Quality of Life in Adults With Repaired Complete Cleft Lip and Palate

Marcusson, Agneta; Åkerlind, Ingemar; Paulin, Gunnar

doi:10.1597/1545-1569(2001)038<0379:qoliaw>2.0.co;2

Cited by 109 publications

(101 citation statements)

References 23 publications

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“…Part of the treatment for clefting extends throughout adolescence, during which psychological adjustment has been reported to be a problem as well (Kapp-Simon et al, 1992;Thomas et al, 1997). Lower psychological adjustment, cognitive performance, as well as social and economic achievement in processes such as marriage, educational attainment, and income level, have been reported as well among adults with oral clefts in several studies (Heller et al, 1981;Bjornsson and Agustsdottir, 1987;Ramstad et al, 1995aRamstad et al, , 1995bMarcusson et al, 2001; Nopolous et al, 2002). No studies have reported the impact of clefting on the quality of life of infants.…”

Section: Nih Public Accessmentioning

confidence: 99%

Health Professionals’ Assessment of Health-Related Quality of Life Values for Oral Clefting by Age Using a Visual Analogue Scale Method

Wehby

Ohsfeldt

Murray

2006

The Cleft Palate Craniofacial Journal

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Objective-To elicit health-related quality of life (HRQL) values associated with oral clefting by age using a visual analogue scale, and to explore the appropriateness of using health professionals as evaluators.Methods-A representative group of health professionals working on craniofacial and/or cleft palate teams in the United States was sampled. Values (between 0 and 1) representing the HRQL associated with isolated and nonisolated oral clefting for infants, children, adolescents, and adults were obtained. The relationships between selected evaluator characteristics and values were also assessed.Results-Of 330 professionals surveyed, 133 (40%) completed and returned reliable evaluations. Overall, HRQL values were clustered toward the right tail of the scale, indicating modest decreases in HRQL. Most evaluators reported feeling confident in completing the evaluations. HRQL values seemed to vary by team type (cleft palate only versus cleft palate/craniofacial care) and geographic location, but no major differences were found overall for any selected evaluator characteristics.Conclusions-This study provides HRQL values for oral clefting based on preferences of health professionals that may be useful in evaluating the effectiveness and cost-effectiveness of prevention and treatment strategies, including those carried out in clinical trial studies. The clustered pattern of HRQL values suggests either a consensus among evaluators of a limited burden of oral clefting or an overall lack of understanding of the evaluation task.Keywords cleft lip; cleft palate; cost effectiveness; cost utility; health-related quality of life; health utilities; health values; oral clefting; quality-adjusted life years; visual analogue scaleHealth-related quality of life (HRQL) is the term used to describe the impact of health status on the quality of human life. Although the phrase is often applied to a variety of definitions Address correspondence to: Dr. Jeffrey C. Murray, Department of Pediatrics, College of Medicine, 2182 ML, University of Iowa, Iowa City, IA 52242-1181. E-mail jeff-murray@uiowa.edu.. This work was supported by NIH grants DE08559 and DE16215. Assessment of HRQL within this framework involves the identification of preferences or values that describe the undesirability of health conditions or states compared to reference states. The HRQL values would be quantified through scores that could be combined with duration of life (e.g., QALYs) and used in conducting economic and effectiveness evaluations of health care interventions, including cost-effectiveness and cost-utility analyses, to guide the allocation of health care resources to improve health outcomes overall (Eisenberg, 1989). Further, because evidence-based medicine and the role of randomized clinical trials become increasingly important in clinical practice, it is critical to have reliable metrics to assess outcomes. NIH Public AccessThe HRQL scores used to adjust the duration of life for HRQL are usually specified on a continuum that ranges from low t...

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Section: Nih Public Accessmentioning

confidence: 99%

Health Professionals’ Assessment of Health-Related Quality of Life Values for Oral Clefting by Age Using a Visual Analogue Scale Method

Wehby

Ohsfeldt

Murray

2006

The Cleft Palate Craniofacial Journal

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“…6 These instruments have the potential to improve the quality of clinical and psychosocial care. 7 Orofacial function includes vital actions (e.g., breathing, chewing and swallowing) and muscle posture (e.g., mouth and tongue posture) 8 and forms the basis for social interaction in terms of speech, emotional communication, facial expression and appearance. 9 Orofacial dysfunctions can compromise well-being and OHRQoL from childhood.…”

Section: Introductionmentioning

confidence: 99%

Relationship among oral habits, orofacial function and oral health-related quality of life in children

2013

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Abstract:The objective was to evaluate the relationship among oral habits, oral function and oral health-related quality of life (OHRQoL) in children. Three hundred and twenty-eight subjects (8-14 years old) were assessed for orofacial function using the Brazilian version of the Nordic Orofacial Test-Screening (NOT-S). OHRQoL was assessed using the Child Perceptions Questionnaires (Brazilian versions) for the 8-10 (CPQ 8-10 ) and 11-14 (CPQ 11-14 ) year age groups. The subjects were distributed into a Habit group and a Habit-free group according to domain III (Habits) of the NOT-S. Oral habits were present in 71.3% of the sample (p = .0001), with a higher prevalence in females (62.8%, p = .001). The NOT-S, CPQ 8-10 and CPQ 11-14 scores were higher in the Habit group (P = .0001, P = .009 and p = .001, respectively). Domain I (Sensory Function) was significantly more affected in Habit group subjects (p = .001). The NOT-S scores were positively correlated with the CPQ 8-10 and CPQ 11-14 scores only in the Habit group (r = .32, p = .0003 and r = .30, p = .001, respectively). These results indicate that oral habits can impact OHRQoL. Moreover, orofacial dysfunctions were associated with worse OHRQoL in subjects with oral habits.

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“…Wenn die Spalte eines Kindes sichtbar ist, können Familien negative so ziale Reaktionen wegen des ungewöhnlichen Aussehens ihres Kindes erfahren [3]. Die aufwendige und sich über einen langen Zeitraum erstreckende Behandlung und die möglichen psychosozialen Belastungen durch die Spaltbildung haben unter Umständen einen bleibenden Einfluss auf das Wohlbefinden und die Lebensqualität des Patienten [23].…”

Section: Introduction Einleitungunclassified

An Evaluation of Health-Related Quality of Life (HRQoL) in a Group of 4–7 Year-old Children with Cleft Lip and Palate

et al. 2009

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Quality of Life in Adults With Repaired Complete Cleft Lip and Palate

Cited by 109 publications

References 23 publications

Health Professionals’ Assessment of Health-Related Quality of Life Values for Oral Clefting by Age Using a Visual Analogue Scale Method

Health Professionals’ Assessment of Health-Related Quality of Life Values for Oral Clefting by Age Using a Visual Analogue Scale Method

Relationship among oral habits, orofacial function and oral health-related quality of life in children

An Evaluation of Health-Related Quality of Life (HRQoL) in a Group of 4–7 Year-old Children with Cleft Lip and Palate

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