Quality of Life for Individuals with Traumatic Brain Injury: Comparison with Others Living in the Community

Brown, Margaret; Vandergoot, David

doi:10.1097/00001199-199808000-00002

Cited by 107 publications

(46 citation statements)

References 1 publication

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“…The severity of intracranial injury was clearly related to the PCS in all regression steps (i.e. less severe intracranial injury predicted worse PCS), making the results inconsistent with some studies (5,27), and in line with others (8,9,29). One possible explanation is that individuals who are afflicted with fewer problems overall may be more bothered by physical problems (9).…”

Section: Pcs Mcsmentioning

confidence: 68%

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Predicting health-related quality of life 2 years after moderate-to-severe traumatic brain injury

et al. 2013

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Aims -To describe health-related quality of life (HRQL) 2 years after moderate-to-severe traumatic brain injury (TBI) and to assess predictors of HRQL. Materials and methods -A prospective cohort study of 91 patients, aged 16-55 years, admitted with moderate-tosevere TBI to a trauma referral centre between 2005 and 2007, with follow-up at 1 and 2 years. Mean age was 31.1 (SD = 11.3) years, and 77% were men. Injury severity was evaluated by the Glasgow Coma Scale (GCS), head CT scan (using a modified Marshall Classification), Injury Severity Score (ISS) and post-traumatic amnesia (PTA). The Functional Independence Measure (FIM), Community Integration Questionnaire (CIQ), Beck Depression Inventory (BDI) and Medical Outcomes 36-item Short Form Health Survey (SF-36) were administered at follow-up visits. The main outcome measures were the Physical Component Summary (PCS) and Mental Component Summary (MCS) of the SF-36. Results -HRQL appears to be relatively stable between 1 and 2 years after injury. In the multivariate linear regression, younger age (b = À0.20, P = 0.032), more severe TBI (b = 0.28, P = 0.016), more severe overall trauma (b = 0.22, P = 0.026), higher levels of community integration (b = 0.36, P = 0.019) and higher positive change in PCS scores from 1 to 2 years (b = 0.41, P < 0.001) predicted better self-reported physical health 2 years post-TBI. Lower scores for depression (b = À0.70, P < 0.001) and a higher positive change in MCS scores (b = 0.62, P < 0.001) predicted better self-reported mental health. Conclusions -Future interventions should focus on aspects related to HRQL that are more easily modified, such as physical functioning, home and social integration, productivity, and mental and emotional status.

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Section: Pcs Mcsmentioning

confidence: 68%

“…The literature reveals conflicting results concerning the relationship between injury severity and HRQL (3,(8)(9)(10)(11). However, there is an agreement that improved physical functioning, perceived mental health, participation in productive activities and social supports improve HRQL (12,13).…”

Section: Introductionmentioning

confidence: 99%

Predicting health-related quality of life 2 years after moderate-to-severe traumatic brain injury

et al. 2013

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“…Several studies have compared life satisfaction of people with long-standing SCI with that of the general population (Figure 1). 14,[27][28][29][30][31][32][33][34][35][36][37][38][39][40][41][42][43][44] The differences between mean scores in people with SCI and in the population are expressed as effect sizes. 45 The mean effect size of all studies in Figure 1 is À0.77 (s.d.…”

Section: Methodsmentioning

confidence: 99%

Psychosocial issues in spinal cord injury: a review

2012

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Study design: Review. Objectives: To review literature on subjective well-being (SWB; mental health and life satisfaction) and on psychological and social support factors associated with these outcomes in people with spinal cord injury (SCI), in order to identify gaps in scientific knowledge and recommend research priorities. Setting: Non applicable. Methods: Narrative review of the SCI literature on life satisfaction and mental health (depression, anxiety, post-traumatic stress syndrome) outcomes in people with SCI. Further, reviews were performed of the SCI literature on psychological and social support variables associated with SWB and on psychosocial interventions aimed to improve SWB. Results: People with SCI experience, on average, higher levels of distress and lower levels of life satisfaction compared with the general population. Individual differences, however, are large, and most people with SCI adapt well to their condition. A set of psychological and social support factors is strongly related to SWB. Intervention studies on cognitive behavioural therapy or coping effectiveness training to improve SWB show promising results, but suffer from methodological weaknesses (for example, lack of randomization and small sample size). Conclusion: There is a need for cohort studies with sufficient sample size, which include people early after onset of SCI in order to enhance our understanding of the course of mental health and well-being after SCI. Cohort studies could also identify which people are at risk for long-term impairment of SWB. Finally, intervention studies on psychosocial interventions are needed to identify which interventions may improve SWB of people with SCI.

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“…Other measurement approaches have stressed the importance of considering emotional well being [16], ability to engage in effective communication [18], the significance of social interaction and support [19,20], the role of work [21], perceived wellness [22], and the subjective state of well being [23]. Similarly, QoL measures have integrated Maslow's concept of level of need satisfaction [12,24] and other views of the critical role of need fulfillment, such as that expressed in the Flanagan Scale of Needs [25], supporting the idea that unmet needs damage life satisfaction [26]. Researchers have emphasized the necessity to broaden QoL methodology to delineate essential features to reflect whose perspective and value system is being considered (i.e.…”

Section: Introductionmentioning

confidence: 92%

Brain injury: quality of life's greatest challenge

et al. 2002

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The objectives of this investigation were to (1) identify elements that comprise an acceptable quality of life (Q-L) post-traumatic brain injury (TBI) from the perspectives of patients and families, and (2) explore patient and family satisfaction with treatment decisions relevant to QoL. The authors created, tested, and administered two forms (patient; family) of a 35-question interview to 33 participants in a longitudinal TBI study (14 women, 19 men) and 33 associated family members. Men associated ratings of QoL with numerous variables, while women's responses revealed no significant relationships shared by QoL and other variables. Women reported a poorer QoL than did men. Older patients reported a better QoL than did younger patients. Families emphasized the family relationship, emotional control, and ability to concentrate when considering overall QoL. Patients did not. The majority of patients and families expressed satisfaction with decisions made about acute treatment. QoL research is essential to illuminate best practice models.

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Quality of Life for Individuals with Traumatic Brain Injury: Comparison with Others Living in the Community

Cited by 107 publications

References 1 publication

Predicting health-related quality of life 2 years after moderate-to-severe traumatic brain injury

Predicting health-related quality of life 2 years after moderate-to-severe traumatic brain injury

Psychosocial issues in spinal cord injury: a review

Brain injury: quality of life's greatest challenge

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