Quality-of-life in a long-term multicentre trial in chronic nonspecific lung disease: assessment at baseline. The Dutch CNSLD Study Group

Kaptein, Adrian A.; Brand, P. L. P.; Dekker, FW; Kerstjens, H. A. M.; Postma, D.S.; Sluiter, Hj

doi:10.1183/09031936.93.06101479

Cited by 68 publications

(2 citation statements)

References 22 publications

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“…Recently, the interest of clinical physicians to research patients' mental conditions has essentially focused on somatic diseases [3,6,11,12,14,16]. The reason is that personality features and emotional stress significantly influence the aetiology and course of chronic diseases.…”

Section: Introductionmentioning

confidence: 99%

“…The reason is that personality features and emotional stress significantly influence the aetiology and course of chronic diseases. Interest in studying the quality of life of COPD patients has increased considerably [12,14,15,16,19]. It is believed that this disease is accompanied by respiratory discomfort whose emotional importance exceeds the painful syndrome as such.…”

Section: Introductionmentioning

confidence: 99%

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Psychological changes in patients with COPD

Zhukava¹

2023

Pol. Ann. Med.

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Introduction. Chronic somatopathies are usually progressive and may result in substantial psychological changes. Chronic obstructive pulmonary disease (COPD) ranks very high as a reason for physical disability in the world. Aim. This study aimed at estimating mood, mental activity, efficiency, and tonus of the vegetative nervous system of patients with COPD. Materials and methods. Colour Luscher’s test was used to survey 62 patients with COPD of mild and moderate degree, including 38 men and 24 women of the median age: 48±2.1. The control group, also tested, consisted of 56 essentially healthy people, comparable with regards to age and sex to the researched group. Colour Luscher’s test was applied to study psychological and social characteristics, as well as the level of the «simpaticus» scale of the vegetative nervous system in patients with chronic obstructive pulmonary disease. Decreased functional ability, increased uneasiness, and a high level of the «simpaticus» scale of the vegetative nervous system did not correlate with the gender of the patients with chronic obstructive pulmonary disease. Psychological and social characteristics of the patients with chronic obstructive pulmonary disease are provided and discussed considering their gender. Conclusions. Irrespective of sex, COPD patients manifest a high tonus of sympathetic department of the vegetative nervous system, reduced efficiency, and increased anxiety. In male patients, striving for recognition, impressionability and sensitivity, lead to marked nervous pressure in connection with their attempt for self-esteem. In female patients, reduction in the factors of: instability of choice, emotional indifference, and pessimism, is marked.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Psychological changes in patients with COPD

Zhukava¹

2023

Pol. Ann. Med.

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Functional status from the patient's perspective: The challenge of preserving personal integrity

Leidy¹,

Haase

1999

Res. Nurs. Health

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The purpose of this naturalistic, qualitative study was to describe the meaning of functional performance from the perspective of patients themselves. Twelve men and women with moderate to severe chronic obstructive pulmonary disease (COPD) participated in unstructured, tape-recorded interviews. The essential structure of the experience of finding purpose and meaning through activity was derived through an adaptation of Colaizzi's phenomenological method and the consensus dialogue approach to concept clarification. Results suggest people who are ill face an ongoing challenge of preserving their personal integrity, defined as a satisfying sense of wholeness, as they encounter a variety of physical changes that can interfere with day-to-day activity. Qualities most salient to integrity are a sense of effectiveness, or "being able," and of connectedness, or "being with." Identifying personal integrity as a motivating and explanatory factor in day-to-day activity performance may be an important consideration in designing effective intervention programs to improve capacity, strengthen performance, and enhance quality of life.

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Quality of life in patients with cystic fibrosis

Jong¹,

Kaptein

Schans³

et al. 1997

Pediatr. Pulmonol.

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The majority of patients with cystic fibrosis (CF) will grow into adulthood. Despite this improvement in survival, the disease is progressive, especially with respect to the decline in pulmonary function, which in turn may have an impact on a patient's quality of life. In this study we evaluated the quality of life in CF adults and examined the relationship between quality of life and pulmonary function, exercise capacity, and dyspnea. We assessed in 15 patients in stable clinical condition their forced expired volume in the first second (FEV1) inspiratory vital capacity (IVC), cycle exercise capacity (Wmax), and subjective degrees of dyspnea during daily living (MRC dyspnea scale). Quality of life was assessed with the Sickness Impact Profile (SIP). A sample of 100 healthy individuals, ranging in age from 18 to 30 years, served as the control group. Mean (SD) age of the patients was 25.9 (7.3) years, FEV1 was 38 (16) % predicted, IVC was 65 (17) % predicted, FEV1 IVC ratio was 46 (10) %, and Wmax was 90 (54) W. The overall SIP and physical SIP scores in CF patients were significantly higher than in the controls, indicating more impairment in overall and physical functioning In the patients than in the control group (P < 0.001). The psychosocial SIP score did not differ significantly between the two groups. Overall SIP score correlated poorly with FEV1 % predicted (r = −0.33; n.s) and IVC % predicted (r = −0.36; n.s.) but showed a better and significant relationship to the maximal exercise capacity (r = −0.57; P < 0.05). MRC dyspnea scores showed a strong correlation with overall SIP scores (r = 0.75; P < 0.001). These results show that CF affects quality of life in adults primarily due to a limitation in physical functioning. Psychosocial functioning did not differ from that of healthy controls. Exercise capacity and dyspnea scores were related to the Impairment in the quality of life. Therefore, the effects of programs aimed to improve exercise capacity and reduce dyspnea on CF patients' quality of life need to be evaluated. Pediatr Pulmonol. 1997; 23:95–100. © 1997 Wiley‐Liss, Inc.

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Quality-of-life in a long-term multicentre trial in chronic nonspecific lung disease: assessment at baseline. The Dutch CNSLD Study Group

Cited by 68 publications

References 22 publications

Psychological changes in patients with COPD

Psychological changes in patients with COPD

Functional status from the patient's perspective: The challenge of preserving personal integrity

Quality of life in patients with cystic fibrosis

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