Quality of life in cystic fibrosis: the impact of gender, general health perceptions and disease severity

Gee, Louise; Abbott, Janice; Conway, Steve; Etherington, C.; Webb, A K

doi:10.1016/s1569-1993(03)00093-6

Cited by 124 publications

(117 citation statements)

References 25 publications

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“…9,10 However, the factors that contribute to health related quality of life (HRQOL) in patients with CF are unclear. A recent study that examined the impact of disease severity 11 on HRQOL found only modest relationships. The impact of anxiety and depression in relation to quality of life in CF patients is not fully known.…”

Section: Introductionmentioning

confidence: 96%

Relationship Between Anxiety, Depression, and Quality of Life in Adult Patients With Cystic Fibrosis

et al. 2012

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BACKGROUND:The impact of anxiety and depression on quality of life (QOL) in adult patients with cystic fibrosis (CF) is fully unknown. We investigated the prevalence and factors associated with anxiety and depression, including QOL, in adult CF patients. METHODS: One hundred twenty-one adult CF subjects, age > 18 years were recruited from our out-patient clinic. Participants self-completed the Hospital Anxiety Depression Scale and the Cystic Fibrosis Quality of Life Questionnaire (CF-QOL). Socio-demographic data and values for lung function were extracted from the medical notes. RESULTS: Mean ؎ SD age was 30 ؎ 8.8 years, and age ranged 18 -70 years. Forty (33%) were identified with anxiety symptoms, 20 (17%) with depressive symptoms. Factors related with depression were impaired QOL and low lung function. Anxiety was associated with difficulty in interpersonal relationships and severity of chest symptoms. The CF-QOL subdomains (physical functioning, social functioning, treatment issues, chest symptoms, emotional functioning, concerns for the future, interpersonal relationships, body image, future/career concerns, and total CF-QOL) were all significantly correlated with anxiety (P < .001) and with depression (P < .001), respectively. CONCLUSIONS: Anxiety and depressive symptoms are common in adult CF patients. They are associated with poorer QOL, low lung function, reduced physical functioning, and severity of chest symptoms. Therefore, routine screening for symptoms of anxiety and depression is a worthy endeavor, and those identified with elevated clinical symptoms should be referred to receive appropriate treatment.

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Section: Introductionmentioning

confidence: 96%

Relationship Between Anxiety, Depression, and Quality of Life in Adult Patients With Cystic Fibrosis

et al. 2012

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“…In addition to cognitive therapy for body image disturbance, exercise is also a viable method for reducing negative body related self perceptions of body image disturbed individuals (Gee, Abbott, Conway, Etherington, & Webb, 2003). Previous studies have shown that exercise may alter body image for the better, not only in patients or disabled people, but also in healthy people (Rosen, Cado, Silber, Srebnik, & Wendt, 1990).…”

Section: Discussionmentioning

confidence: 99%

The influence of physical activity on body image in people with and without acquired mobility disability

Gürsel¹,

Koruç²

2011

Acta Gymnica

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BACKGROUND:Body image in people with physical disability is important, but it has received little attention in the research literature.OBJECTIVE: The aim of the study was to determine whether diff erences exist between adolescents with acquired mobility disability (AMD) and those without AMD regarding body image, and whether physical activity infl uences these diff erences.METHODS: Fifty-eight adolescents, aged 16 to 18 years, participated in this study. Half the participants had some form of AMD while the other half were healthy. Body image was evaluated with the Multidimensional Body Self Relations Questionnaire (MBSRQ) before and after 6 weeks of playing darts. A two way ANOVA was used to analyse the results.RESULTS: At the end of the study, the healthy adolescents scored signifi cantly higher than the AMD group on the subscales of fi tness perception, orientation and overall health perception. No interaction was found between disability and exercise on any subscales of the MBSRQ. CONCLUSIONS:The results of this study demonstrate that people with AMD evaluate their health and fi tness levels as being lower than healthy adolescents and that they are less concerned with fi tness as compared with healthy adolescents. Six weeks of playing darts as a physical activity had no eff ect on improving the self perceptions of the AMD group.

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“…Disease severity showed an impact on HRQoL, together with gender in adults and adolescents (females had poorer HRQoL (6). Children were surveyed to assess the effect of newborn screening, which was not found associated with different HRQoL (7).…”

Section: Original Articlementioning

confidence: 99%

Health-Related Quality of Life and Psychological Distress in Italian Patients With Cystic Fibrosis

et al. 2015

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Objective -The aim of this paper is to describe the health related quality of life (HRQoL) in an unselected hospital-based cohort of patients with Cystic fibrosis (CF), and to explore the association between HRQoL and psychological status. Study design -115 patients with CF (47 children, 26 adolescents and 42 adults) attending the Bambino Gesù Pediatric Hospital in Rome, Italy, were recruited. HRQoL was measured through the Cystic Fibrosis Questionnaire (CFQ), child and adult versions. The Youth Self Report Form and the General Health Questionnaire were used to screen for psychological distress in patients aged below and above 18 respectively. Multivariable logistic regression analysis was performed to explore the relationship between CFQ scores and psychological distress, adjusting for socio-demographic and clinical variables. Results -HRQoL was high, except for Social Limitations, Energy/Wellbeing and Treatment Constraints. Twenty-eight patients (24.4%) scored positive for psychological distress. HRQoL scores below median for Symptoms, Body Image and Social Limitations, and unemployment were significantly associated with the presence of psychological distress, while age, screening-based diagnosis, gender and medical factors were not. Conclusions -Screening for psychological distress should be part of routine management of patients with CF. Opportunities for age-appropriate socialization, work and leisure time should be allowed and encouraged.

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Quality of life in cystic fibrosis: the impact of gender, general health perceptions and disease severity

Cited by 124 publications

References 25 publications

Relationship Between Anxiety, Depression, and Quality of Life in Adult Patients With Cystic Fibrosis

Relationship Between Anxiety, Depression, and Quality of Life in Adult Patients With Cystic Fibrosis

The influence of physical activity on body image in people with and without acquired mobility disability

Health-Related Quality of Life and Psychological Distress in Italian Patients With Cystic Fibrosis

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