Quality of life in long-term survivors following treatment for Hodgkin's disease during childhood and adolescence in the German multicentre studies between 1978 and 2002

Calaminus, Gabriele; Dörffel, W; Baust, Katja; Teske, C.; Riepenhausen, Marianne; Brämswig, Jürgen; Flechtner, Hans‐Henning; Schnittger, Susanne; Hinz, Andreas; Schellong, G

doi:10.1007/s00520-013-2114-y

Cited by 49 publications

(52 citation statements)

References 29 publications

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“…Strong study design. **4xCalaminus, 2014, Quality of life in long‐term survivors following treatment for Hodgkin's disease during childhood and adolescence in the German multicentre studies between 1978 and 2002 Cross‐sectional questionnaires using cohort data from CCS from the German‐Austrian consecutive multicentre trails of CCS.N = 725 Hodgkin's disease survivors, N = 659 age adjusted German reference sample from the European Organization for Research and Treatment of Cancer (EORTC) data collected in face‐to‐face interviews. Survivors' mean scores were more than 10 points lower on the Qol scales “Emotional” and “Social Functioning”. Survivors had higher mean scores, exceeding 10 points, for the scales “Fatigue” and “Sleep”. A gender effect showed lower functioning and higher symptom levels in women, most prominently in the group of young women (21–25 years). Moderate sample size and relatively large for disease specific sample; strong randomly selected, age‐adjusted population comparison, data collection appropriate to study method; appropriate analysis; reporting comprehensive, clearly described;**4xChan, 2014 Health‐related quality‐of‐life and psychological distress of young adult survivors of childhood cancer in Hong Kong …”

Section: Supplementary Informationmentioning

confidence: 99%

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Psychosocial Follow‐Up in Survivorship as a Standard of Care in Pediatric Oncology

Lown

Phillips

Schwartz

et al. 2015

Pediatric Blood & Cancer

110

113

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Childhood cancer survivors (CCS) have a high risk of medical late effects following cancer therapy. Psychosocial late effects are less often recognized. Many CCS do not receive long-term follow-up (LTFU) care, and those who do are rarely screened for psychosocial late effects. An interdisciplinary team conducted a systematic review of qualitative and quantitative studies to assess social, educational, vocational, psychological, and behavioral outcomes along with factors related to receipt of LTFU care. We propose that psychosocial screening be considered a standard of care in long-term follow-up care and that education be provided to promote the use LTFU care starting early in the treatment trajectory.

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Section: Supplementary Informationmentioning

confidence: 99%

“…Calaminus, 2014, Quality of life in long‐term survivors following treatment for Hodgkin's disease during childhood and adolescence in the German multicentre studies between 1978 and 2002 …”

Section: Supplementary Informationmentioning

confidence: 99%

Psychosocial Follow‐Up in Survivorship as a Standard of Care in Pediatric Oncology

Lown

Phillips

Schwartz

et al. 2015

Pediatric Blood & Cancer

110

113

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“…Nach Ende der Behandlung, das heißt im Rahmen der Krebsnachsorge, werden die ehemaligen Patienten gemäß der standardisierten Nachsorgeempfehlungen für die verschiedenen Erkrankungsentitäten versorgt [15,16,17]. Dies geschieht mit immer länger werdenden Vorstellungsintervallen im ehemaligen Behandlungszentrum bis etwa 5-10 Jahre nach Diagnose.…”

Section: Nachbetreuung Der Patientenunclassified

Die Leitsymptome im Überblick

Creutzig¹,

Tallen

Calaminus³

2015

Pädiatrie

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Eine frühe Diagnosestellung ist bei malignen Erkrankungen häu g schwierig, weil unspezi sche Allgemeinsymptome vorherrschen. Andererseits ist es wichtig, möglichst schnell die Diagnose zu stellen, da maligne Zellen sich rasch vermehren. Grundsätzlich ist bei der kinderärztlichen Betreuung ein enger Informationsaustausch zwischen Niedergelassenem und der behandelnden kinderonkologischen Fachabteilung von großer Bedeutung. Leukämien 34,1% ZNS-Tumoren 22,9 % Lymphome 11,4 % Periphere Nervenzelltumoren 7,5 % Weichteilsarkome 5,9 % Nierentumoren 5,6 % Knochentumoren 4,5 % Sonstige Diagnosen 5,2 % Keimzelltumoren 2,9 %

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“…They are deemed to be physically ‘healthy' and yet, on account of their fatigue, are considerably restricted and thereby often confronted with complete or partial unemployment - with the ensuing psychological, psycho-socially stigmatizing, financial, and (on the social level) economic implications. Within the post-Hodgkin's disease group of children and adolescents, fatigue syndrome is mostly found among young women [31]. Even the demarcation of fatigue syndrome from depressive illness is problematic.…”

Section: Important ‘Later Late Effects'mentioning

confidence: 99%

Late Effects and Long-Term Follow-Up after Cancer in Childhood

Langer

Grabow²,

Steinmann

et al. 2017

Oncol Res Treat

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Today, 80% of children and adolescents with cancer survive their disease. From the results of aftercare research arises the question: Are the survivors also healthy? Many late effects depend on the type of cancer and its treatment. Patients with brain tumors and with malignant sarcomas are very often affected by secondary diseases. Data from the USA report that around 2/3 of all patients still living 30 years after their cancer treatment in childhood suffer from late complications. Equivalent figures for Germany were previously unavailable. In accordance with the guidelines, regular follow-ups to diagnose a relapse or possible late effects have mostly been carried out in the primary children's hospitals. In adolescence and in young adulthood, this regimen does no longer serve the patientsʼ mental and physical needs. To ensure appropriate care for this maturing patient group, interdisciplinary approaches (e.g., aftercare consultations) are required in which pediatric oncologists collaborate with colleagues from the field of internal medicine and other disciplines. Individual, risk-adapted (depending on the cancer treatment) aftercare plans based on pre-existing aftercare recommendations must be drawn up for every patient and to secure the early diagnosis of possible late effects. The conservation of health and quality of life after cancer treatment (in all age groups) will in the future not only represent a social but also an economic consideration.

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Quality of life in long-term survivors following treatment for Hodgkin's disease during childhood and adolescence in the German multicentre studies between 1978 and 2002

Abstract: Clinicians engaged in follow-up care should be sensitive to aspects of fatigue and related (emotional) symptoms in HD childhood cancer survivors and encourage their patients to seek further support if needed.

Cited by 49 publications

References 29 publications

Psychosocial Follow‐Up in Survivorship as a Standard of Care in Pediatric Oncology

Psychosocial Follow‐Up in Survivorship as a Standard of Care in Pediatric Oncology

Die Leitsymptome im Überblick

Late Effects and Long-Term Follow-Up after Cancer in Childhood

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