Quality of life in children and young people with tetraplegic cerebral palsy

Michalska, Agata; Markowska, Małgorzata; Śliwiński, Zbigniew; Pogorzelska, Justyna

doi:10.5114/ms.2018.76871

Cited by 6 publications

(8 citation statements)

References 41 publications

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“…The results of the author's own research using the PedsQL 3.0 Cerebral Palsy Module are in line with the results obtained by Michalska [4,8] and are similar to the results obtained by Varni [11] and Yang [12]. They confirm the low level of children and youth functioning as regards every day and school activities, mobility and keeping balance, as well as eating and speech.…”

Section: Quality Of Life In Patients With Cerebral Palsysupporting

confidence: 88%

“…However, the results presented by other researchers indicate that pain is often reported, in particular by people with severe motor deficits and in the presence of gastrostomy [13]. Hirsh et al [14], Arnaud [15], and Michalska [4,8] draw attention to the inadequate assessment of the intensity of pain. As they note, this may be the result of the patient's mental disability, problems with communication, or lack of parents' or guardians' knowledge [13,14].…”

Section: Quality Of Life In Patients With Cerebral Palsymentioning

confidence: 99%

“…Cerebral palsy (paralysis cerbralis infantium -CP) is a disease entity of complex consequences affecting biological, physical, and social functioning [1,2]. The inconsistency of disease symptoms affects the organisation of the life of a child and his/her family [3,4]. Achievement of the highest level of independence as regards motor, emotional, or social functions is possible upon applying a multi-directional assessment in order to program comprehensive therapy performed by a group of specialists.…”

Section: Introductionmentioning

confidence: 99%

“…The efficiency of therapy is measured by regular clinical and functional assessment. The quality of life assessment applied simultaneously to the aforementioned assessments is equally important [4].…”

Section: Introductionmentioning

confidence: 99%

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Assessment of quality of life in patients with cerebral palsy

Lewicka¹,

Kurylak²

2019

polp

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Introduction: The quality of life improvement in children with cerebral palsy has become one of the main goals of therapeutic intervention, in parallel with the relief of disease symptoms. Unfortunately, the number of Polish publications on the quality of life of this group is relatively small compared to other countries. Aim of the study: The aim of this paper was the assessment of the quality of life of children with cerebral palsy. Material and methods: The study group included 128 persons with cerebral palsy aged two to 18 years. The study was of prospective nature and was carried out using the diagnostic survey method with the use of two standardised tools: PedsQL 3.0 Cerebral Palsy Module and CP QOL-Child Questionnaire. All calculations and figures were made using Microsoft Excel and Statistica 10.0 software. Results: The least frequently reported problems on the PedsQL 3.0 scale were pain (68.02 points) and fatigue (58.40 points). The most difficult for cerebral palsy patients were everyday activities (32.31 points), and mobility and keeping balance (39.41 points). The lowest scores of all domains in the CP QOL-Child questionnaire were received by the access to health services-56.24 points, and physical health and participation-58.99 points. According to the surveyed patients, their highest quality of life occurs in the area of participation in social life and social acceptance-75.71 points, and emotional state-75.27 points Conclusions: The results show a deficit in the quality of life of children and youths with cerebral palsy in terms of physical, social, and school life as well as in terms of problems arising from the disease entity. The therapy should be focused on appropriate adjustment of the home and school environment to the patient's needs, as well as developing skills that enable self-care or assisting in everyday self-care and school activities.

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Section: Quality Of Life In Patients With Cerebral Palsysupporting

confidence: 88%

Section: Quality Of Life In Patients With Cerebral Palsymentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Assessment of quality of life in patients with cerebral palsy

Lewicka¹,

Kurylak²

2019

polp

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“…A similar study was done by Michalska et al . [ 26 ] also found the physical functioning score to be the lowest PedsQL subscale score.…”

Section: Discussionmentioning

confidence: 99%

Health-related quality of life of intellectually disabled children attending a special school in Puducherry-A cross-sectional study

Boratne

Sasinthar

Sugumaran

et al. 2022

Journal of Family Medicine and Primary Care

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Introduction: Health-related quality of life (HRQOL) is a measure of an individual’s psychosocial, emotional, and physical well-being. Around 1 in 20 children are less than 15 years of age and are living with a moderate-to-severe form of disability. Thus, our study aims to determine the HRQOL of intellectual disabled (ID) children attending a special school in Puducherry and to determine the socio-demographic factors influencing the level of HRQOL. Methodology: A cross-sectional analytical study was conducted among 350 ID children attending a selected special school in Puducherry over 1 year. By the universal sampling method, all the caregivers of ID children were recruited and the parent proxy form of Pediatric Quality of life Inventory scale version 4.0 (PedsQL ver 4.0) was used to assess the level of HRQOL of ID children. The data were analyzed using the Statistical Package for Social Science version 16.0 (SPSS ver. 16.0) and the statistical significance was set at P value <0.05. Results: Among the 350 respondents, a majority of the caregivers were mothers (78.9%) and 65.7% were homemakers by occupation. Most of the respondents were from the nuclear family (77.7%) and 55.1% were from urban areas. The mean age of ID children was 12 (±3.8) years; 61.2% were males and 40.8% of the children had a moderate form of ID. Conclusion: The HRQOL of ID children is found to be lower. The factors influencing the lower HRQOL were age, the intelligent quotient (IQ) of ID children, and type of marriage of the caregivers.

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