Quality of life in Mexican patients with primary neurological or musculoskeletal disabilities

Estrella-Castillo, Damaris F.; Gómez-de-Regil, Lizzette

doi:10.1016/j.dhjo.2015.05.003

Cited by 20 publications

(24 citation statements)

References 36 publications

(34 reference statements)

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“…In people with a physical disability and/or chronic disease, HR-QoL during rehabilitation is lower than in the nondisabled population [3]. More importantly, after rehabilitation, low levels of HR-QoL are commonly reported in people with a physical disability and/or chronic disease [4][5][6], and HR-QoL is poorer compared to a healthy reference population [7]. Low levels of HR-QoL are associated with secondary health conditions (e.g.…”

Section: Introductionmentioning

confidence: 99%

Trajectories of health-related quality of life among people with a physical disability and/or chronic disease during and after rehabilitation: a longitudinal cohort study

et al. 2020

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Purpose To identify Health-related Quality of Life (HR-QoL) trajectories in a large heterogeneous cohort of people with a physical disability and/or chronic disease during and after rehabilitation and to determine which factors before discharge are associated with longitudinal trajectory membership. Methods A total of 1100 people with a physical disability and/or chronic disease were included from the longitudinal cohort study Rehabilitation, Sports and Active lifestyle. All participants participated in a physical activity promotion programme in Dutch rehabilitation care. HR-QoL was assessed using the RAND-12 Health Status Inventory questionnaire at baseline (T0: 3–6 weeks before discharge) and at 14 (T1), 33 (T2) and 52 (T3) weeks after discharge from rehabilitation. A data-driven approach using Latent Class Growth Mixture modelling was used to determine HR-QoL trajectories. Multiple binomial multivariable logistic regression analyses were used to determine person-, disease- and lifestyle-related factors associated with trajectory membership. Results Three HR-QoL trajectories were identified: moderate (N = 635), high (N = 429) and recovery (N = 36). Trajectory membership was associated with person-related factors (age and body mass index), disease-related factors (perceived fatigue, perceived pain and acceptance of the disease) and one lifestyle-related factor (alcohol consumption) before discharge from rehabilitation. Conclusions Most of the people who participated in a physical activity promotion programme obtained a relatively stable but moderate HR-QoL. The identified HR-QoL trajectories among our heterogeneous cohort are disease-overarching. Our findings suggest that people in rehabilitation may benefit from person-centred advice on management of fatigue and pain (e.g. activity pacing) and the acceptance of the disability.

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Section: Introductionmentioning

confidence: 99%

Trajectories of health-related quality of life among people with a physical disability and/or chronic disease during and after rehabilitation: a longitudinal cohort study

et al. 2020

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“…None of the studies estimated the needed sample size nor selected the sample randomly. In 70% of the cases, participants were recruited by professionals in the health care field (Choi et al, 2013;Dajpratham & Kongkasuwan, 2011;Estrella-Castillo & Gómez-de-Regil, 2016;Jeong et al, 2012;Lucas-Carrasco et al, 2011;Rassi-Fernandes, 2015;Stefane et al, 2013); in 20% they were recruited through databases of official organizations that serve people with disabilities (Badenhorst et al, 2018;Phillips et al, 2009) and in 10% potential participants were members of an association and drawn from the medical records of a hospital (Chang et al, 2012).…”

Section: •Methodological Characteristics Of the Studiesmentioning

confidence: 99%

“…All the studies established clear inclusion criteria and 80% of the studies specified exclusion criteria (Badenhorst et al, 2018;Choi et al, 2013;Dajpratham & Kongkasuwan, 2011;Estrella-Castillo & Gómez-de-Regil, 2016;Jeong et al, 2012;Lucas-Carrasco et al, 2011;Rassi-Fernandes, 2015;Stefane et al, 2013), while 20% did not explicitly state them (Chang et al, 2012;Phillips et al, 2009).…”

Section: •Methodological Characteristics Of the Studiesmentioning

confidence: 99%

“…The percentage of people who agreed to participate was calculated based on the data provided. In 60% of the studies it was possible to calculate the response rate (Badenhorst et al, 2018;Chang et al, 2012;Choi et al, 2013;88 Estrella-Castillo & Gómez- de-Regil, 2016;Jeong et al, 2012;Phillips et al, 2009), but 40% did not provide this data (Dajpratham & Kongkasuwan, 2011;Lucas-Carrasco et al, 2011;Rassi-Fernandes, 2015;Stefane et al, 2013). The response rate varied between 52% (Phillips et al, 2009) and 95% (Jeong et al, 2012).…”

Section: •Methodological Characteristics Of the Studiesmentioning

confidence: 99%

“…Ninety percent of the studies reported obtaining ethical approval and informed consent (Badenhorst et al, 2018;Chang et al, 2012;Choi et al, 2013;Dajpratham & Kongkasuwan, 2011;Estrella-Castillo & Gómez-de-Regil, 2016;Jeong et al, 2012;Lucas-Carrasco et al, 2011;Phillips et al, 2009; Rassi-Fernandes, 2015) while 10% did not report on this aspect (Stefane et al, 2013). Finally, 90% of the studies used instruments to assess disability (Badenhorst et al, 2018;Chang et al, 2012;Choi et al, 2013;Rassi-Fernandes, 2015;Dajpratham & Kongkasuwan, 2011;Jeong et al, 2012;Lucas-Carrasco et al, 2011;Phillips et al, 2009;Stefane et al, 2013), while 10% used other appropriate diagnostic criteria (Estrella-Castillo & Gómez-de-Regil, 2016).…”

Section: •Methodological Characteristics Of the Studiesmentioning

confidence: 99%

See 2 more Smart Citations

Health-related quality of life among persons with physical disabilities: a systematic review and meta-analysis

Lima-Castro¹,

Blanco²,

Otero³

et al. 2020

Rev. iberoam. psicol. salud

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Although research suggests that people with physical disabilities experience impacts to their health-related quality of life (HRQL), there are no previous reviews or meta-analyses of studies that use appropriate assessment instruments in this population. The objective of this project was to conduct a systematic literature review and meta-analysis of studies that use the World Health Organization Quality of Life Questionnaire (WHOQOL-BREF) to evaluate HRQL in people with physical disabilities. We searched the PsycINFO, Medline, CINAHL and The Cochrane Library databases, identifying articles published through February 2020. The methodological quality of the studies was analyzed, and the pooled mean scores for each domain of the WHOQOL-BREF were calculated. Ten studies involving 2,048 people with physical disabilities were included. Their methodological quality was adequate. The pooled mean scores were 49.5 for the physical domain, 57.7 for the psychological domain, 58.2 for the social relations domain, and 55.5 for the environmental domain. The findings of this work confirm an impact of physical disabilities on the four HRQL domains in this population.

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Burden and depression among informal caregivers of visually impaired patients in Mexico

Ruiz-Lozano¹,

Rosa-Pacheco²,

Hernández-Camarena³

et al. 2022

Disability and Health Journal

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Quality of life in Mexican patients with primary neurological or musculoskeletal disabilities

Cited by 20 publications

References 36 publications

Trajectories of health-related quality of life among people with a physical disability and/or chronic disease during and after rehabilitation: a longitudinal cohort study

Trajectories of health-related quality of life among people with a physical disability and/or chronic disease during and after rehabilitation: a longitudinal cohort study

Health-related quality of life among persons with physical disabilities: a systematic review and meta-analysis

Burden and depression among informal caregivers of visually impaired patients in Mexico

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