Quality of Life in a Hospice: A Validation of the Croatian Version of the EORTC QLQ-C15-PAL

Golčić, Marin; Dobrila-Dintinjana, Renata; Golčić, Goran; Pavlović-Ružić, Ira; Stevanović, Aleksandra; Gović-Golčić, Lidija

doi:10.1177/1049909118760781

Cited by 12 publications

(9 citation statements)

References 22 publications

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“…This development process secures that studies may compare their results obtained from the QLQ C15-PAL with studies using the original QLQ-C30 questionnaire [3]. In addition, the QLQ-C15-PAL has been successfully validated and translated in several countries [6][7][8][9][10][11][12][13][14], including Spanish-speaking countries [15,16].…”

Section: Introductionmentioning

confidence: 94%

“…We recognize some limitations related to this study. First, we did not evaluate statistically the psychometric properties of the QLQ-C15-PAL in Chilean patients; however, it has been extensively validated in previous international studies [6][7][8][9][10][11][12][13]. Second, we planned to recruit at least 10 HCPs from each palliative care service, but half of the services investigated had less than 10 professionals in their teams.…”

Section: Total 7 10mentioning

confidence: 99%

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Content validation of the EORTC QLQ-C15-PAL with advanced cancer patients and health care professionals from palliative care services in Chile

et al. 2020

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Background The assessment of patients’ quality of life (QOL) is essential when evaluating the outcome of palliative care; however, no instruments have been validated for measuring symptoms and QOL in patients receiving palliative care in Chile. We aimed to investigate the content validity of the EORTC Quality of Life Questionnaire Core 15 Palliative Care (QLQ-C15-PAL), replicating the methods used previously to shorten the EORTC Quality of Life Questionnaire Core 30 (QLQ-C30) for use among patients in palliative care. Methods This cross-sectional study was conducted from October to November 2017 in four palliative care services. Patients with advanced cancer and health care professionals (HCPs) were invited to individual interviews to determine the relevance, appropriateness and relative importance of the 30 items of the QLQ-C30 for evaluating the outcome of palliative care, and whether relevant additional issues should be included. Results A total of 48 patients and 35 HCPs participated. The most important dimensions selected were pain, physical functioning, sleeping difficulties, emotional functioning, nausea/vomiting, fatigue, social functioning, lack of appetite, role functioning and constipation. Qualitative data identified important additional issues not covered by the questionnaire such as satisfaction with care, emotions and psychological support, as well as linguistic issues in the dyspnea and constipation items. Conclusions The EORTC QLQ-C15-PAL showed good content validity in the assessment of symptoms and QOL of advanced cancer patients; therefore, we recommend the use of this questionnaire in palliative care in Chile. Dyspnea and constipation items were revised by the EORTC group. More research is needed to add a social dimension for a comprehensive assessment of patients’ QOL.

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Section: Introductionmentioning

confidence: 94%

Section: Total 7 10mentioning

confidence: 99%

Content validation of the EORTC QLQ-C15-PAL with advanced cancer patients and health care professionals from palliative care services in Chile

et al. 2020

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“…Other translation and validation studies of EORTC questionnaires also used this type of test to assess construct validation, with correlation of items in the subscale with the different subscales belonging to the same questionnaire. Among them are: the translation and validation study of the Quality of Life Questionnaire Brain-20 (QLQ-BN20), which assesses the QoL of brain cancer patients, for use in Iran [ 28 ]; the Quality of Life Questionnaire Core 15 for Palliative Care, to assess palliative care QoL, for use in Croatia [ 29 ]; and QLQ-CR29, to assess the QoL of patients with CRC, for the Chinese version of Taiwan [ 30 ]. All performed convergent and divergent validation, and there was a greater correlation between comparisons of items in the same subscale than in different subscales.…”

Section: Discussionmentioning

confidence: 99%

Translation and psychometric validity of the Brazilian version of the European Organisation for Research and Treatment of Cancer – colorectal liver metastases module

