Quality of life in epilepsy (QOLIE): Insights about epilepsy and support groups from people with epilepsy (San Francisco Bay Area, USA)

Chung, Kevin Kien Hoa; Liu, Yuan; Ivey, Susan L.; Huang, Debbie; Chung, Corina; Guo, Wenting; Tseng, Winston; Ma, Daveena

doi:10.1016/j.yebeh.2012.02.003

Cited by 42 publications

(25 citation statements)

References 41 publications

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“…Even patients with only a single seizure per year can still be significantly affected, because they can be restricted from driving, have decreased quality of life, and may be unable to obtain gainful employment. 32 Inadequate health care resources and access-related issues appear to be important barriers to timely access to epilepsy surgery. If future improvements in physician knowledge translate into an increasing number of patients referred for surgical evaluation and/or epilepsy surgery, it is crucial that the infrastructure and personnel are in place to allow patients to have timely access to this evidence-based treatment.…”

Section: 9mentioning

confidence: 99%

Neurologists' knowledge of and attitudes toward epilepsy surgery

Roberts

Hrazdil

Wiebe³

et al. 2015

Neurology

104

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Objectives: In the current study, we aim to assess potential neurologist-related barriers to epilepsy surgery among Canadian neurologists.Methods: A 29-item, pilot-tested questionnaire was mailed to all neurologists registered to practice in Canada. Survey items included the following: (1) type of medical practice, (2) perceptions of surgical risks and benefits, (3) knowledge of existing practice guidelines, and (4) barriers to surgery for patients with epilepsy. Neurologists who did not complete the questionnaire after the initial mailing were contacted a second time by e-mail, fax, or telephone. After this reminder, the survey was mailed a second time to any remaining nonresponders.Results: In total, 425 of 796 neurologists returned the questionnaire (response rate 53.5%). Respondents included 327 neurologists who followed patients with epilepsy in their practice. More than half (56.6%) of neurologists required patients to be drug-resistant and to have at least one seizure per year before considering surgery, and nearly half (48.6%) failed to correctly define drug-resistant epilepsy. More than 75% of neurologists identified inadequate health care resources as the greatest barrier to surgery for patients with epilepsy.Conclusions: A substantial proportion of Canadian neurologists are unaware of recommended standards of practice for epilepsy surgery. Access also appears to be a significant barrier to epilepsy surgery and surgical evaluation. As a result, we are concerned that patients with epilepsy are receiving inadequate care. A greater emphasis must be placed on knowledge dissemination and ensuring that the infrastructure and personnel are in place to allow patients to have timely access to this evidence-based treatment. Neurology ® 2015;84:159-166

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Section: 9mentioning

confidence: 99%

Neurologists' knowledge of and attitudes toward epilepsy surgery

Roberts

Hrazdil

Wiebe³

et al. 2015

Neurology

104

View full text Add to dashboard Cite

show abstract

“…Felt-stigma occurred more often in those who experienced job problems. Disclosure of epilepsy was showed to be associated with failure in getting a job (Lee, 2005) and work termination (Chung et al, 2012).…”

Section: Psychological Factorsmentioning

confidence: 99%

“…Of the 11 qualitative studies identified, three explored the attitudes of the employers toward epilepsy (Bishop, 2004;Cooper, 1995;John and McLellan, 1988), seven on employment experiences of PWE (Aydemir et al, 2009;Bellon et al, 2013;Bishop, 2002;Buelow, 2001;Chung et al, 2012;Jacoby et al, 2005;McQueen and Swartz, 1995) and one on the desire to have improvement in work status as motivation for epilepsy surgery (Taylor et al, 2001).…”

Section: Qualitative Studies On Attitudes Of Employers and Employmentmentioning

confidence: 99%

Employability in people with epilepsy: A systematic review

Lim

Choo

et al. 2015

Epilepsy Research

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“…There is already evidence from research in epilepsy that information, motivation, and skills may mediate the relationship between stigma and adherence in patients with epilepsy [23][24][25][26][27][28] and related services [23][24][25]. Stigma may undermine seeking adherence information because patients may not talk about their condition with others as much as in nonstigmatized conditions [19].…”

Section: Introductionmentioning

confidence: 99%