Quality of Life for Family Caregivers of People with Chronic Health Problems

Canam, Connie; Acorn, Sonia

doi:10.1002/j.2048-7940.1999.tb02176.x

Cited by 71 publications

(50 citation statements)

References 28 publications

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“…The results indicated that caregivers who cared for their patients for longer periods had lower QoL, except in dimensions of RTT, FB, and REfF (no significant correlation). This finding is consistent with some previous studies (33,34), which showed that longer duration of caregiving is equivalent to lower QoL. One explanation is that managing patient symptoms for a long period results in frustration, helplessness, and other emotional burdens and leads to less professional or social support.…”

Section: Discussionsupporting

confidence: 92%

Development and Validation of a Questionnaire to Measure Quality of Life in Caregivers of Patients with Schizophrenia and Affective Disorders (SAC-QoL)

Soltaninejad

Kardorff

Kamali

et al. 2017

Iran J Psychiatry Behav Sci

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Background: Severe mental illnesses, such as schizophrenia and affective disorders, have considerable effects on the life of not only patients, but also their caregivers. Objective: The aim of this study was to develop a self-administered quality of life (QoL) questionnaire for the assessment of QoL in caregivers of patients with schizophrenia and affective disorders. Methods: Based on a mixed method approach and purposive sampling method, a sample consisting of 196 caregivers was recruited from 2 psychiatric hospitals in Tehran and Kerman, Iran, as well as a charity center in Kerman during 2015 -16. A 67-item questionnaire was developed in the qualitative phase of the study, consisting of semi-structured interviews with 45 caregivers, comments of an expert panel, and some items from other relevant questionnaires. The item reduction in the quantitative phase was based on item distribution, missing data per item, inter-item correlation, and factor analysis. The reliability coefficient (Cronbach's alpha) was calculated for all the dimensions. Convergent validity was assessed by Pearson's correlation coefficient test, and discriminant validity was analyzed, using student's t test and analysis of variance (ANOVA). Results: The final version of the questionnaire included 21 items and 7 dimensions: emotional burden (5 items); dealing with patient symptoms (3 items); relationship with the therapeutic team (3 items); relationship with family (2 items); financial burden (3 items); relationship with the extended family and friends (2 items); and latent worry (3 items). The 7 dimensions could explain 78.45% of the total variance. Item internal consistency was satisfactory for all the dimensions, ranging from 0.77 to 0.96 for each item. Cronbach's alpha coefficient ranged from 0.74 to 0.89 in the whole sample. The SAC-QoL index was significantly correlated with all the dimensions of the world health organization QoL-BREF (WHOQoL-BREF) scale (r, 0.32 -0.65). Also, the predefined hypotheses confirmed the discriminant validity (P < 0.01). Conclusions:The SAC-QoL questionnaire revealed acceptable psychometric properties. Therefore, it can be considered as a valid and reliable measure of QoL in caregivers of patients with schizophrenia and affective disorders. Moreover, it would be useful for clinicians and authorities to focus on caregivers who are primary providers of healthcare services.

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Section: Discussionsupporting

confidence: 92%

Development and Validation of a Questionnaire to Measure Quality of Life in Caregivers of Patients with Schizophrenia and Affective Disorders (SAC-QoL)

Soltaninejad

Kardorff

Kamali

et al. 2017

Iran J Psychiatry Behav Sci

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“…Além disso, o despreparo pode gerar ansiedade e maior desgaste físico, ocasionando situações de risco para ambos (16)(17) . Uma das formas de ajuda às famílias em seu processo de cuidar é aquela advinda dos profissionais, que incluem orientações básicas à saú-de, e sobre cuidados específicos em casos de doenças crônicas degenerativas, suas complicações e sintomas.…”

Section: Nara Marilene O G Perlini Ana Cristina M E Farounclassified

Cuidar de pessoa incapacitada por acidente vascular cerebral no domicílio: o fazer do cuidador familiar

Girardon-Perlini

Faro²

2005

Rev. esc. enferm. USP

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RESUMOEstudo exploratório, descritivo e quantitativo que busca identificar e descrever as atividades do familiar que cuida de pessoas incapacitadas por AVC no domicílio. A amostra constituiuse de 35 cuidadores familiares, predominantemente mulheres, esposas ou filhas. Os cuidados realizados relacionam-se ao grau de incapacidade do familiar. As orientações recebidas denotam falta de compromisso dos profissionais com a continuidade do cuidado. O cuidador aprende a cuidar no cotidiano, com base na observação e auxílio à enfermagem na internação. As dificuldades pautam-se no esforço físico, na desinformação e no medo, no constrangimento e na vergonha em lidar com o corpo do outro. O estudo enfoca a necessidade do preparo para a alta hospitalar, salienta a família como espaço concreto para o cuidado; o aumento da expectativa de vida é uma constatação. DESCRITORES Cuidadores.Cuidados domiciliários de saúde. Acidente cerebrovascular. ABSTRACTAn exploratory descriptive and quantitative study aimed at identifying and describing the activity of relatives in charge of caring at home for people incapacitated by cerebral vascular accident. The sample was comprised of 35 family caregivers, most of them women, wives or daughters. The care given is directly related to the degree of incapacity of the person who is being cared for. The orientation received indicated no commitment of professionals for the continuity of the care. The caregivers learn in daily practice how to care, based on observation and assistance to nursing during the internment period. The difficulties are related to physical effort, to lack of information and fear, to the embarassment and the shame of handling someone else's body. The study focuses on the need for preparation for hospital discharge, emphasizes the family as a concrete space for care; and observed an increase in life expectancy.

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“…However, previous research has focused on either describing caregiver burden and strain 6 or explor-ing predictors of caregiver burden. 7 Recently, investigators have examined caregiving in the HF population. In the first investigation, 6 researchers found that the prolonged negative effects of caregiving adversely affected the health status of caregivers.…”

mentioning

confidence: 99%