Tomim¹,

Lenhani²,

Nogueira³

et al. 2022

ecancer

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Patients with liver metastasis of colorectal cancer (CRC) experience important lifestyle changes that impair the quality of life (QoL). The use of instruments is important to assess the cancer patients' QoL. To develop a Brazilian translation of the European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire Colorectal Liver Metastases (QLQ-LMC21) questionnaire, and to investigate psychometric validity in patients with CRC with liver metastases, patients with liver metastasis from CRC answered the Brazilian versions of EORTC core Quality of Life Questionnaire-Core 30 (QLQ-C30) and the QLQ-LMC21 module, a demographic data questionnaire and a questionnaire to assess understanding against the translated QLQ-LMC21. Data collection was performed in three Southern hospitals in Brazil, from August 2017 to August 2019. Descriptive analyses and Spearman's correlation tests were performed for construct and criterion validity. The Cronbach's alpha test was performed to assess reliability. Significant values were p < 0.05. Ten patients participated in the study for the pilot test and 106 for validation, with a mean age of 58.2 + 12.4 years old. The translated questionnaire was easy to understand for the participants in the pilot test phase, with no need for modification. In the validation of the convergent construct, all the correlations were significant (p < 0.001) and with coefficients above 0.53. In the discriminant validity, among items of different scales, the values of the divergent correlations were pain scale (0.005 to 0.186) and fatigue (−0.01 to 0.186), all non-significant. In the criterion validation, the correlations were significant, p < 0.05, and higher among similar scales of the QLQ-LMC21 and QLQ-C30, p-value < 0.001. The total internal consistency of the questionnaire was adequate, with a Cronbach's alpha value of 0.790. The Brazilian version of the QLQ LMC21 proved to be a valid reliable questionnaire to be used in conjunction with the QLQ-C30.

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“…demographic data and the Palliative Performance Scale (PPS) were recorded from the charts. Only the subset score from the pain and quality of life variables on both questionnaires were included in this analysis 24 . eSAS is an 11item scale, where 0 denotes no pain and 10 denotes the worst possible pain.…”

Section: Methodsmentioning

confidence: 99%

Should We Treat Pain in the Elderly Palliative Care Cancer Patients Differently?

Golčić

Dobrila-Dintinjana

Golčić

et al. 2020

ACC

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-Opioids are considered the cornerstone of pain management in palliative care. Available data suggest that older patients use different analgesics and lower opioid doses compared to younger patients. however, it has not been elucidated yet whether such dosing is associated with worse pain levels or shorter survival in the palliative care setting. we evaluated the relationship among pain scores, quality of life, opioid dose, and survival in palliative care cancer patients in a hospice setting. A total of 137 palliative care cancer patients were analyzed prospectively. we divided patients into two groups using the age of 65 as a cutoff value. younger patients exhibited significantly higher pain ratings (5.14 vs. 3.59, p=0.01), although older patients used almost 20 mg less oral morphine equivalent (OMe) on arrival (p=0.36) and 55 mg OMe/day less during the last week (p=0.03). There were no differences in survival between the two groups (17.36 vs. 17.58 days). The elderly patients also used nonsteroidal analgesics less often and paracetamol more often. hence, using lower opioid doses in older palliative care cancer patients does not result in worse pain rating, and could be a plausible approach for pain management in this patient group.

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Quality of Life in a Hospice: A Validation of the Croatian Version of the EORTC QLQ-C15-PAL

Cited by 12 publications

References 22 publications

Content validation of the EORTC QLQ-C15-PAL with advanced cancer patients and health care professionals from palliative care services in Chile

Content validation of the EORTC QLQ-C15-PAL with advanced cancer patients and health care professionals from palliative care services in Chile

Translation and psychometric validity of the Brazilian version of the European Organisation for Research and Treatment of Cancer – colorectal liver metastases module

Should We Treat Pain in the Elderly Palliative Care Cancer Patients Differently?

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