of Cancer Prevention

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Following breast cancer diagnosis, women often attempt to modify their lifestyles to improve their health and prevent recurrence. These behavioral changes typically involve diet and physical activity modification. The aim of this study was to determine association between healthy eating habits and physical activity with quality of life among Iranian breast cancer survivors. A total of 100 Iranian women, aged between 32 to 61 years were recruited to participate in this cross-sectional study. Eating practices were evaluated by a validated questionnaire modified from the Women's Healthy Eating and Living (WHEL) study. Physical activity was assessed using the International Physical Activity Questionnaire (IPAQ). A standardized questionnaire by the European Organization of Research and Treatment of Cancer Quality of Life and its breast cancer module (EORTC QLQ-C30/+BR-23) were applied to determine quality of life. Approximately 29% of the cancer survivors were categorized as having healthy eating practices, 34% had moderate eating practices and 37% had poor eating practices based on nutrition guidelines. The study found positive changes in the decreased intake of fast foods (90%), red meat (70%) and increased intake of fruits (85%) and vegetables (78%). Generally, breast cancer survivors with healthy eating practices had better global quality of life, social, emotional, cognitive and role functions. Results showed that only 12 women (12%) met the criteria for regular vigorous exercise, 22% had regular moderate-intensity exercise while the majority (65%) had low-intensity physical activity. Breast cancer survivors with higher level of physical activity had better emotional and cognitive functions. Healthy eating practices and physical activity can improve quality of life of cancer survivors. Health care professionals should promote good dietary habits and physical activity to improve survivors' health and quality of life.

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“…Next, the meaning of the photographs is explained by participants in interviews or focus groups. Photovoice has primarily been utilized as a means for health promotion within communities (e.g., Carlson, Engebretson, & Chamberlain, 2006;Castleden, Garvin, & Huu-ay-aht First Nation, 2008;Wang, Burris, & Ping, 1996), but it has also been incorporated into research on individuals' lived experiences of certain phenomena (e.g., Drew, Duncan, & Sawyer, 2010;López, Eng, Randall-David, & Robinson, 2005;Poudrier & Thomas-MacLean, 2009;Thompson et al, 2008). While photovoice has been used with a variety of populations, such an approach is frequently incorporated into health research, which is likely a reflection of the need for alternative ways of communicating about health and illness that go beyond dominant linguistic resources to capture the more personal and complex aspects of individuals' experiences.…”

mentioning

confidence: 99%

“I Just Don't Think There's any other Image that Tells the Story like [This] Picture Does”: Researcher and Participant Reflections on the Use of Participant-Employed Photography in Social Research

Burles

Thomas

2014

International Journal of Qualitative Methods

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The incorporation of visual forms of expression has become common in qualitative research over the past two decades, with participant-employed photography being most prevalent. Visual methods such as photovoice have been used in community-based studies and with individuals to explore their lived experiences, particularly because of their participatory nature. Despite widespread support for visual approaches in existing research, there has been insufficient attention paid to how photography can enhance understanding of the phenomenon under study. Additionally, the existing literature is somewhat bereft of discussion of what individuals think about their participation in studies that incorporate participant-employed photography, or researchers' perspectives of carrying out this type of research. In this article, we describe a photovoice study carried out with young adult women affected by serious illness and provide examples of participants' photographs to illustrate how participant-employed photography can enhance the depth of research data. Specifically, the examples highlight how the photographs enriched participants' verbal descriptions of their lived experiences, which generated a better understanding of their personal embodied realities. We also discuss the young adult women's inclusion of previously taken photographs and reflections on their participation in the study. Finally, we examine the need to consider the intended audience of photographs, and specific ethical and methodological considerations for researchers contemplating the incorporation of participant-employed photography. In doing so, we provide insight into the advantages and challenges of photo-

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Quality-of-Life Concerns of African American Breast Cancer Survivors Within Rural North Carolina: Blending the Techniques of Photovoice and Grounded Theory

Cited by 170 publications

References 38 publications

The Potential of Survivorship Care Plans in Primary Care Follow-up of Minority Breast Cancer Patients

The Potential of Survivorship Care Plans in Primary Care Follow-up of Minority Breast Cancer Patients

Impact of Healthy Eating Practices and Physical Activity on Quality of Life among Breast Cancer survivors

“I Just Don't Think There's any other Image that Tells the Story like [This] Picture Does”: Researcher and Participant Reflections on the Use of Participant-Employed Photography in Social Research

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