Quality of life in patients with multiple sclerosis: A study with patients and caregivers

Santos, Martim; Sousa, Cláudia; Pereira, M. Graça

doi:10.1016/j.dhjo.2019.03.007

Cited by 42 publications

(40 citation statements)

References 51 publications

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“…Although the interdependence theory and actor-partner interdependence theory [ 12 , 13 ] posit that it is important to consider the influence of shared social contexts between couples, many studies did not carefully consider the quality of shared social relationships in affecting the dyadic effects [ 8 ]. Despite the overall positive influence of marital satisfaction in diverse domains [ 7 ], the present study demonstrated that, instead of buffering the negative influence, greater marital satisfaction magnified the negative dyadic influence of health on life satisfaction in older married couples, which was consistent with some previous work [ 4 , 19 ]. For instance, Polenick et al found that relationship closeness magnified the negative association between patients’ illness severity and spouses’ well-being [ 4 ].…”

Section: Discussionsupporting

confidence: 91%

“…Different from its generally positive direct effect on well-being [ 7 ], some studies considering the moderating role of marital satisfaction revealed that it can backfire in some health situations [ 16 , 17 , 18 ]. For instance, Santos et al found a negative association of symptoms of anxiety and quality of life only among patients with multiple sclerosis reporting higher marital satisfaction [ 19 ]. However, to our knowledge, there were no studies examining the moderating role of marital satisfaction on both actor and partner effects of disabilities simultaneously on life satisfaction.…”

Section: Introductionmentioning

confidence: 99%

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The Magnifying Effect of Marital Satisfaction on the Dyadic Effect of Disabilities on Life Satisfaction

Jiang

2021

IJERPH

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(1) Background. Extending previous work, the present study examined whether marital satisfaction would magnify the dyadic effect of disabilities on life satisfaction among older married couples. (2) Methods. With responses collected from 11,694 participants (5847 couples; Mage = 63.36 years, median: 62 years) in a large-scale survey study in China in 2015, the actor-partner interdependence model (APIM) analyses were conducted to examine how marital satisfaction moderated the actor and partner effects of disabilities on life satisfaction. In addition, mixed linear model analyses were conducted to examine the gender effect. (3) Results. The results showed that marital satisfaction magnified the negative association between disabilities and life satisfaction with different patterns for each gender. Specifically, husbands’ disabilities significantly negatively predicted their own levels of life satisfaction among those with higher marital satisfaction but not among those with lower marital satisfaction. In contrast, for wives, spousal disabilities significantly predicted lower levels of life satisfaction among those with higher marital satisfaction but not among those with lower marital satisfaction. (4) Conclusions. The evidence for the magnifying effect of marital satisfaction obtained in the present study implicates the importance of taking dyadic dynamics in close relationships into account in health care research.

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Section: Discussionsupporting

confidence: 91%

Section: Introductionmentioning

confidence: 99%

The Magnifying Effect of Marital Satisfaction on the Dyadic Effect of Disabilities on Life Satisfaction

Jiang

2021

IJERPH

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“…On average, MS affects women two to three times more often than men. [5,6]. There are four forms of MS, the most common of which are relapsing-remitting MS (RRMS, 85%) and primary progressive MS (PPMS, 10%).…”

Section: Introductionmentioning

confidence: 99%

Personal Autonomy as Quality of Life Predictor for Multiple Sclerosis Patients

Pădureanu

Albu

Pirici

et al. 2020

JCM

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Multiple sclerosis (MS) is a chronic, severe disease, characterized by a progressive alteration in neuronal transmission, which decreases personal independence and quality of life (QoL). This study aimed to investigate the relationship between QoL and personal autonomy in patients with MS, as well as its correlation with age, educational level, and diseases severity. Twenty-six MS patients were followed-up for six months. All patients completed the 15D questionnaire two times: at T0, when they started a new treatment, and at T1 after six months of treatment. At the end point, all patients completed the Personal Autonomy Questionnaire. The average patient age was 43 years (SD = 10), and 89% of them were female. The mean severity and duration of MS were 3.5 (SD = 1.75) and 9.5 (SD = 5.1), respectively. The average QoL of MS patients at T0 was 0.66 (SD = 0.18), and that at T1 was 0.71 (SD = 0.16). The scores of patients with different types of MS, i.e., relapsing–remitting MS (RRMS) or secondary progressive MS (SPMS), were compared. SPMS patients were older than RRMS patients (mean age 47.5 vs. 39.7 years; p = 0.032), and more RRMS patients were working (0.014). SPMS patients described the same QoL and personal autonomy as RRMS patients. Results from bivariate correlation analyses showed a significant relationship between QoL and age, education, and severity of MS. Also, the analysis showed no significant correlation between QoL and personal autonomy.

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“…Debska et al [24] and Yamout et al [26] found a connection between the social support and the QoL of the MS patients. Santos et al [31] studied the contentment in marriage and confirmed that it impacts the anxiety of the patients and mental QoL.…”

Section: Discussionmentioning

confidence: 98%

“…Less attention is paid to the QoL of the family members [30] or at the same time to the MS patients and their caregivers [24, 31]. For this reason, we focused on both groups.…”

Section: Introductionmentioning

confidence: 99%

Factors Influencing Health-Related Quality of Life of Patients with Multiple Sclerosis and Their Caregivers

Bužgová

Kozáková

Škutová³

2020

Eur Neurol

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Background: Only a few studies have been done focusing on the quality of life (QoL) of patients with multiple sclerosis (MS) as well as their family members. The aim of our research was to determine the factors that influence the QoL of MS patients in advanced stage of disease and their caregivers. Methods: The sample of the cross-sectional study included 153 patients with MS and 74 caregivers. QoL was measured using the PNDQoL questionnaire (Progressive Neurological Diseases Quality of Life), and the severity of illness was assessed through the following scales: EDSS (Expanded Disability Status scale), PPS (Palliative Performance Scale), and ADL (Activity Daily Living). Results: The following predictors of the global QoL of the MS patients were identified – age, EDSS, symptom burden, daily care, emotional functioning, and spiritual_nonreligion functioning (R2 = 0.569; F = 32.900; p < 0.001). The following predictors of the global QoL of caregivers were identified – age, emotional functioning, spiritual_nonreligion functioning, patient’s QoL, and feeling of care (R2 = 0.431; F = 18.690; p < 0.001). Conclusion: Appropriate intervention should be directed particularly at older patients and caregivers who have faced the disease for longer time and at patients without any partner. Supporting the emotional and social well-being and mitigating the burden caused by symptoms of the patients as well as caregivers can improve the QoL of both groups.

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Quality of life in patients with multiple sclerosis: A study with patients and caregivers

Cited by 42 publications

References 51 publications

The Magnifying Effect of Marital Satisfaction on the Dyadic Effect of Disabilities on Life Satisfaction

The Magnifying Effect of Marital Satisfaction on the Dyadic Effect of Disabilities on Life Satisfaction

Personal Autonomy as Quality of Life Predictor for Multiple Sclerosis Patients

Factors Influencing Health-Related Quality of Life of Patients with Multiple Sclerosis and Their Caregivers

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