Quality of life in a cohort of men with epilepsy compared to a healthy population and those with common chronic diseases in the UK using a generic patient-reported outcome measure

Greenway, Lesley; Ahern, Declan; Leavy, Y.; Rawnsley, Margaret; Duncan, Susan E.

doi:10.1016/j.yebeh.2013.08.030

Cited by 6 publications

(2 citation statements)

References 37 publications

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“…35 In 2013, a World Health Organization (WHO) quality-of-life 26-question short form was used to compare 149 patients with epilepsy to 1,238 healthy English citizens, contributing valuable insights to psychosocial disease effects. 36 In fact, a series of studies have suggested that the WHO Disability Assessment Schedule 2.0 is useful for monitoring outcomes in a wide range of clinical and service settings. One advantage of adopting an internationally accepted instrument is the ability to allow crosscountry comparisons.…”

Section: Figurementioning

confidence: 99%

Feasibility of the collection of patient-reported outcomes in an ambulatory neurology clinic

et al. 2016

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Objective: To determine whether patients could self-report physical and mental health assessments in the waiting room and whether these assessments would be associated with modified Rankin Scale (mRS) and Quality of Life in Epilepsy (QOLIE-10) scores.Methods: We offered iPad-based surveys to consecutive adult neurology patients at check-in to collect patient-reported outcome measures (PROMs). We collected demographic and clinical data on 6,075 patients through survey or administrative claims and PROMs from participating patients. We compared demographic characteristics of participants and nonparticipants and tested associations between physical and mental health scores and mRS and QOLIE-10.Results: Of 6,075 patients seen by neurologists during the study period, 2,992 (49.3%) participated in the survey. Compared to nonparticipating patients, participating patients more often were privately insured (53.5% vs 42.7%, p , 0.01), married (51.5% vs 47.9%, p , 0.01), and seen in general neurology (nonsubspecialty) clinics (53.1% vs 46.6%, p , 0.01) and more likely to report English as their preferred language (50.1% vs 38.4%, p , 0.01). Participating patients had a mean physical health T score of 28.7 (SD 15) and mental health T score of 33 (SD 15), which were 3 and 2 SD worse than the average for the US general population, respectively.

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Section: Figurementioning

confidence: 99%

Feasibility of the collection of patient-reported outcomes in an ambulatory neurology clinic

et al. 2016

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“…Novel methods have been developed to measure the psychosocial and cognitive changes and their neural correlates in different types of epilepsy in relation to the pharmacological or surgical treatment [23,24]. Therefore, new researchers in the field of epilepsy may find a wide spectrum of valid measurements in the Journal.…”

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confidence: 99%

Cognition, behavior, and the role of Epilepsy & Behavior in advancing knowledge about epilepsy

Giovagnoli

2014

Epilepsy & Behavior

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Quality of life in epilepsy: an overview of the state of research – Part 2: comparison with reference groups, interventional studies

Endermann

2018

Z. Epileptol.

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Quality of life in a cohort of men with epilepsy compared to a healthy population and those with common chronic diseases in the UK using a generic patient-reported outcome measure

Cited by 6 publications

References 37 publications

Feasibility of the collection of patient-reported outcomes in an ambulatory neurology clinic

Feasibility of the collection of patient-reported outcomes in an ambulatory neurology clinic

Cognition, behavior, and the role of Epilepsy & Behavior in advancing knowledge about epilepsy

Quality of life in epilepsy: an overview of the state of research – Part 2: comparison with reference groups, interventional studies

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