Quality of life for children with obstructive sleep apnea

Abstract

To translate and adapt the American Academy outcome measure for rhinosinusitis in Quebec. To establish reliability and validity (concomitant, discriminant, and longitudinal) of the Quebec-French Rhinosinusitis Outcome measure (QF-ROM). Methods: The forward translation was performed by 2 independent certified translators. The 2 versions obtained were tested on 24 patients for clarity and wording. The final version was a mixture of the 2 translated versions. At the initial visit, 120 patients with a diagnosis of recurrent acute rhinosinusitis, chronic rhinosinusitis, or nasal polyposis were administered the QF-ROM and the SF-36. A subgroup was administered the same questionnaires 10 to 14 days after the initial visit. The same questionnaires along with a global rating assessment were performed 3 months postoperatively in a subgroup of patients who had undergone endoscopic sinus surgery. Results: Data collection is ongoing, and analysis has not yet been performed. Conclusions: Outcome assessment of rhinosinusitis is crucial and expected to gain further importance in the Canadian and the Quebec Health System. Validated quality-of-life instruments are needed in French for Quebec.

Pediatric sleep questionnaires as diagnostic or epidemiological tools: A review of currently available instruments

“…Carroll’s and Gozal’s adaptations address better steps 4 – 6 (see Part 1; Generation of Items, Piloting, Item-analysis and non-response analysis)(note that only Gozal’s is applied as a questionnaire, whereas the other 2 are used as interviews). The quest for an optimal sleep-related breathing disorder diagnostic tool is also apparent from Supplement Table 1–3, e.g., PSQ-SRBD (22, 23), OSD-6 (34), OSA-18 (35), HK-CSQ (36), TuCASA (38), with the PSQ-SRBD being the most discussed. Of interest, is the increasing surge aiming at validation compared against objective measurements such as polysomnography or oximetry.…”

Outcomes and Quality of Life following Adenotonsillectomy for Sleep-Disordered Breathing in Children

“…More surprisingly, these scores are similar to or worse than those of children with asthma or juvenile rheumatoid arthritis [4] . The OSA-18 [12] , a disease-specific instrument, has been used extensively to study changes in quality of life after T&A for SDB. This instrument has 18 items in 5 domains including sleep disturbance, physical symptoms, emotional symptoms, daytime function and caregiver concerns.…”

Study of quality of life outcome after adenotonsillectomy in children with sleep disorderd breathing

“…One such questionnaire is the OSA-18, which is a disease-specific quality-of-life questionnaire commonly used by pediatric otolaryngologists. 43 Because this survey includes a number of symptom-specific questions and was validated against 90-minute, daytime-nap sleep studies, two investigations examined its utility as a potential diagnostic tool. The OSA-18 questionnaire, developed by Franco Jr. et al was applied in three moments to the caretakers of children including in this study to assess the quality of life of these patients.…”